A5075171729- Chronic Disease Management Strategies
- Health Systems, Economic Evaluations, Quality of Life
- Diabetes Management and Education
- Primary Care and Health Outcomes
- Mental Health Treatment and Access
- Treatment of Major Depression
- Mental Health and Patient Involvement
- Ethics in Clinical Research
- Patient-Provider Communication in Healthcare
- Health Policy Implementation Science
- Psychological Testing and Assessment
- Dialysis and Renal Disease Management
- Hearing Loss and Rehabilitation
- Blood Pressure and Hypertension Studies
- Telemedicine and Telehealth Implementation
- Decision-Making and Behavioral Economics
- Hearing, Cochlea, Tinnitus, Genetics
- Digital Mental Health Interventions
- Patient Satisfaction in Healthcare
- Electronic Health Records Systems
- Economic and Environmental Valuation
- Multiple Sclerosis Research Studies
- Noise Effects and Management
- Medication Adherence and Compliance
- Mobile Health and mHealth Applications
PatientsLikeMe (United States)
2015-2020
Adelphi Laboratory Center
2012
Marshfield Clinic
2009
To examine the patient perspective on risks and benefits of linking existing data sources for research.Between December 2015 February 2016, we fielded a questionnaire in PatientsLikeMe, an online community representing over 2500 health conditions. The was developed using subject matter expertise feedback from concept elicitation phase (N = 57 patients). final consisted 37 items.Of n 5741 who opened email invitation, 3516 respondents completed (61.2%). Of these, 73.8% were women, 86.4%...
Background Chronic kidney disease (CKD) is a major global health burden, and associated with increased adverse outcomes, poor quality of life, substantial care costs. While there an increasing need to build patient-centered pathways for improving CKD management in clinical care, data this field are scarce. Objective The aim study was understand patient-reported experiences, symptoms, treatment journeys among patients through retrospective qualitative approach based on available...
Funding agencies and researchers increasingly recognize the importance of patient stakeholder engagement in research. Despite calls for greater engagement, few studies have engaged a broad-based online community stakeholders early stages research development process.The objective our study was to inform priority-setting agenda by using Web-based survey gather perceptions important difficult aspects diabetes care from members social networking site-based community.Invitations participate were...
Patients with type 2 diabetes mellitus (T2DM) who participate in management programs have been shown to better glycemic control and slower disease progression, although program participation remains low. In the USA, increasing support may also directly impact provider reimbursement, as payments are increasingly based on patient-centered measures. However, little is known about factors that enhance patient participation. This study aimed at further understanding what important from patients'...
Although many symptoms of Major Depressive Disorder (MDD) are assessed through patient-report, there currently no patient-reported outcome (PRO) instruments that incorporate documented evidence patient input in PRO instrument development. A review existing PROs used MDD suggested the need to conduct qualitative research with patients better understand their experience and develop an evaluative content validity. The aim this study was a disease-specific questionnaire assess important relevant...
Goal-setting is a valuable behavior change strategy. For patients with multiple sclerosis, variety of factors such as symptoms (e.g., pain, fatigue), environmental weather), and mood can all greatly influence person's ability to meet daily goals. Based on this, these others chronic would likely benefit from strategies that could aid them in developing their own personalized physical activity goals take into account dynamically. The purpose this formative study was explore problem space via...
Objective This pilot study tested a course-based intervention to help people with multiple sclerosis (MS) match their daily activity symptom severity (“sweet spot”) using wearable trackers. Methods two-phase recruited online research network members reporting MS and who were utilizing Fitbit One™ In the first phase, participant interviews assessed demand based on physical use of behavior-change techniques. The second phase demand, limited efficacy, acceptability, practicality “Wearables 101”...
<sec> <title>BACKGROUND</title> Chronic kidney disease (CKD) is a major global health burden, and associated with increased adverse outcomes, poor quality of life, substantial care costs. While there an increasing need to build patient-centered pathways for improving CKD management in clinical care, data this field are scarce. </sec> <title>OBJECTIVE</title> The aim study was understand patient-reported experiences, symptoms, treatment journeys among patients through retrospective...