A5068274216- Palliative Care and End-of-Life Issues
- Grief, Bereavement, and Mental Health
- Cancer survivorship and care
- Childhood Cancer Survivors' Quality of Life
- Family and Patient Care in Intensive Care Units
- Geriatric Care and Nursing Homes
- Patient Dignity and Privacy
- Patient-Provider Communication in Healthcare
- Family Support in Illness
- Optimism, Hope, and Well-being
- Migration, Health and Trauma
- Health Systems, Economic Evaluations, Quality of Life
- Pain Management and Opioid Use
- Chronic Disease Management Strategies
- Ovarian cancer diagnosis and treatment
- Pain Mechanisms and Treatments
- Ethics in medical practice
- Homelessness and Social Issues
- Patient Satisfaction in Healthcare
- Dementia and Cognitive Impairment Research
- Pediatric Pain Management Techniques
- Stroke Rehabilitation and Recovery
- Neuropeptides and Animal Physiology
- Botulinum Toxin and Related Neurological Disorders
- Cervical Cancer and HPV Research
Ovarian Cancer Research Alliance
2020-2025
Jewish General Hospital
2012-2025
McGill University
2016-2025
University of Waterloo
2025
Rambam Health Care Campus
2024
Technion – Israel Institute of Technology
2024
Zealand University Hospital
2024
Sjællands Universitetshospital, Nykøbing F.
2024
Ovarian Cancer Canada
2024
Princess Margaret Cancer Centre
2021
This is the first report on McGill Quality of Life Questionnaire (MQOL), a questionnaire relevant to all phases disease trajectory for people with life-threatening illness. differs from most others in three ways: existential domain measured; physical important but not predominant; positive contributions quality life are measured. study was conducted palliative care setting. Principal components analysis suggests four subscales: symptoms, psychological outlook life, and meaningful existence....
This study was carried out in eight palliative care services four Canadian cities. A revised version of The McGill Quality Life Questionnaire (MQOL) is compared to a single-item scale measuring overall quality life (SIS), and the self-administered Spitzer Index (SA-QLI), obtain evidence validity. MQOL total score predicts SIS better than does SA-QLI, although much variance remains be explained. results principal components analysis data using this are similar those from previous studies with...
BACKGROUND The McGill Quality of Life Questionnaire (MQOL) is being developed to correct what we perceive be a flaw in existing quality life instruments: neglect the existential domain. METHODS This study reports first use MQOL for people with cancer at all phases disease, including those no evidence disease after therapy. RESULTS data suggest that comprised an item measuring physical well-being and four subscales: symptoms, psychological well-being, support. acceptable oncology outpatients....
This pilot study aimed to provide supportive evidence for the acceptability and usefulness of Meaning-Making intervention (MMi) in patients newly diagnosed with Stage III or IV ovarian cancer, estimates parameters needed design a full-scale study.A randomized controlled trial 24 (12 experimental 12 control) was conducted. Existential well-being (primary outcome), overall quality life, distress, anxiety, depression self-efficacy were measured.Compared control group, group had better sense...
<b>Background:</b> High-quality end-of-life care should be the right of every Canadian. The objective this study was to identify aspects that are high in priority as targets for improvement using feedback elicited from patients and their families. <b>Methods:</b> We conducted a multicentre, cross-sectional survey involving with advanced, life-limiting illnesses family caregivers. administered Canadian Health Care Evaluation Project (CANHELP) questionnaire along global rating question measure...
Background: The McGill Quality of Life Questionnaire has been widely used with people life-threatening illnesses without modification since its publication in 1996. With use, areas for improvement have emerged; therefore, various minor modifications were tested over time. Aim: To revise the (McGill Questionnaire–Revised) while maintaining or improving psychometric properties and length, keeping it as close possible to enable reasonable comparison existing literature. Design: Data sets from...
Introduction With the global incidence of ovarian cancer set to rise by 55% 371 000 per year 2035, current 5-year survival rates below 50%, and 15% women with dying within 2 months diagnosis, urgent action is required improve quality life. Objective To deal evidence gap relating experience disease around globe identify opportunities drive progress. Methods The study included a review trends in incidence, mortality, (October 2017); qualitative interviews clinicians 16 countries (December an...
The primary goal of palliative care is to improve the quality life (QOL) people with a terminal illness. Previous studies impact hospice/palliative have documented improvement in physical and psychological symptoms, but not overall QOL, due part difficulties measuring QOL. McGill Quality Life Questionnaire (MQOL) was developed assess QOL persons advanced MQOL scores were determined on admission 7–8 days later for sequential eligible willing patients admitted five units. These 88 represented...
Although several instruments have been developed to measure the quality of life (QOL) palliative care patients, a rigorous research study has not specifically asked patients themselves what is important their QOL. It is, therefore, clear whether these most patients' QOL.To understand primary determinants QOL with cancer.The used qualitative paradigm. Participants were interviewed concerning was A systematic content analysis transcripts carried out by all investigators.Five broad domains...
Objective: To test the acceptability, validity, and internal consistency reliability of McGill quality life questionnaire (MQOL) for persons living with HIV/AIDS. Design: The validity MQOL was tested by having HIV-seropositive outpatients complete 16-item MQOL, a single-item scale (SIS) measuring overall (QOL), physical symptom questionnaire. Methods: Factor analysis used as guide construction subscales. Validity studied determining correlation between SIS, measures, CD4 counts symptoms...
Acts of kindness and commemoration by staff members often follow the death a patient. include attending funerals, sending sympathy cards, cards on birthdays/anniversaries, telephoning/visiting family homes, memorial services. This study explores significance these acts for bereaved parents.Twelve parents whose children died in ICU tertiary care pediatric hospital were interviewed, to explore their experiences death. Investigators reviewed transcripts observational field notes....
Background: The primary goal of palliative care is to optimize the quality life (QOL) people living with a life-threatening illness and that their families. While there have been important advances in measurement QOL patients, little attention has paid carers (family caregivers). To develop deliver most effective services these carers, needs be measured acceptable psychometrically sound instruments content validity. Methods: This study reports three phases development testing such measure:...
Although the modern pediatric intensive care unit (PICU) has followed general pediatrics and adopted family-centered model, little is known about how families prospectively experience PICU care. The authors' goal was to better understand experiences of whose child hospitalized in a PICU. They conducted 12-month prospective ethnographic study tertiary hospital large North American urban center. Data were obtained via participant-observation formal informal interviews with 18 staff key...
Our objective was to develop a rich description of how parents experience their grief in the first year after death child, and various bereavement follow-up support services helped them during this time, with aim informing offered bereaved parents. findings situated parents' individual experiences coping within social institutional contexts which they grieved. In regulated intense feelings through loss-oriented, restoration-oriented, and/or meaning reconstruction strategies. Often,...
This study aimed to test the hypothesis that meaning making is a mediating process in relationship between risk factors for prolonged grief disorder (PGD) and subsequent emergence of PGD symptomatology. A survey design was employed with prospective measurement PGD. The following variables were assessed 2-12 months postloss among adults across North America Europe (N = 357): (a) (insecure attachment, social support, neuroticism, violent loss, spousal loss) (b) made. Meaning made measured...
BACKGROUND To determine the impact of care on quality life (QOL), or to detect a change in QOL over time, measures must remain stable when is (test–retest reliability) and changes (responsiveness). This study addresses these issues for McGill Quality Life Questionnaire (MQOL). Unlike other studies that use disease status indicate whether has remained changed, this patient determines stability change. The authors also sought clarify determinants "good" "bad" days oncology patients. METHODS...