A5045893306- Dementia and Cognitive Impairment Research
- Geriatric Care and Nursing Homes
- Mental Health and Patient Involvement
- Bone health and osteoporosis research
- Delphi Technique in Research
- Aging, Elder Care, and Social Issues
- Palliative Care and End-of-Life Issues
- Stroke Rehabilitation and Recovery
- Vitamin D Research Studies
- Pain Management and Opioid Use
- Intergenerational Family Dynamics and Caregiving
- Technology Use by Older Adults
- Interprofessional Education and Collaboration
- Acute Ischemic Stroke Management
- Health Systems, Economic Evaluations, Quality of Life
- Participatory Visual Research Methods
- Music Therapy and Health
- Pain Management and Placebo Effect
- Healthcare Quality and Management
- Patient-Provider Communication in Healthcare
- Health disparities and outcomes
- Migration, Aging, and Tourism Studies
- Body Composition Measurement Techniques
- Forensic Anthropology and Bioarchaeology Studies
- Clinical practice guidelines implementation
Lancaster University
2019-2025
National Observatory
2023
University of Manchester
2006-2019
Greater Manchester Mental Health NHS Foundation Trust
2019
Manchester Academic Health Science Centre
2018
Farr Institute
2017
MRC Epidemiology Unit
2005-2007
Pain is often poorly managed in people who have a dementia. Little known about how this patient population hospital, with research to date focused mainly on care homes. This study aimed investigate pain recognised, assessed and patients dementia range of acute hospital wards, inform the development decision support tool improve management for group. A qualitative, multi-site exploratory case study. Data were collected four hospitals England Scotland. Methods included non-participant...
Abstract Objectives inconsistency in outcome measurement dementia care trials impedes the comparisons of effectiveness between trials. The key aim this study is to establish an agreed standardised core set (COS) for use when evaluating non-pharmacological health and social interventions people with living at home. Method we used a mixed-methods research design, including substantive qualitative five stakeholders groups. We consulted many aspects research. applied modified two-round 54 item...
Recent recommendations promote the inclusion of people living with dementia beyond role 'participant' to involvement in all areas research process. This reflects shifts studies from 'research on' with' condition. In this paper, we describe design process and features a modified Delphi survey devised through consultation dementia.This article focusses on care partners an accessible facilitate participation core outcome set development. We used COINED model co-research developed ESRC/NIHR...
This article presents a critique of an previously featured in Nursing Philosophy (10: 26–33) by Ursula Naue and Thilo Kroll, who suggested that people living with dementia are assigned negative status upon receipt diagnosis, holding the identity 'demented other'. Specifically, this critique, we suggest unwitting use adjective 'demented' to define person condition is ill-informed runs risk defining through (self-)attributes, which has deleterious impact person's social relational personae....
The involvement of people living with dementia in research has traditionally been located the realms 'subject' or 'participant'. However, there an increase demand for greater transparency by academic bidding teams (particularly within UK) demonstrating how a lived experience have and will be involved process. Located Economic Social Research Council/National Institute Health (ESRC/NIHR)-funded Neighbourhoods Dementia Study (2014-2019), led University Manchester (UK), this paper outlines...
Core outcome sets (COS) prioritise outcomes based on their importance to key stakeholders, reduce reporting bias and increase comparability across studies. The first phase of a COS study is form 'long-list' outcomes. Key stakeholders then decide importance. described as suboptimal this often under-reported. Our objective was develop items for non-pharmacological interventions people with dementia living at home. Three iterative phases were conducted. First, dementia, care partners, health...
Abstract This article draws upon six social research studies completed by members of the Dementia and Ageing Research Team at The University Manchester their associated networks over an eight-year period (2011–2019) with aim constructing a definition ‘being in moment’ situating it within continuum moments that could be used to contextualise frame lived experience dementia. Using approach formulated Pound et al. (2005) synthesising qualitative studies, we identified this as comprising four...
Abstract Objectives The aim of this study was to examine knowledge dementia in South Asian older people, as compared with Caucasian people. Methods Attendees, not known suffer from dementia, one and two predominantly day centres for people Manchester (UK) were asked complete the Dementia Knowledge Questionnaire (DKQ). DKQ translated into Gujarathi Urdu by professional translators. Results One hundred ninety‐one DKQs Indian 55 (white UK/Irish/European) included analyses. poor both especially...
Article Abstract Background: People with psychosis often experience weight gain, which places them at risk of cardiovascular disease, diabetes, and early death. Objective: To determine the uptake, adherence, clinical effectiveness a healthy living intervention designed to reduce gain. Method: An exploratory randomized controlled trial, comparing treatment as usual (TAU) in 2 services for England. DSM-IV classification was diagnostic criteria used assign psychiatric diagnoses. The primary...
There are a growing number of mobile phones, watches and electronic devices which can be worn on the body to track aspects health well-being, such as daily steps, sleep exercise. Dementia researchers think that these could potentially used part future research projects, for example help spot changes in activity may signal early symptoms dementia. We asked range older people, including people living with dementia their carers, participate interactive discussions about how participants might...
Objectives Little is known about the cancer experience and support needs of people with dementia. In particular, no evidence currently exists to demonstrate likely complex decision-making processes for this patient group oncology healthcare professionals (HCP) involved in their care. The aim study was explore cancer-related information experiences patients comorbid dementia, informal caregivers HCPs. Design Cross-sectional qualitative study. Semistructured interviews were conducted face...
Abstract Aim. The study aimed to develop, deliver, and evaluate a training programme in care homes enhance the quality of for people living with dementia based on principles relationship‐centred expressed through Senses Framework. Background. There are increasing numbers worldwide growing proportion requiring residential long‐term care. This makes quest enhancing life ever more pressing. Design. A mixed‐methods design was used adopting Practice Development approach. findings from one home...
The key aim of the study is to establish an agreed standardised core outcome set (COS) for use when evaluating non-pharmacological health and social care interventions people living at home with dementia. Drawing on guidance approaches Core Outcome Measures in Effectiveness Trials (COMET), this uses a four-phase mixed-methods design: To best our knowledge, first modified Delphi process involve dementia as participant group. Though confined collecting data United Kingdom, COS by researchers...
Abstract The term ‘in the moment’ has received growing interest in context of music programmes for people living with dementia, therapists, family carers, health-care professionals and dementia themselves reporting value framing musical experiences ‘here now’. Although this is being used more frequently within literature, there yet to be a formal examination such how they might benefit person dementia. We multiple-case study approach develop thematic framework music-making programme research...
The focus on managing problems that can arise for older adults has meant extant HCI and Ageing research not given the concepts of 'age' 'ageing' explicit theoretical attention they deserve. Attending to this gap, we critically examine a ten-year corpus CHI publications through lens an existing typology which have further developed analyse how age is understood, interpreted constructed in field HCI. Our resulting multidimensional elucidates distinctive characteristics considered when...
This review aimed to explore the psychological, social and emotional benefits of music activities for people living with dementia through a systematic qualitative literature. Eighteen studies were identified that covered wide range programmes dementia, majority focusing on active musical participation. A thematic synthesis revealed four key engagement namely: Taking Part, Being Connected, Affirming Identity Immersion "in moment". Overall, engaging was seen have number dementia. However, only...
In the Middle East and North Africa (MENA) region, commitment to honour parents keep private ‘issues’ within home combine shape caregiving styles needs. Evidence on effectiveness of interventions for informal caregivers people living with dementia in MENA region is lacking. This study offers an overview caregivers. It also explores caregivers’ needs, preferences views addressing intervention through online content. A middle-range programme theory developed provide insight into mechanisms...
Background Pain and dementia are common in older people, impaired cognitive abilities make it difficult for them to communicate their pain. Pain, if poorly managed, impairs health well-being. Accurate pain assessment this vulnerable group is challenging hospital staff, but essential appropriate management. Robust methods identifying, assessing managing needed. Aims objectives Two studies were undertaken inform the development of a decision support tool aid staff recognition, management The...