A5077968747- Child and Adolescent Health
- Adolescent and Pediatric Healthcare
- Healthcare Policy and Management
- Childhood Cancer Survivors' Quality of Life
- Family and Disability Support Research
- Primary Care and Health Outcomes
- Family and Patient Care in Intensive Care Units
- Infant Development and Preterm Care
- Tracheal and airway disorders
- Child Nutrition and Feeding Issues
- Autism Spectrum Disorder Research
- Emergency and Acute Care Studies
- Health Policy Implementation Science
- Prenatal Substance Exposure Effects
- Interprofessional Education and Collaboration
- Healthcare Systems and Technology
- Neonatal Health and Biochemistry
- Public Health Policies and Education
- Participatory Visual Research Methods
- Homelessness and Social Issues
- Cancer Diagnosis and Treatment
- Patient-Provider Communication in Healthcare
- Obesity, Physical Activity, Diet
- Neurofibromatosis and Schwannoma Cases
- Family Support in Illness
St. Christopher's Hospital for Children
2015-2024
Drexel University
2015-2024
Center for Children
2007-2022
GTx (United States)
2019
American Academy of Pediatrics
2018
Ocera Therapeutics (United States)
2014
Kao Yuan University
2014
Philadelphia University
2006
University of Parma
1995
This Policy Statement was reaffirmed April 2023. Understanding a care coordination framework, its functions, and effects on children families is critical for patients themselves, as well pediatricians, pediatric medical subspecialists/surgical specialists, anyone providing services to families. Care an essential element of transformed American health delivery system that emphasizes optimal quality cost outcomes, addresses family-centered care, calls partnership across various settings...
Children and youth with complex medical issues, especially those technology dependencies, experience frequent often lengthy hospitalizations. Hospital discharges for these children can be a complicated process that requires deliberate, multistep approach. In addition to successful home, it is essential pediatric providers develop implement an interdisciplinary coordinated plan of care addresses the child's ongoing health needs. The goal ensure each child remains healthy, thrives, obtains...
The pediatric health care provider has a critical role in supporting the and well-being of children adolescents all settings, including early intervention (EI), preschool, school environments. It is estimated that 15% United States have disability. Individuals with Disabilities Education Act entitles every affected child from infancy to young adulthood free appropriate public education through EI special services. These services bolster development learning various disabilities. This...
To examine the association between receiving adequate care coordination (CC) with family-provider relations and family/child outcomes.We analyzed data from 2005-2006 National Survey of Children With Special Health Care Needs. Eligible subjects were 88% families asked about experience CC, service use, communication. Respondents also reported on demographic characteristics, health status, relations, outcomes. Weighted, multivariate logistic regression models constructed to assess independent...
The American Academy of Pediatrics envisions a child and adolescent health care system that provides individualized, family-centered, equitable, comprehensive integrates with community resources to help each family achieve optimal growth, development, well-being. All infants, children, adolescents, young adults should have access this system. Medicaid the Children's Health Insurance Program (CHIP) provide critical support foundation for vision. Together, programs currently serve about half...
U.S.-born citizens are victims of human trafficking typically exploited through sex trafficking. At least some them interact with healthcare providers during their experience; yet a majority goes unidentified. Although protocols and training guides exist, often do not have the necessary skills to identify assist Understanding where seek care barriers for disclosure critical components intervention. Thus, this study interviewed survivors ascertain: a) settings visited trafficking, b) reasons...
In 2020, midway through the Collaborative Improvement and Innovation Network to Advance Care for Children with Medical Complexity project, coronavirus disease 2019 pandemic erupted caused significant disruptions 10 participating state teams, project leadership, collaborative partner organizations. Clinics shut down in-person care, a scramble ensued quickly leverage telehealth fill gap, trauma by anxiety, isolation, exhaustion affected health wellbeing of children, families, clinicians alike....
Visits to the emergency department (ED) are stressful for any patient and pose special challenges potential barriers care those with autism spectrum disorder (ASD). In addition, people (both children adults) ASD differ in their perception of, or responses to, environmental stimuli. Some present sensory defensiveness that is environmentally moderated, but there a gap our knowledge about patterns thresholds of stimulation kindle behavioral responses. We systematically recorded visual auditory...
Care coordination (CC) facilitates access to resources/services for children/youth with special health care needs (CYSHCN). We conducted a cross-sectional analysis of the 2009-2010 National Survey CSHCN examine socioeconomic factors related report receiving adequate CC services CYSHCN. Descriptive statistics were used describe sociodemographic characteristics respondents and factors. Receiving varied by variables including income (100% 199% federal poverty line [FPL]; aOR [adjusted odds...
This study sought to understand caregiver needs of children with tracheostomies (CWT) living at home and inform development standardized tracheostomy simulation training curricula. Long-term goals are decreasing hospital readmissions following placement improving family experiences while implementing a medical model. We recruited caregivers CWT conducted semistructured interviews, subsequently recorded, transcribed, analyzed for emerging themes using NVivo. Demographic data were collected...