A5047283148- Health Systems, Economic Evaluations, Quality of Life
- Delphi Technique in Research
- Clinical practice guidelines implementation
- Chronic Disease Management Strategies
- Pharmaceutical industry and healthcare
- Patient-Provider Communication in Healthcare
- Economic and Financial Impacts of Cancer
- Telemedicine and Telehealth Implementation
- Dementia and Cognitive Impairment Research
- Healthcare Systems and Technology
- Patient Satisfaction in Healthcare
- Diabetes Management and Education
- Global Health and Surgery
- Meta-analysis and systematic reviews
- Mental Health and Patient Involvement
National Health Council
2019-2024
University of York
2023
University of Maryland, College Park
2023
A quote attributed to Mark Twain states, "What gets us into trouble is not what we don't know. It's know for sure that just ain't so." The growing focus on patient centricity has revealed a misalignment between patients report as important them about their disease and/or treatment, and the data collected in research care. Decisions across healthcare are made using an evidence base most stakeholders acknowledge inadequate. Patients might everyday life impacts, concepts can be very different...
ObjectivesThe Joint ISPOR-ISPE Special Task Force on Real-World Evidence included patient/stakeholder engagement as a recommended good procedural practice when designing, conducting, and disseminating real-world evidence (RWE). However, there are no guidelines describing how patient experience data (PED) can be applied designing (RWD) studies. This article describes development of consensus recommendations to guide researchers in applying PED develop patient-centered RWE.MethodsA...
Stakeholders increasingly expect research and care delivery to be guided by optimize patient experiences. However, standardized tools engage patients gather high-quality data about their experiences, priorities, desired outcomes are not publicly available. The objective of this study was develop test a Toolbox with disease-agnostic interview guide template accompanying resources assist researchers in engaging living chronic disease dialogue Guided multidisciplinary workgroup, targeted...
ObjectivesThere is an increasing expectation that medical product development and assessment be guided by patient input captured through engagement. Recently published consensus guidelines describe how qualitative experience data (PED) can guide the design, conduct, translation of real-world research reflects patients' lived experience. The objective this exploratory analysis to examine researchers could leverage PED Patient Experience Mapping Toolbox (PEMT) (RWD) designs.MethodsThis...