A5094296061- Ethics in Clinical Research
- Focus Groups and Qualitative Methods
- Colorectal Cancer Screening and Detection
- Biomedical Ethics and Regulation
- Global Cancer Incidence and Screening
- Artificial Intelligence in Healthcare and Education
- Patient-Provider Communication in Healthcare
- Data Visualization and Analytics
- Pancreatic and Hepatic Oncology Research
- Economic and Financial Impacts of Cancer
- Social Media in Health Education
Human Longevity (United States)
2024-2025
University of California, San Diego
2022-2025
Informed consent is a cornerstone of ethical human subject research. This practice demonstrates the principle "respect for persons." Our study was designed to imagine an informed future, specifically in digital health context which processes are mediated by sociotechnical systems. Design speed-dating workshops were conducted explore dimensions communication design space, including social media, interactive quizzes, chat-bots, annotation tools, and virtual learning sessions. To both user...
Abstract Objectives Digital health research involves collecting vast amounts of personal data, making data management practices complex and challenging to convey during informed consent. Materials Methods We conducted eight semi-structured focus groups explore whether dataflow diagrams (DFD) can complement consent improve participants' understanding associated risks (N = 34 participants). Results Our analysis found that DFDs could supplement text-based information about sharing practices,...
Primary care physicians (PCPs) are significant contributors of early cancer detection, yet few studies have investigated whether consistent primary translates to improved downstream outcomes.To evaluate the association prediagnostic use with metastatic disease at diagnosis and cancer-specific mortality (CSM).This cohort study used databases referral linkage from multiple Veterans' Affairs centers 2004 2017 had a 68-month median follow-up. Analysis was completed between July 2021 September...
The research team, prospective participants, and written materials all influence the success of informed consent process. As digital health becomes more prevalent, new challenges for successful are introduced. This exploratory utilized a human centered design process where 19 people were enrolled to participate in one 4 online focus-groups. Participants discussed their experiences with consent, preferences receiving study information ideas about alternative approaches. Data analyzed using...
<sec> <title>BACKGROUND</title> Readability is important to consider when developing informed consent communications for prospective research participants, but not the most consideration. Other factors relate specific learning preferences and literacy needs of people recruited participate in research, as their level education, cultural background health can influence understanding consent. Research teams should taking a human-centered approach promote among participants by attending unique...
The research team, prospective participants, and written materials all influence the success of informed consent process. As digital health becomes more prevalent, new challenges for successful are introduced. This exploratory utilized a human centered design process in which 19 people were enrolled to participate one four online focus-groups. Participants discussed their experiences with consent, preferences receiving study information ideas about alternative approaches. Data analyzed using...
Readability is important to consider when developing informed consent communications for prospective research participants, but not the most consideration. Other factors relate learning preferences and literacy needs of people recruited participate in research, as these can influence understanding communications. To promote among researchers should take a human-centered approach develop This study aims explore how related readability, topic, participant demographic characteristics play into...
10548 Background: Primary care physicians (PCPs) are significant contributors of early cancer detection yet few studies have investigated whether consistent primary translates to improved downstream outcomes. We evaluated the impact prior PCP utilization on metastatic disease at diagnosis and cancer-specific mortality (CSM) for a general cohort 12 tumor subtypes. Methods: identified patients ≥40 years, diagnosed from 2004-2017 within Veterans Health Administration. For our 5-year...