A5082326588- Congenital Heart Disease Studies
- Adolescent and Pediatric Healthcare
- Healthcare Policy and Management
- Childhood Cancer Survivors' Quality of Life
- Cardiovascular Issues in Pregnancy
- Heart Failure Treatment and Management
- Health, psychology, and well-being
- Cardiac Structural Anomalies and Repair
- Family and Disability Support Research
- Cardiac pacing and defibrillation studies
- Retirement, Disability, and Employment
- Medication Adherence and Compliance
- Pharmaceutical Practices and Patient Outcomes
- Optimism, Hope, and Well-being
- Cardiac Valve Diseases and Treatments
- Family Support in Illness
- Frailty in Older Adults
- Infant Development and Preterm Care
- Pulmonary Hypertension Research and Treatments
- Delphi Technique in Research
- Health Systems, Economic Evaluations, Quality of Life
- Dutch Social and Cultural Studies
- Diabetes Management and Research
- COVID-19 and Mental Health
- Child and Adolescent Health
University of Antwerp
2020-2025
KU Leuven
2016-2025
Antwerp University Hospital
2020-2025
Research Foundation - Flanders
2013-2023
Province of Antwerp
2020
Universitair Ziekenhuis Leuven
2020
University College Odisee
2020
E Ink (South Korea)
2020
Although systematic reviews are the method of choice to synthesize scientific evidence, they can take years complete and publish. Clinicians, managers, policy-makers often need input from evidence in a more timely resource-efficient manner. For this purpose, rapid conducted. Rapid performed using an accelerated process. However, should not be less than standard reviews, introduction bias must avoided. In article, we describe what are, present their characteristics, give some examples,...
The vast majority of children with congenital heart disease (CHD) in high-income countries survive into adulthood. Further, paediatric cardiac services have expanded middle-income countries. Both evolutions resulted an increasing number CHD survivors. Expert care across the life span is necessitated. In adolescence, patients transition from being a dependent child to independent adult. They are also advised transfer paediatrics adult care. There no universal consensus regarding how...
Abstract Rates of successful surgical repair and life expectancy for patients with congenital heart disease have increased dramatically in recent decades. Thanks to advances diagnosis, treatment, follow-up care, an ever-increasing number individuals are reaching advanced age. The exposure cardiovascular risk factors during their lifetime is modifying the outlook late clinical trajectory adult (ACHD). Their burden shifting from acquired, primarily atherosclerotic (ASCVD) worrisome...
Since survival rates of patients with congenital heart disease (CHD) have improved, issues beyond the quantity life become more important. Quality (QOL) has mainly been investigated in adults CHD. Hence, research about QOL among adolescents CHD is much needed.To compare that control subjects from general population and to explore whether sense coherence (SOC) explains differences between controls.In this cross-sectional, comparative study, we included 429 (229 boys; 200 girls) aged 14-18...
OBJECTIVE The increasing importance of peers in adolescence and emerging adulthood has been widely acknowledged. However, longitudinal research linking the peer context to diabetes management outcomes is scarce. present study a large sample youths with type 1 related both positive negative variables over time interval year. RESEARCH DESIGN AND METHODS Our consisted 467 adolescents (14–17 years age) adults (18–25 who participated two-wave study. Questionnaires tapped into support, extreme...
There is increasing evidence supporting the relationship between family support and patient outcomes. Therefore, involving families in care of cardiovascular patients expected to be beneficial for patients. The quality encounter with highly depends on attitudes nurses towards importance care. aim this study was describe involvement investigate individual contributions demographic, professional regional background characteristics. A survey distributed among attending an international...
Survival prospects in adults with congenital heart disease (CHD), although improved recent decades, still remain below expectations for the general population. Patients and their loved ones benefit from preparation both unexpected predictable deaths, sometimes preceded by a prolonged period of declining health. Hence, advance care planning (ACP) is an integral part comprehensive CHD. This position paper summarizes evidence regarding benefits patients' preferences ACP provides practical...
Abstract Aims Although life expectancy in adults with congenital heart diseases (CHD) has increased dramatically over the past five decades, still a substantial number of patients dies prematurely. To gain understanding trajectories dying CHD, last year warrants further investigation. Therefore, our study aimed to (i) define causes death and (ii) describe patterns healthcare utilization CHD. Methods results This retrospective mortality follow-back used claims clinical data from BELCODAC,...
Abstract Identity formation is a core developmental task in adolescence and functions as key resource for transitioning to adulthood. This study investigated how adolescents with congenital cardiac disease form their identity it relates demographic medical parameters, quality of life, perceived health, depressive symptoms, loneliness. A total 429 aged 14–18 years 403 matched controls completed questionnaires on all outcome variables. There were five meaningful statuses, similar those...
Identity formation has been found to relate psychosocial and disease-specific functioning in chronically ill adolescents. Therefore, examining antecedent factors of identity this population is needed. The main goal the present longitudinal study was examine how peer relationship quality influenced adolescents with congenital heart disease (CHD).Adolescents CHD were selected from database pediatric cardiology University Hospitals Leuven. A total 429 (14-18 years) participated at time 1; 401...
In order to prevent cardiac complications, young people with congenital heart disease (CHD) should conduct heart-healthy behaviours. Therefore, they are assumed have a good understanding of their disease. However, empirical data on the relationship between disease-related knowledge and health behaviours in this population is lacking. This study aimed (a) describe risk CHD; (b) level knowledge; (c) explore Data were collected 429 CHD. Health assessed using Behaviour Scale for CHD Baecke...
To optimize healthcare use of adults with congenital heart disease, all important predictors utilization should be identified. Clinical and psychological characteristics (eg, age depression) have been found to associated use. However, the concept illness identity, which assesses degree disease is integrated into one's has not yet investigated in association Hence, purpose study examine predictive value identity for use.In this ambispective analytical observational cohort study, 216 were...