Visual storytelling is a new research approach drawing on established methods of photovoice and photo elicitation. It appears well suited to with young people. We explored the feasibility this approach, reflecting benefits challenges encountered while using it during study chronic disease self-management in adolescents. During in-depth interviews, 68 participants were questioned about value visual storytelling. Thematic analysis was applied. valued for (a) being draw card recruitment...

Abstract There has been much debate about the psychosocial effects of predictive genetic testing in minors. The majority this theoretical, with little empirical evidence published. We conducted in‐depth interviews 18 young people who had undergone testing, to explore range harms and benefits that they perceived were associated their tests. Participants eight individuals tested for Huntington disease (two gene‐positive, six gene‐negative) ten familial adenomatous polyposis (five five...

Background: An implantable cardioverter defibrillator (ICD) is a device used in the treatment of individuals with life‐threatening cardiac conditions. These include genetic disorders such as long QT syndrome, hypertrophic cardiomyopathy, and Brugada all which have propensity to cause sudden death. Adults ICDs consistently report elevated levels anxiety depression, well negative lifestyle changes associated device. Compared older ICD recipients, young patients face decades life long‐term...

Guidelines recommend that predictive genetic testing for Huntington disease (HD) should be deferred until the age of majority (18 years in most countries). However, opposition to these guidelines exists, with some professionals arguing may beneficial young people, and considered much earlier. Empirical evidence is unable substantiate either position. We aimed (1) explore experience HD from person's perspective (2) document impact has upon various aspects people's lives. Eight people who had...

We present a case study involving the unexpected deaths of two young people whose parents were taking part in qualitative concerning adolescents with chronic disease. explore and highlight ethically important moments, both procedural emotional, implications for research team, ethics committee, health researchers more broadly. Our reflections are drawn from team discussion analysis trainee researcher’s responses to situation. focus on (a) reflexivity ethical mindfulness as strategy enhancing...

Providing health services to young people poses specific challenges as a consequence of their unique developmental stage. In the field genetics, providing developmentally appropriate care can be further complicated by familial nature genetic information. Several fields medicine have developed guidance around how best work with adolescent patients. No such advice exists in clinical genetics or counseling. It is time for address this aspect practice through development adolescent-friendly...

Navigating limits to confidentiality with adolescent clients can be ethically and professionally challenging. This study follows on from a previous quantitative survey of psychologists about dilemmas adolescents. The current used qualitative methods explore such in greater depth. Twenty Australian were interviewed asked describe an challenging past case. Cases then facilitate discussion the decision-making process outcomes. Interviews transcribed analyzed using interpretive content thematic...

Background: The debilitating and very visible motor effects of the incurable, progressive, fatal neurodegenerative condition Huntington disease (HD) are accompanied by more insidious cognitive, behavioural personality disturbance. usual age HD onset exposes children adolescents to natural history as it affects a parent. This group young people has been largely overlooked in most research, which concentrated upon experiences affected individuals their partners. Objective: study explores...

Abstract Confidentiality is vital for building effective therapeutic alliances with clients, yet determining when to breach confidentiality prevent harm can be challenging. This especially true clients are minors, as the primary concern often entails preventing young person, opposed others. The current study sought explore considerations that Australian psychologists take into account making decisions about breaching adolescents. Two hundred sixty-four responded an online survey and rated...

Little is known about the involvement of siblings in family-based treatment (FBT) for anorexia nervosa (AN). To explore experience families, adolescents who had completed FBT, their siblings, and parents were interviewed. Siblings reported that FBT enhanced understanding they supported family various ways. While often wished attended more sessions, there was no consensus among patients regarding sibling attendance many concerned potential negative impacts on siblings. Clinicians should...

Adolescence is a developmental period marked by unique physical, psychological and social changes. Guidelines about working with adolescents are available to health professionals in other fields, yet few resources tailored specifically genetic counselors. The current qualitative study explored the experiences of counselors who work adolescent clients determine whether challenges exist if further training support needed. Semi-structured interviews were conducted 11 from Australia. Interview...

Genetic carrier screening is increasingly possible for many conditions, but it important to ensure decisions are informed. The multidimensional measure of informed choice (MMIC) a quantitative instrument developed evaluate in prenatal Down syndrome, measuring knowledge, attitudes and uptake. To apply the MMIC other settings, knowledge scale must be modified.To develop validate modified use with women undergoing fragile X syndrome (FXS).Responses items were collected through questionnaires as...

<h3>Background</h3> To explore time trends in deaths attributable to work England and Wales, identify priorities for prevention, we conducted a proportional analysis of mortality by occupation over 22-year period. <h3>Methods</h3> Analysis was based on men aged 20–74 years during 1979–1980 1982–2000 with recorded occupation. Proportional ratios, standardised age social class, were calculated pre-specified combinations cause death, which excess could reasonably be attributed work. Differences...

The protection of confidentiality in psychological practice is vital. However, not absolute and psychologists are permitted to breach under particular circumstances. Ethical challenges surrounding complex with adolescent clients, as assessments often consider the risk that adolescents pose themselves addition posed others. current study documented situations which Australian would adolescents' disclose information about behaviour parents, a focus on where opposed other people putting at...