A5077587464- Family and Disability Support Research
- Cerebral Palsy and Movement Disorders
- Infant Development and Preterm Care
- Family and Patient Care in Intensive Care Units
- Early Childhood Education and Development
- Children's Rights and Participation
- Occupational Therapy Practice and Research
- Assistive Technology in Communication and Mobility
- Childhood Cancer Survivors' Quality of Life
- Youth Development and Social Support
- Child and Adolescent Health
- Craniofacial Disorders and Treatments
- Autism Spectrum Disorder Research
- Adolescent and Pediatric Healthcare
- Pediatric Pain Management Techniques
- Child and Adolescent Psychosocial and Emotional Development
- Cleft Lip and Palate Research
- Inclusion and Disability in Education and Sport
- Prenatal Screening and Diagnostics
- Child Welfare and Adoption
- Health Policy Implementation Science
- Health and Medical Research Impacts
- Psychosocial Factors Impacting Youth
- Interprofessional Education and Collaboration
- Intensive Care Unit Cognitive Disorders
University of Illinois Chicago
2016-2025
McMaster University
2020-2024
University of Illinois Urbana-Champaign
2023
Queen's University
2018
Colorado State University
2012-2017
Philip Morris International (Germany)
2017
Language Technology Centre
2017
Boston University
2008-2013
Aim The aim of this study was to examine the psychometric properties (reliability and validity) Participation Environment Measure for Children Youth (PEM-CY). Method PEM-CY examines participation frequency, extent involvement, desire change in sets activities typical home, school, or community. Items 'Environment' section perceived supports barriers within each setting. Data were collected via an online survey from caregivers children young people, aged 5 17 years, with without a range...
The purpose of this paper is to describe the conceptual foundation a new parent-report measure participation and environment children youth: Participation Environment Measure - Children Youth version (PEM-CY).The ICF-CY provided an initial framework. Results from qualitative study obtain parent perspectives in-depth review literature were used identify relevant dimensions, items rating scales for measurement.Life situations, defined as sets activity categories, identified three settings:...
Abstract Background We compared school participation patterns of students ages 5–17 with and without disabilities examined whether features the environment were perceived to help or hinder their participation. Methods Parents ( n = 576) residing in USA C anada completed P articipation E nvironment M easure for hildren Y outh PEM‐CY ) via internet. Results reported that children participated less frequently clubs organizations getting together peers outside classroom they involved all...
Introduction: This study examines participation patterns and environmental supports barriers for children with without disabilities within their home setting. Method: The Participation Environment Measure Children Youth (PEM-CY) is a newly developed, reliable parent/caregiver-report tool, which combines assessment of children's the environment. PEM-CY was completed online by 576 parents or youth (5 to 17 years old) from Canada United States. ANOVA analyses were performed examine group...
Objectives: To evaluate functional outcomes and predictors of an unfavorable outcome in children following a critical illness. Design: Prospective observational longitudinal cohort study. Setting: Two tertiary care, Canadian PICUs: McMaster Children’s Hospital London Health Sciences. Patients: Children 12 months to 17 years old, admitted PICU for at least 48 hours with one or more organ dysfunction, were eligible. Patients not expected survive, direct transfers from neonatal ICU patients...
To evaluate the psychometric properties of newly developed Young Children's Participation and Environment Measure (YC-PEM).Cross-sectional study.Data were collected online by telephone.Convenience snowball sampling methods used to survey caregivers children (N=395, comprising with [n=93] without [n=302] developmental disabilities delays) between ages 0 5 years (mean age±SD, 35.33±20.29 mo) residing in North America.Not applicable.The YC-PEM includes 3 participation scales 1 environment...
Evidence for the importance of focusing on participation to promote health and wellbeing in childhood-onset disability exists, but practice is slow change. This paper provides a knowledge translation roadmap accelerate uptake evidence into day-to-day practice.A structured guide initiatives implementing participation-based practices co-creation with service users was developed based elements from: Five-factorframework predicting implementation outcomes, Cultural Cone framework,...
Background In the last decade, there has been a rapid increase in research on use of artificial intelligence (AI) to improve child and youth participation daily life activities, which is key rehabilitation outcome. However, existing reviews place variable focus participation, are narrow scope, restricted select diagnoses, hindering interpretability regarding scope AI applications that target children pediatric setting. Objective The aim this scoping review examine how integrated into...
Early childhood is foundational for optimal and inclusive lifelong learning, health well-being. Young children with disabilities face substantial risks of sub-optimal early development (ECD), requiring targeted support to ensure equitable access learning opportunities, especially in low- middle-income countries. Although the Sustainable Development Goals, 2015–2030 (SDGs) emphasise education under 5 years disabilities, there no global strategy achieving this goal since launch SDGs. This...
To determine the feasibility of conducting a longitudinal prospective study to evaluate functional recovery and predictors impaired in critically ill children.
To describe social disparities in early intervention (EI) service use and provider-reported outcomes.
We examined activity-specific patterns and child, family environmental correlates of participation restriction in nine community-based activities among preschoolers with disabilities who have received Part C early intervention services.Data were gathered from a subsample 1509 caregivers whose children (mean age = 67.7 months) had enrolled the National Early Intervention Longitudinal Study (NEILS) completed 40-min computerized telephone interview or 12-page mailed survey. Data analysed on...
This mixed methods study examined: 1) how young children with and without developmental disabilities delays participate in daycare or preschool activities; 2) similarities differences environmental factors impacting participation; 3) strategies used by parents who desired a change their child's participation.Data were drawn from 129 of (mean age = 49.3 months) residing North America. Summary item-level group based on disability status assessed for participation supports to participation....
To test the effect of child, family, and environmental factors on young children's participation in home-based activities.
The authors examined the extent to which parent expectations, perceptions about resource availability and supports, strategies used promote participation in home community activities varied by setting activity type. Sixteen 90-min semistructured interviews were completed with families receiving Part C early intervention services three states. Interviews analyzed descriptive interpretive phases using content analysis identify patterns across cases logical cross-classify data Parents described...
Aims: The purpose of this study was to explore the utility Participation and Environment Measure for Children Youth (PEM-CY) collaborative care planning with parents children disabilities. Methods: An explanatory sequential mixed methods approach employed examine how community-based service providers interpret apply PEM-CY case results set goals formulate plans parents. We used two distinct, interactive phases that included collection summary data in Phase One (quantitative) analysis...
Introduction The purpose of this mixed-methods study is to examine the role caregiver strategies support community participation among children and youth with disabilities those at risk, from perspective. For quantitative phase, we tested hypothesized positive effect participation-focused on relationship(s) between participation-related constructs attendance involvement. qualitative solicited perspectives explain findings. Methods An explanatory sequential design (QUAN > qual) was...
Purpose: To compare health-related quality of life (HRQOL) among children with and without hemifacial microsomia (HFM) as assessed by parents the themselves during elementary school years. Methods: One hundred thirty-six HFM (49 females, mean age = 6 years, 11.9 months, SD 1.004) were compared 568 matched controls (285 10.2 0.998) for parent child responses on PedsQL Version 4.0. Results: After adjustment sociodemographic factors, parent-reported summary scores worse affected than control...