A5056745754- Palliative Care and End-of-Life Issues
- Geriatric Care and Nursing Homes
- Grief, Bereavement, and Mental Health
- Mental Health and Patient Involvement
- Clinical practice guidelines implementation
- Patient Dignity and Privacy
- Dental Education, Practice, Research
- Swearing, Euphemism, Multilingualism
- Interpreting and Communication in Healthcare
- Chronic Disease Management Strategies
- Organ Donation and Transplantation
- Stroke Rehabilitation and Recovery
- Employment and Welfare Studies
- Mental Health Treatment and Access
- Global Health Workforce Issues
- Intensive Care Unit Cognitive Disorders
- Dental Health and Care Utilization
- Interprofessional Education and Collaboration
- Frailty in Older Adults
- Social Policy and Reform Studies
- Healthcare Systems and Practices
- Psychiatric care and mental health services
- Childhood Cancer Survivors' Quality of Life
- Intergenerational Family Dynamics and Caregiving
- Health disparities and outcomes
Pilgrim Hospital
2015-2024
University of Kent
2013-2024
Hospice at Home (HAH) services aim to enable patients be cared for and die home, if that is their choice achieve a 'good death'. A national survey, in 2017, aimed describe compare the features of HAH understand key enablers service provision. Service managers adult 'Hospice UK' National Association directories within England were invited participate. Information on configuration, referral, staffing, finance, care provision collected by telephone interview. Of 128 invited, 70 (54.7%) provided...
Background Many people prefer to die at home when the time comes. Hospice services aim support patients achieve this. A range of hospice exist; some have been evaluated, but there has limited evidence synthesis. Objectives The main objective was find out what models work best, for whom and in circumstances. Other objectives supported this aim, including an analysis health economic costs models. Design study overarching, non-interventional, realist evaluation comprising three phases. Phase 1...
Working carers are a key focus of UK policies on health and social care employment. Complementing national European evidence, this paper presents local case study working carers. It draws data from county-wide survey containing module caring. Data were primarily categorical analysed using SPSS. Three quarters all who responded to the age: two thirds employed one third had been previously. The majority mid-life extra-resident women. Over half cared for relatives elderly parents/in law;...
Introduction Hospice at home (HAH) services aim to enable patients be cared for and die in their place of choice, if that is home, achieve a ‘good death’. There considerable range HAH operating England. The published evidence focuses on evaluations individual which vary considerably, there lack consistency terms the outcome measures reported. evidence, therefore, does not provide generalisable information, so question ‘What are features hospice service models work, whom, under what...
<h3>Background</h3> The Outcome Assessment and Complexity Collaborative (OACC) is a suite of measures designed to assess patient related clinical outcomes. It now guides service development virtually all palliative care services in the UK. Pilgrims Hospices East Kent, implemented three six OACC 2016 (AKPS, POI, IPOS). However, there has been limited training since further hampered by geographical challenges service. hospice were keen support their strategy with clearly defined targets...
Purpose – The purpose of this paper is to evaluate the needs stroke survivors and impact a Life After Stroke service on users, explore effectiveness provided by third sector organisation working closely with other provision. Design/methodology/approach Review management documents reports, polling views 128 users through nationally recognised survey designed assess impact, using interviews focus groups gain deeper understanding value from range professionals involved delivering care. Survey...
Aim We aimed to evaluate a pilot service facilitate discharge of patients with stable long-term mental health needs from secondary primary care. Background Patients conditions are often not discharged services when no longer needed due insufficient systems and processes enable safe, effective, recovery-focussed treatment support. The Primary Care Mental Health Specialist (PCMHS) Service was developed address this gap; new PCMHS posts were introduced act as conduit for being care single point...
Hospice-at-home aims to enable patients approaching end-of-life die at home and support their carers. A wide range of different service models exists but synthesised evidence on how best family carers provide sustainable care is limited.To explore what works promote carers' experiences hospice-at-home.Realist evaluation with mixed methods. This paper focuses qualitative interviews (to gain perspective as proxy for patients) providers from 12 case study sites in England. Interviews were coded...
<h3>Introduction</h3> Referral is late to hospices, particularly for patients with non-cancer conditions and older people.<sup>1</sup> This limits hospices' ability be equitable/effective in offering support.<sup>2</sup> <h3>Aims</h3> To support early identification of on GP caseloads at risk being their last year life (their ''1%'').<sup>3</sup> Identified were invited by co-designed letter a 'Talk' appointment, discuss needs potential referral hospice services. The pilot was evaluated...
<h3>Background</h3> Dying at home is the most common preference yet hospital deaths remain high and costly. Advance care planning (ACP) in hospitals could potentially bridge this gap between patient wishes for future meeting them if end of life discussions take place information recorded, reviewed implemented by range professionals involved. This project was developed response to identified unmet need additional support EKHUFT staff funded St James Place Foundation. <h3>Methods</h3> The main...
Background Owing to different governance structures and procedures outside NHS organisations, independent hospices often face challenges conduct research (Perkins et al ., 2014). Yet, The Commission into the Future of Hospice Care highlighted importance in recommending how could be implemented, including introduction staff with ‘research’ job titles partnerships universities (Payne 2013). Aims Five within one region England have begun implementing through appointing a facilitator...
Background A hospice setting has a small, busy research team and the volunteer assistant is an important role within team, providing additional support for delivery of projects related activities. The was first introduced in 2014 following development infrastructure capacity building organisation. Aim method To introduce volunteers to including: Assisting with set up co-ordination studies. Including organisation collation study materials, meetings training site. running events by helping...
<h3>Context</h3> A hospice setting has a small, busy research team and the volunteer assistant is an important role within team, providing additional support for delivery of projects related activities. The was first introduced in 2014 following development infrastructure capacity building organisation. <h3>What been achieved?</h3> Examples where volunteers have supported include assisting: with set up co-ordination clinical trial. Including organisation collation study materials, meetings...
<h3>Background</h3> The importance of undertaking clinical research has been reaffirmed by 95% the public in a national survey (NIHR CRN, 2014). Yet, independent hospices often face challenges to conduct partly due different governance structures and procedures outside NHS organisations (Perkins <i>et al</i>., Commission into Future Hospice Care highlighted recommending how could be implemented, including introduction staff with 'research' job titles partnerships universities (Payne...
<h3>Introduction</h3> Referral of patients to hospice care happens late.<sup>1</sup> Earlier referral leads better outcomes at the end life,<sup>2</sup>Patients with frailty are shown be greater risk mortality, hospital admission and have low rates advance planning (ACP) in place.<sup>3</sup> It is not clear how best support GP practices engage these patients, confidence broker ACP conversations early. <h3>Aims</h3> TTA linking local primary one area south-east England supporting people plan...
Introduction Patient complexity needs to be understood match resources need in palliative care (Pask et al. 2018). A future increase for these services means alternative models of should considered (Etkind 2017). Pilgrims Hospice is unique having three IPUs run by a single organisation covering distinct geographical area. This set up enabled the implementation stand-alone nurse directed unit taking less medically complex patients alongside traditionally staffed IPUs. Aims The project aimed...