A5051997456- Congenital Heart Disease Studies
- Congenital heart defects research
- Child and Adolescent Health
- Genomics and Rare Diseases
- Misinformation and Its Impacts
- Global Health Workforce Issues
- Vaccine Coverage and Hesitancy
- Adolescent and Pediatric Healthcare
- Family and Patient Care in Intensive Care Units
- Retirement, Disability, and Employment
- COVID-19 and Mental Health
- Biomedical Ethics and Regulation
- Education Systems and Policy
- Aging, Health, and Disability
- Global Socioeconomic and Political Dynamics
University College Dublin
2019
Tusla - Child and Family Agency
2019
Queen's University Belfast
2017
Knowledge Foundation
2017
Introduction: This research reflects on multi-stakeholder perspectives the outcomes, enablers, barriers and lessons learnt from a 7 year Public Patient Involvement (PPI) partnership with rare disease patient charity. Context: In 2014, families of children disorder, 22q11.2 deletion syndrome (22q) reported frustration exhaustion as they sought care range different healthcare providers who were unaware their children's condition or needs (Alugo,T et al, 2017). Additionally, there was complete...
The COVID-19 pandemic has been associated with an ‘infodemic’, and young people have reported difficulties dealing COVID-19-related information. present cross-sectional study aimed to explore health knowledge related accessing relevant information as aspects of literacy in a cohort adolescents adults residing Ireland. It also concerns levels compliance precautionary measures. Data were collected from (n = 1009) aged 12–25 years old through online anonymous survey. Our findings highlight that...
The International Journal of Integrated Care (IJIC) is an online, open-access, peer-reviewed scientific journal that publishes original articles in the field integrated care on a continuous basis.IJIC has Impact Factor 5.120 (2020 JCR, received June 2021)
The International Journal of Integrated Care (IJIC) is an online, open-access, peer-reviewed scientific journal that publishes original articles in the field integrated care on a continuous basis.IJIC has Impact Factor 5.120 (2020 JCR, received June 2021)
<h3>Background</h3> 22q11 Deletion Syndrome is a complex, multi-system disorder with prevalence of 1 in 2000 to 4000 people. Affected children may present diverse range medical conditions and they are extremely vulnerable psychiatric illness throughout their lifespan. This population widely known be at risk developing psychotic 10% adolescents over 25% adults 22q disorders. Studies have also shown that up 57.7% experience social anxiety 50% diagnosed Autistic Spectrum Disorder. <h3>Aims</h3>...
<h3>Background</h3> The importance of effective and well managed transition care has been increasingly recognised along with the reality that for many it is poorly experienced. National International policies have emphasized addressing these shortcomings. Individuals rare genetic disorder, 22q11.2 deletion syndrome (22Q11DS) face particular challenges transition. By virtue their condition, they are at a highly increased risk psychiatric disorders variety medical educational problems,...