A5000493383- Palliative Care and End-of-Life Issues
- Geriatric Care and Nursing Homes
- Family Support in Illness
- Grief, Bereavement, and Mental Health
- Cancer survivorship and care
- Patient Dignity and Privacy
- Family and Patient Care in Intensive Care Units
- Childhood Cancer Survivors' Quality of Life
- Intergenerational Family Dynamics and Caregiving
- Patient-Provider Communication in Healthcare
- Chronic Disease Management Strategies
- Interprofessional Education and Collaboration
- Frailty in Older Adults
- Migration, Aging, and Tourism Studies
- Dementia and Cognitive Impairment Research
- Health Systems, Economic Evaluations, Quality of Life
- Interstitial Lung Diseases and Idiopathic Pulmonary Fibrosis
- Dysphagia Assessment and Management
- Stroke Rehabilitation and Recovery
- Mental Health and Patient Involvement
- Healthcare innovation and challenges
- Global Health Care Issues
- Family and Disability Support Research
- Health disparities and outcomes
- Global Cancer Incidence and Screening
University of Manchester
2015-2025
Manchester Academic Health Science Centre
2017-2023
National Institute for Health Research
2019-2021
NIHR Applied Research Collaboration Greater Manchester
2019-2021
Salford Royal NHS Foundation Trust
2019-2020
St Mark's Hospital
2019
The Christie NHS Foundation Trust
2017
Birthingway College of Midwifery
2012
Leipzig University of Applied Sciences
2011-2012
Lancaster University
2009-2011
Informal carers are central to the achievement of end life care and death at home policy aims enabling patient choice towards life. They provide a substantial, yet hidden contribution our economy. This entails considerable personal cost carers, it is recognised that their needs should be assessed addressed. However, we lack good research evidence on how best do this. The present position paper gives an overview current state carer research, its gaps weaknesses, outlines future priorities. It...
Background: Current end-of-life care policy and guidance recognises the important contribution of family carers, recommending that their needs should be assessed to support them in caring role. How regular carer assessment is achieved unclear, particularly because there no evidence-based tool for directly assessing carers’ suitable use home practice. Aims: To obtain perspectives key aspects needed during provision at develop a everyday Design: Qualitative using focus groups telephone...
Background: Family members provide vital care at end of life, enabling patients to remain home. Such informal contributes significantly the economy while supporting patients’ preferences and government policy. However, value care-givers’ contributions is often underestimated or overlooked in evaluations. Without information on activities expenditures involved care-giving, it impossible an accurate assessment carers’ contribution end-of-life care. Aim: The aim this study was investigate...
Family caregiving towards the end-of-life entails considerable emotional, social, financial and physical costs for caregivers. Evidence suggests that good support can improve caregiver psychological outcomes. The primary aim of this study was to investigate impact using carer needs assessment tool (CSNAT), as an intervention identify address in end life home care, on family A stepped wedge design used trial CSNAT three bases Silver Chain Hospice Care Western Australia, 2012-14. consisted at...
Objectives To understand successful strategies used by people to cope well when living with advanced cancer; explore how professionals can support effective coping strategies; development of for patients and family carers. Design Qualitative serial (4–12 week intervals) interview study cancer their informal carers followed focus groups. The iterative design had a novel on positive strategies. Interview analysis focused as individuals pairs, exploring multiple dimensions experiences. Focus...
<h3>Abstract</h3> <b>Objective:</b> To evaluate the impact on place of death a hospital at home service for palliative care. <b>Design:</b> Pragmatic randomised controlled trial. <b>Setting:</b> Former Cambridge health district. <b>Participants:</b> 229 patients referred to service; 43 control group (standard care), 186 home. <b>Intervention:</b> Hospital versus standard <b>Main outcome measures:</b> Place death. <b>Results:</b> Twenty five (58%) died compared with 124 (67%) allocated This...
Abstract Research has shown that cancer patients in general benefit from support group participation. However, few attend such groups. This study investigated differences between participants of a community and random selection non‐participants the Cancer Registry. Data were collected through mail survey, included variables identified past research derived Leventhal's self‐regulatory model illness representations theory planned behaviour. Sixty‐three 44 comparison sample respondents...
Background: Statistical analysis in palliative and end-of-life care research can be problematic due to high levels of missing data, attrition response shift as disease progresses. Aim: To develop recommendations about managing data. Design: We used the MORECare Transparent Expert Consultation approach conduct a consultation workshop with experts statistical methods research. Following presentations discussion, nominal group techniques were produce attrition, data shift. These rated online by...
Background The end of life may be a time high service utilisation for older adults. Transitions between care settings occur frequently, but produce little improvement in symptom control or quality patients. Ensuring that patients experience co-ordinated care, and moves because individual needs rather than system imperatives, is crucial to patients’ well-being containing health-care costs. Objective aim this study was understand the experiences, influences consequences transitions adults at...
Introduction: The Carer Support Needs Assessment Tool encompasses the physical, psychological, social, practical, financial, and spiritual support needs that government policies in many countries emphasize should be assessed addressed for family caregivers during end-of-life care. Aim: To describe experience of terminally ill people intervention home-based palliative Methods: This study was conducted 2012–2014 Silver Chain Hospice Care Service Western Australia. article reports on one part a...
Background: There is little guidance on the particular ethical concerns that research raises with a palliative care population. Aim: To present process and outcomes of workshop consensus exercise agreed best practice to accommodate issues in care. Design: Consultation using MORECare Transparent Expert approach. Prior workshops, participants were sent overviews Following workshop, nominal group techniques used produce candidate recommendations. These rated online by participating experts....
<h3>Objectives</h3> To test the impact on family carers of a Carer Support Needs Assessment Tool (CSNAT) intervention to facilitate carer-led assessment and support during end life care. <h3>Method</h3> Mixed method, part-randomised, stepped wedge cluster trial with 6 palliative home care services comparing receiving those standard Postal survey 4–5 months postbereavement measured adequacy support, current mental physical health (Short Form 12 Health Survey SF-12), level grief (Texas Revised...