A5014205711- Palliative Care and End-of-Life Issues
- Geriatric Care and Nursing Homes
- Grief, Bereavement, and Mental Health
- Dementia and Cognitive Impairment Research
- Family and Patient Care in Intensive Care Units
- Mindfulness and Compassion Interventions
- COVID-19 and Mental Health
- Patient Dignity and Privacy
- Anxiety, Depression, Psychometrics, Treatment, Cognitive Processes
- Childhood Cancer Survivors' Quality of Life
- Mental Health via Writing
- Cancer survivorship and care
- Migration, Health and Trauma
- Child and Adolescent Psychosocial and Emotional Development
- Complementary and Alternative Medicine Studies
- Eating Disorders and Behaviors
- Digital Mental Health Interventions
- Intergenerational Family Dynamics and Caregiving
- Obesity, Physical Activity, Diet
- Health Systems, Economic Evaluations, Quality of Life
- Neurobiology of Language and Bilingualism
- Interprofessional Education and Collaboration
- Olfactory and Sensory Function Studies
- Patient-Provider Communication in Healthcare
- Mental Health and Patient Involvement
University College London
2015-2024
Marie Curie
2015-2024
Cicely Saunders International
2023
King's College London
2023
Comenius University Bratislava
2018
Institute for Social Anthropology
2018
University of Hertfordshire
2012
Background: Increasing number of people are dying with advanced dementia. Comfort and quality life key goals care. Aims: To describe (1) physical psychological symptoms, (2) health social care service utilisation (3) at end in Design: 9-month prospective cohort study. Setting participants: Greater London, England, dementia (Functional Assessment Staging Scale 6e above) from 14 nursing homes or their own homes. Main outcome measures: At study entry monthly: prescriptions, Charlson Comorbidity...
The Eating Disorder Examination Questionnaire (EDE-Q) is a widely used assessment of eating disorder psychopathology; however, EDE-Q norms are yet to be provided within nonclinical U.K. adult sample. Second, there considerable disagreement regarding the psychometric properties this measure. Several alternative factor structures have been previously proposed, but very few subsequently validated their new structure in independent samples and many often confined specific subpopulations....
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Abstract INTRODUCTION Here we set out to create a symptom‐led staging system for the canonical semantic and non‐fluent/agrammatic variants of primary progressive aphasia (PPA), which present unique diagnostic management challenges not well captured by functional scales developed Alzheimer's disease other dementias. METHODS An international PPA caregiver cohort was surveyed on symptom development under six provisional clinical stages feedback analyzed using mixed‐methods sequential...
Logopenic variant primary progressive aphasia (lvPPA) is a major presentation of Alzheimer's disease (AD) that signals the importance communication dysfunction across AD phenotypes. A clinical staging system lacking for evolution AD-associated difficulties could guide diagnosis and care planning. Our aim was to create symptom-based scheme lvPPA, identifying functional milestones relevant broader spectrum.
Many people with dementia die in nursing homes, but quality of care may be suboptimal. We developed the theory-driven 'Compassion Intervention' to enhance end-of-life advanced dementia.To (1) understand how Intervention operated homes different health economies; (2) collect preliminary outcome data and costs an interdisciplinary leader (ICL) facilitate Intervention; (3) check caused no harm.A naturalistic feasibility study implementation for 6 months.Two northern London, UK.Thirty residents...
Pain and delirium are common in people with dementia admitted to hospitals. These often under-diagnosed under-treated. is implicated as a cause of but this association has not been investigated setting.
There is considerable evidence that self-criticism plays a major role in the vulnerability to and recovery from psychopathology. Methods measure this process, its change over time, are therefore important for research psychopathology well-being. This study examined factor structure of widely used measure, Forms Self-Criticising/Attacking & Self-Reassuring Scale thirteen nonclinical samples (N = 7510) twelve different countries: Australia 319), Canada 383), Switzerland 230), Israel 476),...
Many studies have examined the mental health of carers people with dementia. Few their experiences in advanced stages disease and into bereavement. We aimed to understand during dementia exploring links between end life care. Mixed methods longitudinal cohort study. Thirty-five family (6 at home, 29 care homes) were recruited assessed monthly for up nine months or until person died, then two seven Assessments included: Hospital Anxiety Depression Scale, Short Form 12 health–related quality...
Objective: Several studies have used the Forms of Self‐Criticism/Reassurance Scale (FSCRS; Gilbert, Clarke, Hempel, Miles, & Irons, 2004 ) when exploring role emotion regulation in psychopathology. However, psychometric evaluation FSCRS is limited. The present study sought to confirm factor structure based on theoretical and empirical grounds a large sample general population. Method: was completed by men women ( N = 1,570) as part an online survey. data were randomly split order perform...
Most people with advanced dementia die in nursing homes where families may have to make decisions as death approaches. Discussions about end-of-life care between and home staff are uncommon, despite a range of potential benefits. In this study we aimed examine practices relating discussions family members residing explore strategies for improving practice. An ethnographic two the Compassion Intervention was delivered. The provides model engaging an Interdisciplinary Care Leader promote...
The majority of people with dementia in the UK die care homes. quality end life these environments is often suboptimal. aim present study was to explore context, mechanisms and outcomes for providing good palliative advanced residing homes from perspective health social providers.The design qualitative which involved purposive sampling professionals undertake interactive interviews within a realist framework. Interviews were completed between September 2012 October 2013 thematically analysed...
People with advanced dementia are frequently bed-bound, doubly incontinent and able to speak only a few words. Many reside in care homes may often have complex needs requiring efficient timely response by knowledgeable compassionate staff. The aim of this study is improve our understanding health professionals' attitudes knowledge the barriers integrated for people dementia. In-depth, interactive interviews conducted 14 professionals including commissioners, home managers, nurses assistants...
The prevalence of dementia is rising worldwide and many people will die with the disease. Symptoms towards end life may be inadequately managed informal professional carers poorly supported. There are few evidence-based interventions to improve end-of-life care in advanced dementia.To develop an integrated, whole systems, intervention that pragmatic feasible for support those close them.A realist-based approach which qualitative quantitative data assisted development statements. These were...
The Emotion Focused Training for Self-Compassion and Self-Protection (EFT-SCP) is an intervention developed to increase skills of self-compassion protective anger with the aim decrease self-criticism. This novel was on basis latest findings self-criticism from Emotion-focused therapy previous programs cultivating compassion (namely Compassion Mind Mindful Program). According existing research, simply not always sufficient in reducing Therefore, EFT-SCP designed build whilst developing combat...
Despite community efforts to support and enable older vulnerable people during the COVID-19 pandemic, many with dementia their family carers are still finding it difficult adjust daily living in light of disruption that pandemic has caused. There may be needs specific black, Asian minority ethnic (BAME) populations these circumstances remain thus far unexplored.