A5081522755- LGBTQ Health, Identity, and Policy
- Reproductive Health and Technologies
- Economic and Financial Impacts of Cancer
- Lymphoma Diagnosis and Treatment
- Racial and Ethnic Identity Research
- Sex and Gender in Healthcare
- Cultural Competency in Health Care
- CAR-T cell therapy research
- Sex work and related issues
- Sexuality, Behavior, and Technology
- Family Support in Illness
- Homelessness and Social Issues
- Media Studies and Communication
- Health Literacy and Information Accessibility
- Endometriosis Research and Treatment
- BRCA gene mutations in cancer
- Focus Groups and Qualitative Methods
- Adolescent and Pediatric Healthcare
- Demographic Trends and Gender Preferences
- Reproductive System and Pregnancy
- Feminist Theory and Gender Studies
- Palliative Care and End-of-Life Issues
- Ethics in Clinical Research
- CNS Lymphoma Diagnosis and Treatment
- Crime Patterns and Interventions
Yale Cancer Center
2023-2025
Yale University
2023-2025
University of Rochester Medical Center
2020-2024
Brown University
2021-2024
The University of Melbourne
2023
Monash University
2023
Murdoch Children's Research Institute
2023
University of Rochester
2020
Cancer Institute (WIA)
2020
Cornell University
2001
Understanding barriers to care for transgender people with cancer is necessary increase oncologic access. Little has been published regarding the experiences of cancer. We sought explore these experiences, assess care, and elucidate potential solutions.Using an interpretive descriptive approach, we conducted two group interviews who had diagnosed one physicians treat patients Two investigators independently analyzed verbatim transcripts and, together, refined themes, resolving disagreements...
Abstract Background The 21st Century Cures Act and the OpenNotes movement have brought patients immediate access to their electronic health records (EHRs). experiences of marginalized people, including transgender accessing reviewing EHRs could inform documentation guidelines improve patient-clinician rapport reduce harm. Objective To investigate people EHRs. Design Qualitative study using community-engaged research an interpretive description methodology. Participants were recruited via...
Introduction The objective of this research is to provide national estimates the prevalence health condition diagnoses among age-entitled transgender and cisgender Medicare beneficiaries. Quantification burden across sex assigned at birth gender can inform prevention, research, allocation funding for modifiable risk factors. Methods Using 2009–2017 fee-for-service data, we implemented an algorithm that leverages diagnosis, procedure, pharmacy claims identify beneficiaries stratify sample by...
Sexual and gender minority (SGM) individuals encompass a broad spectrum of sexual orientations identities. Although SGM is research term, this population often known as lesbian, gay, bisexual, transgender, queer (LGBTQ). Typically, LGB refers to orientation, T identity, Q may refer either. each group distinct, they share the common bond experiencing health disparities that be caused, in part, by stigma discrimination, well oncology provider’s lack knowledge and, therefore, comfort treating...
Abstract Extranodal marginal zone lymphoma (EMZL) is a heterogeneous non-Hodgkin lymphoma. No consensus exists regarding the standard-of-care in patients with advanced-stage disease. Current recommendations are largely adapted from follicular lymphoma, for which bendamustine rituximab (BR) an established approach. We analyzed safety and efficacy of frontline BR EMZL using large international consortium. included 237 median age 63 years (range, 21-85). Most presented Eastern Cooperative...
Sexual and gender minority (SGM) people, including agender, asexual, bisexual, gay, diverse, genderqueer, genderfluid, intersex, lesbian, nonbinary, pansexual, queer, transgender comprise approximately 10% or more of the U.S. population. Thus, most oncologists see SGM patients whether they know it not. people experience stigma structural discrimination that lead to cancer disparities. Because lack systematic comprehensive data collection, regarding incidence, outcomes, treatment responses...
Purpose: Prior algorithms enabled the identification and gender categorization of transgender people in insurance claims databases which sex are not simultaneously captured. However, these methods have been unable to categorize a large proportion their samples. We improve upon identify larger data. Methods: Using 2001–2019 Optum's Clinformatics® Data Mart data, we adapted prior by combining diagnosis, procedure, pharmacy (1) sample; (2) stratify sample category (trans feminine nonbinary...
Ontological OppressionThe construction of otherness because assumptions about personhood-otherwise known as ontological oppression 1 -excludes or misrepresents bodies identities on the basis preset categories.Ontologic constructs gender in oncology encompass notions that is inseparable from and synonymous with sex assigned at birth (henceforth sex), a static social concept across history fixed identity personal life course, an objective category can be easily assessed by clinician.In...
A core component of NCCN’s mission is to improve and facilitate equitable cancer care. Inclusion representation diverse populations are essential toward this goal equity. Within professional content, inclusivity increases the likelihood that clinicians prepared provide optimal oncology care all patients; within patient-facing it helps ensure information relevant accessible for individuals. This article describes changes have been made in language images used NCCN Clinical Practice Guidelines...
<h3>PURPOSE</h3> Investigating transgender people's experiences sharing health information in clinical encounters may yield insights for family medicine clinicians. <h3>METHODS</h3> This was a qualitative study using community-based participatory research approach and interpretive description methodology. Seven focus groups were conducted with 30 adults living North America. We used purposive sampling to ensure diversity. The transcribed verbatim, 2 investigators independently reviewed coded...
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Medicare covers gender-affirming surgical procedures on a case-by-case basis. The proportion of beneficiaries who receive is unknown. To examine the frequency and trends for beneficiaries. This cross-sectional study used national data to analyze transgender gender diverse beneficiaries' use from January 1, 2016, February 29, 2020, as well same by not identified transgender. Transgender were using claims-based algorithm; nontransgender individuals selected propensity score matching. Analyses...
Gender-inclusive and gender-specific approaches are critically needed in cancer control continuum services to recognize meet the needs of transgender nonbinary (trans) populations. Current research, programs, policies largely cater cisgender populations subscribe a binary, gendered cisnormative ideology, both within health care systems insurance policies, leaving trans people's prevention treatment neglected. Such disparities can be attributed significant gap funding research address...
PURPOSE: Cancer prevalence and outcomes data, necessary to understand disparities in transgender populations, are significantly hampered because gender identity data not routinely collected. A database of clinical on people with cancer, CancerLinQ, is operated by the ASCO collected from practices across United States multiple electronic health records. METHODS: To attempt identify cancer within we used three criteria: (1) International Classification Diseases 9/10 diagnosis (Dx) code...
A cancer diagnosis thrusts patients and caregivers into a foreign world of health care with systems, protocols, norms that can leave little room for individual needs circumstances. Quality efficacious oncology requires clinicians to partner understand incorporate their needs, values, priorities information sharing, decision making, provision. This partnership is necessary effective patient- family-centered access individualized equitable information, treatment, research participation....
Objective To assess the prevalence of current cigarette smoking among transgender women in Argentina, and to examine unique associations with demographic psychosocial factors. Methods This study is a secondary data analysis TransCITAR – prospective cohort individuals living Buenos Aires, Argentina baseline data. The survey collected information on sociodemographic characteristics, perceived health status, depressive symptoms, suicide attempts, smoking, alcohol use disorder, substance use....
Background Multiple national organizations recommend that cancer care providers and oncology practices be responsive to the needs of sexual gender minority (SGM) patients. Oncology have attempted incorporate this recommendation through SGM-focused cultural humility training interventions. It is unclear how best adapt implement such across practices. This manuscript outlines one process for adapting a widely-used SGM from The Fenway Institute context settings using Framework Reporting...
e14126 Background: The U.S. Department of Health and Human Services recently proposed to eliminate federal protections against discrimination in healthcare on the basis gender identity. This proposal seeks alter Patient Protection Affordable Care Act Section 1557 Rule, which currently prohibits sex any health program receiving financial assistance. provisional change poses imminent threats transgender diverse (TGD) communities who face healthcare, cancer care specifically. If current are...