The importance of the valid assessment quality life (QOL) is heightened with increased use QOL construct as a basis for policies and practices in field intellectual disability (ID).This article discusses principles that should guide measurement process, major interrogatories (i.e. who, what, when, where, why, how) measurement, issues procedures cross-cultural QOL, current uses data.Based on above methods, presents number important guidelines regarding measurement.From perspective changing....

Background This study explored ‘loneliness’ as experienced by adults with intellectual disability, ‘intermittent’ to ‘limited’ support needs. Method A measure of loneliness was piloted, and qualitative techniques used develop a greater understanding the participants’ experience. Results The Loneliness Scale proved valid reliable participants reported in ways comparable general population. Conclusions findings demonstrate effectiveness combining quantitative enhance people's perspective when...

The aim of this study was to assess the effectiveness two communication interventions for preschool-aged children with autism.Six typically developing peers were taught implement peer-mediated naturalistic teaching, and without a speech generating device (SGD), during play sessions 3 classmates autism in three preschools. Generalisation probes conducted mealtimes at A multiple baseline design used outcomes intervention conditions.All increased their communicative behaviours immediately...

Abstract This article examines two methodological issues regarding ways of obtaining and analyzing outcome data for people with intellectual disabilities: (a) self-report proxy-report (b) analysis population-based sets. Some disabilities have difficulties self-reporting due to problems understanding communication. However, there are serious doubts about the validity proxy subjective issues. One important challenge secondary sets is difficulty accurately identifying survey participants...

Abstract The authors compare the prevalence of obesity for National Core Indicators (NCI) survey participants with intellectual disability and general U.S. adult population. In general, adults did not differ from population in obesity. For overweight combined, was lower males than but similar women. There higher among women disability, individuals Down syndrome, people milder disability. Obesity differed by living arrangement, institutional residents having lowest their own home highest....

Personal control exercised by 74 adults from community living settings in Minnesota was evaluated. Comparisons between living-unit sizes or types controlled statistically for pre-existing differences adaptive and challenging behavior. Individuals semi-independently more personal than did residents of HCBS Waiver-funded settings, who had persons ICFs/MR. Within the 1- to 5-person size range, size-related were detected control. Using hierarchical regression, we found that characteristics,...

Abstract The purpose of this article was to collate evidence describe where people with mental retardation or developmental disabilities live in five developed countries: United States, Canada, England, Wales, and Australia. Family homes are important dwelling places for retardation. They the home great majority children a considerable proportion adults likelihood placement outside family increases adulthood progressively as age. Adults wide variety settings, formal residential provision...

Abstract Background Falls among people with intellectual disability (ID) occur at a younger age than the general population and are significant cause of injury hospitalisation. There is very limited research investigating risk factors for falls ID none living outside formal care arrangements, either independently or their family. We used medical chart audit to identify incidence in variety settings. Methods retrospectively identified 114 consecutive patients, aged 18 years over who attended...

Background The aim of this study was to explore the current status end‐of‐life care and dying people with intellectual disability based on experiences staff in community living services. Materials Methods Focus groups individual interviews were conducted, guided by grounded theory methodology. Results comprised five key ‘issues’: knowledge dying, ethical values, where caring, how caring post‐death caring. These issues occurred relationship ‘partners’, including person, other clients, fellow...

Adults with intellectual disability are increasingly being encouraged to take control of their lives through a range goal-setting, choice- and decision-making opportunities. The current objectiv...

Abstract Background This paper reports on the feasibility and outcomes of a transition to retirement programme for older adults with disability. Without activities social inclusion, retirees disability are likely face inactivity, isolation loneliness. Methods Matched intervention comparison groups each consisted 29 individuals There were 42 men 16 women mean age 55.6 years While attending their individual mainstream community group 1 day per week, participants received support from members...

The coronavirus disease 2019 (COVID-19) pandemic may have a greater impact on people with disabilities than non-disabled people. Our aim was to compare the short-term of 2020 COVID-19 and first lockdown employment financial security working age adults without in UK.Secondary analysis data collected Wave 9 special April, May June monthly surveys 'Understanding Society', UK's main annual household panel study.During 3 months introduction UK, respondents disability were more likely their peers...

The impact of size residence on residents' opportunities for choice was examined Australian adults with mental retardation who lived in staff-supported community residences housing one to five residents. Significantly greater exercised by individuals living smaller settings, even when personal characteristics individual residents were controlled statistically. Staff presence confounded living-unit size. Analyses including both staff and revealed strong effects presence, more displayed...

Consumer outcomes and recurrent (non-capital) service costs were compared for matched groups of Australian adults with intellectual disability living in group homes or semi-independently. Outcomes examined included quality life, safety, aloneness, social dissatisfaction, personal care, domestic management, health money network, use mainstream community services, participation, stability place residence, companion turnover, natural support. Most did not differ significantly by group. Where...

Previous studies have questioned the reliability of Quality Life Questionnaire (QOL-Q) Empowerment scores, and reported marked disagreement between consumers' self-reports proxy data from staff informants. The present study examined agreement consumer responses community living for 63 adults with intellectual disability. Substantial positive correlations consumers were evident No significant difference was found total QOL-Q scores self- or reports. It concluded that factor is sufficiently...

Abstract This study reports the friendship experiences and aspirations of adults with intellectual disabilities. The findings a larger were reviewed by an expert group self‐advocates disability. confirmed some interpretation original data expanded on issues. Friendship is established as issue concern among Consequently, policy‐makers service providers need to be intentional about providing support for friendships. Participants asserted positive self‐identity being person disability how this...

Abstract Background The rights to choose where and with whom live are widely endorsed but commonly denied adults intellectual disabilities (ID). current study provides a contemporary benchmark on the degree of choice exercised by adult service users in USA. Method Data came from National Core Indicators programme. Participants were 6778 living non‐family‐home settings 26 US states. Results Most ID did not participate choosing live. Those more support needs because severe and/or co‐occurring...