A5005632455- Pancreatic and Hepatic Oncology Research
- Cancer survivorship and care
- Biomedical Text Mining and Ontologies
- Wikis in Education and Collaboration
- Childhood Cancer Survivors' Quality of Life
- Palliative Care and End-of-Life Issues
- Cancer Diagnosis and Treatment
- Pancreatitis Pathology and Treatment
Pancreatic Cancer Action Network
2017-2019
Objectives Pancreatic cancer (PC) and its treatments can result in pancreatic exocrine insufficiency that requires enzyme replacement therapy (PERT). Appropriate PERT usage is during meals snacks. The aim was to determine the frequency of appropriate use impact on symptom alleviation PC through a patient-reported outcomes online platform. Methods Users Cancer Action Network's Patient Registry were prompted answer standalone questionnaire about their experience with PERT. Results Two hundred...
Abstract WikiProject Clinical Trials is a Wikidata community project to integrate clinical trials metadata with the Wikipedia ecosystem. Using methods for data modeling, import, querying, curating, and profiling, brought ClinicalTrials.gov records into enriched them. The motivation was gaining benefits of hosting in Wikidata, which include distribution new audiences staging content Wikimedia editor develop it further. Project pages present options engaging environment. Example applications...
429 Background: Pancreatic cancer (PC) and its treatment(s) results in symptom side effect burden can impact patient’s overall quality of life (QOL). Methods: Patient reported information on management effects symptoms were collected using PanCAN’s Registry (01/2016 – 07/2018). Results: effects, pain depression is detailed the table. Side effects: 94% fatigue 8% taking anti-fatigue medication. 72% nausea or vomiting during treatment 83% anti-nausea Pain: Of 90% patients who related to PC,...
Introduction: Pancreatic cancer (PC) and its treatments can result in pancreatic exocrine insufficiency that requires enzyme replacement therapy (PERT). Appropriate PERT usage is during meals snacks. The aim was to determine the frequency of appropriate use impact on symptom alleviation PC through a patient reported outcomes online platform. Methods: Users who enrolled Cancer Action Network's Patient Registry (launched January, 2016) were prompted answer standalone 25 part questionnaire...