A5036924204- Cancer survivorship and care
- Sarcoma Diagnosis and Treatment
- Management of metastatic bone disease
- Cancer Diagnosis and Treatment
- Nonmelanoma Skin Cancer Studies
- Lymphatic System and Diseases
- Colorectal and Anal Carcinomas
- RNA Research and Splicing
- Health Systems, Economic Evaluations, Quality of Life
- Reconstructive Surgery and Microvascular Techniques
- Childhood Cancer Survivors' Quality of Life
- RNA modifications and cancer
- Adolescent and Pediatric Healthcare
- Advances in Oncology and Radiotherapy
- Women's cancer prevention and management
St Christopher's Hospice
2024
Transnational Press London
2022
Stanmore College
2022
University College London Hospitals NHS Foundation Trust
2019-2020
University College London
2019-2020
Sarcoma UK
2016-2018
Royal Marsden Hospital
2016
Objective The aim of this study is to explore the experiences patients with primary bone cancer. Design Qualitative design using semistructured interviews and focus groups. Setting Hospitals across UK recruitment through sarcoma charities support Methods Semistructured telephone/face-to-face groups a purposive sample 26 participants. Data were analysed Framework Analysis. Participants Patients (n=26) cancer aged 13–77 years. majority male (69%), white (85%); diagnosed within 4 years (54%);...
Sarcomas are rare, heterogeneous tumours affecting patients of any age. Previous surveys describe that sarcoma report a significantly worse experience than those with common cancers. Consequently, Sarcoma UK conducted national survey and these data were examined for age- tumour-related differences in patients' experiences.Patients randomly selected from respondents to National Cancer Patient Experience Surveys (n = 900). Differences between patient groups according age (Adolescents Young...
The Sarcoma Assessment Measure (SAM) was developed as a sarcoma-specific patient-reported outcome measure to be used in clinical practice. We have reported detail how SAM has been collaboration with patients and healthcare professionals. aim of this paper is report the preliminary validation SAM. 22-item administered alongside validated quality life questionnaire activities daily living. Linear modelling build measure, which had predictive validity comparison more established measures. Of...
This report summarizes the results of 3rd Joint ENCCA-WP7, EuroSarc, EEC, PROVABES, and EURAMOS European Bone Sarcoma Network Meeting, which was held at Children's Cancer Research Institute in Vienna, Austria on September 24–25, 2015. The joint bone sarcoma network meetings bring together researchers to present discuss current knowledge biology, genetics, immunology, as well from preclinical investigations clinical trials, generate novel hypotheses for collaborative biological...
Treatment of soft tissue sarcoma frequently involves extensive surgery, loss mobility, and complex rehabilitation programs. Poorer patient-reported outcomes are reported in comparison to those from patients with other cancer types. Understanding patient experience is therefore important support improve care.
Abstract More and more people are living with the consequences of cancer its treatment (living beyond cancer), yet level relevant research is low compared to other types in UK. NCRI aims increase this area ultimately improve lives those affected by cancer. Undefined priorities broad has been a barrier research. The 2015 NHS Independent Cancer Taskforce report also recommends defining enable happen. To address undertaken James Lind Alliance Priority Setting Partnership (PSP) identify that...
The Sarcoma Assessment Measure (SAM) was developed as a sarcoma-specific patient-reported outcome measure to be used in clinical practice. We have reported detail how SAM has been collaboration with patients and healthcare professionals. aim of this paper is report the preliminary validation SAM. 22-item administered alongside validated quality life questionnaire activities daily living. Linear modelling build measure, which had predictive validity comparison more established measures. Of...
<h3>Background</h3> Treatment of sarcoma often involves long-term hospitalisation, extensive surgery, loss mobility, complex rehabilitation programmes, and is in many cases accompanied by low expectations survival. Subsequently, poorer patient-reported outcomes are recorded comparison to patients with other cancer types. Studies examining psychosocial functioning those affected needed improve wellbeing. <h3>Aim</h3> This study aims explore the experiences adolescents young adults (AYA)...
More and more people are living with the consequences of cancer its treatment (living beyond cancer), yet level relevant research is low compared to other types in UK. NCRI aims increase this area ultimately improve lives those affected by cancer. Undefined priorities broad has been a barrier research. The 2015 NHS Independent Cancer Taskforce report also recommends defining enable happen. To address undertaken James Lind Alliance Priority Setting Partnership (PSP) identify that matter most...