A5067095051- Urological Disorders and Treatments
- Sexual Differentiation and Disorders
- Urinary Tract Infections Management
- Urinary Bladder and Prostate Research
- Pelvic floor disorders treatments
- Adolescent and Pediatric Healthcare
- Child and Adolescent Health
- Pediatric Urology and Nephrology Studies
- Family Support in Illness
- Gastrointestinal motility and disorders
- LGBTQ Health, Identity, and Policy
- Congenital gastrointestinal and neural anomalies
- Reproductive Health and Technologies
- Genital Health and Disease
- Ethics and Legal Issues in Pediatric Healthcare
- Family and Disability Support Research
- Genetic and Clinical Aspects of Sex Determination and Chromosomal Abnormalities
- Urinary and Genital Oncology Studies
- Pediatric Pain Management Techniques
- Spinal Dysraphism and Malformations
- Childhood Cancer Survivors' Quality of Life
- Global Health Workforce Issues
- Adolescent Sexual and Reproductive Health
- Child Nutrition and Feeding Issues
- Grief, Bereavement, and Mental Health
University of Northern British Columbia
2016-2025
Manchester Academic Health Science Centre
2025
University of Manchester
2018-2025
National Institute for Health Research
2025
University Health Network
2018
Princess Margaret Cancer Centre
2018
Alder Hey Children's NHS Foundation Trust
2009-2017
University of Liverpool
2003-2017
Alder Hey Children's Hospital
2001-2017
University of Central Lancashire
2008-2016
Summary It is paramount that any child or adolescent with a suspected disorder of sex development (DSD) assessed by an experienced clinician adequate knowledge about the range conditions associated DSD. If there doubt, case should be discussed regional team. In most cases, particularly in newborn, paediatric endocrinologist within DSD team acts as first point contact. The underlying pathophysiology and strengths weaknesses tests can performed parents affected young person undertaken timely...
This paper will report on the findings of a study which investigated influence befriending (parent-to-parent peer support) scheme parents whose children have disability or additional need. The operated from an acute children's tertiary setting in UK.A prospective concurrent mixed method design collected interview (n=70) and questionnaire (n=68) data at two time-points befrienders (n=13) befriendees (n=26).The main qualitative relate to different degrees (befriendees befrienders) moved being...
To explore the current models of practice in centres delivering specialist care for children with disorders sex development (DSD), an international survey 124 clinicians, identified through DSDnet and I-DSD Registry, was performed last quarter 2014. A total 78 (63 %) 75 centres, from 38 countries responded to survey. formal national network managing DSD reported exist 12 (32 countries. The paediatric specialists routinely involved initial evaluation a newborn included: endocrinologist (99...
Children’s independent mobility (CIM) is the freedom of children to move around their neighbourhood without adult supervision and closely related overall physical activity participation. The COVID-19 pandemic has impacted movement behaviours for children, with evidence indicating a decrease in activity. aim this study was explore experiences CIM during from perspectives parents. We completed 21 family (at least one parent child aged 7–12) semi-structured interviews 45 participants living...
The aim of this study was to initiate an exploration parents' understanding and experiences their child's reconstructive genital surgeries for ambiguous genitalia.The determination gender a child born with genitalia is complex medical social process influenced by biological, psychological, cultural factors. Two main approaches exist; one promotes interventions (optimal policy) while the other suggests delaying (informed consent until can contribute decision.An exploratory narrative inquiry...
Aim and objectives. The aim of the study was to explore parents’ experiences influences, risks tensions associated with their child’s genital ambiguity place reconstructive surgeries had in lives. Background. Research into clinical management disorders sex development is a complex growing field study. A small number studies have indicated that decisions parents make regard care during infancy are confounded by moral, social emotional factors which can influence choices. Design. Narrative...
To determine the nature and surgical management of ovarian cysts.Retrospective case-note study.Large Childrens' Hospital: Alder Hey NHS Foundation Trust.Children undergoing surgery for cysts between 1991 2007.Cases identified using coding pathology database, analysed snap 9.Extent performed. Size histological features removed.A total 155 cases were identified. There 62 in children under nine who prepubertal. 58 neoplastic total. Most benign teratomas (36). Ten malignant, including five...
sanders c., carter b. & goodacre l. (2011) Searching for harmony: parents' narratives about their child's genital ambiguity and reconstructive surgeries in childhood. Journal of Advanced Nursing 67(9), 2220–2230. Abstract Aim. This paper is a report narrative study experiences the place have lives. Background. Increasingly, use early surgery has come under criticism. Few studies explored inclusion surgical decision-making process, or parenting child born with ambiguous genitalia. Method....
Abstract Aim To understand the experiences of young women with a disorder sex development when sharing information about their body healthcare professionals, friends and intimate partners. Background Disorders are lifelong conditions that create bodily difference such as absence reproductive organs which can impact on women's fertility sexual experiences. Design Interpretive phenomenological analysis thirteen (14‐19 years old) development. Methods The chose to participate in either...
<h3>Objective</h3> Disorders in sex development (DSD) can be treated well medically, but families will encounter many psychosocial challenges. Promoting counselling to facilitate acceptance and coping is important yet equality of access unknown. This study investigated the modalities care provided centres DSD care. <h3>Methods</h3> An international survey conducted among 93 providers care, identified through clinical networks, registries professional forums. <h3>Results</h3> Forty-six...
Adopting an interprofessional team approach to care of the child with rare conditions that can affect sex development (DSD) has been advocated by a consensus document within last decade. In United Kingdom, appears orientated towards model integration separate professions working in single consultations families collaboratively focus on using person and family-centred lens. This concurrent mixed-methods UK study questionnaires, observation, interviews aimed examine professionals', patients',...
Few studies have evaluated the effectiveness of mental health treatments for combat stress reactions military service members treated in deployed locations. The present pilot investigation is first report on a Combat Stress Control (CSC) unit treatment members. Thirty-eight United States personnel (33 men and 5 women) completed 2-day CSC program at Balad Air Base, Iraq. included individual group to reduce symptoms operational improve coping strategies, management skills, interpersonal...
Background and Objectives. Health communication is a critical aspect of care for both providers recipients having direct influence on engagement outcomes. Communicating which in this context includes talking listening order to share information or support young women understand their DSD can be difficult especially since the topic area sensitive. Methods. In qualitative study thirteen (aged 14–19 years) with disorder sex development who engaged health professionals were purposively recruited...
Abstract Background Neurogenic bowel dysfunction in children is a lifelong condition often resulting the need for active management programmes, such as transanal irrigation. Parents are central decision‐making process to initiate and carry out treatments until time their child becomes independent. Minimal research has focussed on examining parents' experiences of undertaking irrigation with child. This study aimed explore learning about using how parents motivated become Methods...
The number of children with complex health care needs continues to rise and they often have prolonged hospital stays their discharge home being delayed by a range factors. These delays occur despite the fact that, except in extraordinary circumstances, child's is most appropriate place for them receive long-term care. aim this qualitative interview-based study was explore work nurses whose main role supporting families move from an institutional within family home. Analysis interview...
Authors from Liverpool address the issue of quality life in exstrophy patients, and assess long‐term results surgery for this condition. Their study not only yields interesting results, but reader is also made aware problems there can be conducting such a study. Risk factors developing chronic renal failure patients with high‐grade VUR are described by authors Rome. All were diagnosed first year life, mean (range) follow‐up was 6.3 (1–16) years. The findings interest, although may very...