A5075892554- Childhood Cancer Survivors' Quality of Life
- Adolescent and Pediatric Healthcare
- Family Support in Illness
- Diabetes Management and Research
- Optimism, Hope, and Well-being
- Identity, Memory, and Therapy
- Diabetes Management and Education
- Chronic Disease Management Strategies
- Palliative Care and End-of-Life Issues
- Psychosomatic Disorders and Their Treatments
- Neurogenetic and Muscular Disorders Research
- Family and Disability Support Research
- Mental Health and Psychiatry
- Obesity and Health Practices
- Autism Spectrum Disorder Research
- Empathy and Medical Education
- Mobile Health and mHealth Applications
- Personality Traits and Psychology
- Suicide and Self-Harm Studies
- Child and Adolescent Psychosocial and Emotional Development
- Health and Medical Studies
- Cerebral Palsy and Movement Disorders
- Cancer survivorship and care
- Personality Disorders and Psychopathology
- Aging and Gerontology Research
Universitair Ziekenhuis Leuven
2022-2025
KU Leuven
2016-2025
Research Foundation - Flanders
2018-2022
OBJECTIVE The current study examined the utility of a new self-report questionnaire, Illness Identity Questionnaire (IIQ), which assesses concept illness identity, or degree to type 1 diabetes is integrated into one’s identity. Four identity dimensions (engulfment, rejection, acceptance, and enrichment) were validated in adolescents emerging adults with diabetes. Associations psychological diabetes-specific functioning assessed. RESEARCH DESIGN AND METHODS A sample 575 (14–25 years age)...
OBJECTIVE The increasing importance of peers in adolescence and emerging adulthood has been widely acknowledged. However, longitudinal research linking the peer context to diabetes management outcomes is scarce. present study a large sample youths with type 1 related both positive negative variables over time interval year. RESEARCH DESIGN AND METHODS Our consisted 467 adolescents (14–17 years age) adults (18–25 who participated two-wave study. Questionnaires tapped into support, extreme...
To examine the role of diabetes-specific parental regulation and general parenting dimensions (responsiveness psychological control) in treatment adherence throughout adolescence emerging adulthood.A total 521 patients (aged 14-25 years) with Type 1 diabetes, 407 mothers, 345 fathers were included. Analyses within across informants examined associations between variables (and potential moderation effects these associations).Lower control higher responsiveness associated better adherence....
Having Type 1 diabetes (T1D) may complicate the normative developmental task of personal identity formation in adolescence and emerging adulthood. Besides exploring committing to choices different life domains, youth with T1D need integrate their illness into identity, a process labeled as identity. The present study examined whether belonging trajectory classes developed differently on four dimensions (acceptance, enrichment, engulfment, rejection).
Abstract Background: Siblings of pediatric cancer survivors are increasingly recognized as a potential vulnerable group requiring focused psychosocial support. However, little is known whether the experience having sibling with affects their identity formation and personality traits. This study aimed to compare adolescent emerging adult siblings control participants on formation, traits, general well-being. Methods: Each (n=80; mean age: 19.13 years; 49% male; age range: 14–25; time since...
ABSTRACT Background and Aim Childhood cancer survivors their parents report both positive negative psychological late effects, such as fear of recurrence (FCR) benefit finding. The current study investigated longitudinal dyadic associations among childhood survivors, mothers, fathers in finding FCR to obtain an in‐depth understanding family functioning after pediatric cancer. Methods This three‐wave (covering 2 years) included (aged 14–24, time since diagnosis 2–22 years at T1) parents; all...
The interplay and longitudinal associations between positive negative illness-related experiences in childhood cancer survivors their families remain unclear. Therefore, benefit finding, cancer-related worries, depressive symptoms, life satisfaction were prospectively investigated parents. Directionality of effects interactions finding worries predicting general well-being examined.Childhood (n = 125 at T1; aged 14-25), mothers 133 T1), fathers 91 T1) completed two annual questionnaires on...
A chronic feeling of fatigue occurs in up to 85% childhood cancer survivors (CCS). This phenomenon has a detrimental effect on quality life, reintegration daily life activities and psychosocial functioning the patient. Therefore, it is important elucidate potential individual risk protective factors.CCS who were treated University Hospital Leuven, completed two annual questionnaires cancer-related distress (fear recurrence post-traumatic stress, resilience fatigue). Associations between...
The long-term psychological effects of childhood cancer vary, with survivors reporting depressive symptoms, fear recurrence, and benefit finding. As is considered a family disease, investigating the parental context may provide insight into such individual differences in functioning survivors. This study examined directionality among sense incompetence, parenting dimensions (responsiveness, control, overprotection), survivor (depressive finding).This three-wave longitudinal (covering 2...
Objectives.Prior research has linked illness identityor the extent to which is integrated into one's identityto diabetes-specific functioning.Four identity dimensions have been identified: rejection, acceptance, engulfment, and enrichment.As longitudinal on this topic scarce, study examined developmental trajectories of prospective associations between functioning.Methods.Adolescents emerging adults with type 1 diabetes, aged 14 25 (Mage=19; 54% girls), participated in a four-wave spanning 3...
Adolescent and emerging adult survivors of childhood cancer generally adjust well psychologically similar to their peers. Nevertheless, some are at greater risk for developing psychological physical difficulties. To shed light on the psychosocial functioning adolescent cancer, personal identity formation its interplay with general cancer-specific need be investigated.To examine longitudinal associations linking in using three-wave data over a 2-year period.Dutch-speaking (at baseline: n =...
Objective Identity formation was investigated in adolescent and emerging adult cancer survivors from a (neo-)Eriksonian perspective by comparing to control participants. In survivors, associations between identity clinical/demographical variables general illness-specific functioning were investigated.Design Childhood (n = 125; Mage: 19.54; 47% male) matched on age gender with healthy controls (2:1).Main outcome measures All participants completed questionnaires. Survivors reported...
Objective: This study examined associations between the functioning of youth with type 1 diabetes and their parents, including parenting dimensions as intervening mechanisms. The adds to existing literature by focusing on (1) concept parental illness intrusiveness; (2) (understudied) periods adolescence emerging adulthood; (3) maternal paternal functioning. Design: Questionnaires were completed 317 patient-mother dyads 277 patient-father dyads. All patients (aged 14–25) had diabetes....
Abstract Background Despite clear evidence that peers are crucial for youth development, research on the role of with Type 1 diabetes (T1D) is scarce. Purpose The present study identified trajectory classes perceived peer functioning in T1D, based support and extreme orientation (EPO). Further, were compared respect to their trajectories depressive symptoms, diabetes-specific distress, treatment adherence, HbA1c values. Methods Five hundred fifty-nine (14–25 years) T1D completed...
Type 1 diabetes in youth has a wide-ranging impact on families. This study aimed at better understanding of experiences and difficulties that parents may encounter their lives. Parental illness intrusiveness (ie, parent's perception the one's child interferes with personal life) was prospectively examined mothers fathers.Parental dyads (n = 291) completed four annual questionnaires parental intrusiveness, depressive symptoms, treatment adherence child. Youth reported adherence.First,...
Abstract Purpose To identify barriers and facilitators for implementing the Survivorship Passport (SurPass) v2.0 in six long-term follow-up (LTFU) care centres Europe. Methods Stakeholders including childhood cancer survivors (CCSs), healthcare providers (HCPs), managers, information technology (IT) specialists, others, participated online Open Space meetings. Topics related to Care, Ethical, Legal, Social, Economic, Information & IT-related aspects of SurPass were evaluated. Results The...