Craig Voisin
A5067618028- Ethics in Clinical Research
- Cancer Genomics and Diagnostics
- Genomics and Rare Diseases
- Biomedical Text Mining and Ontologies
- Privacy-Preserving Technologies in Data
University of Lausanne
2021
Google (Canada)
2021
Murdoch Children's Research Institute
2021
Human biomedical datasets that are critical for research and clinical studies to benefit human health also often contain sensitive or potentially identifying information of individual participants. Thus, care must be taken when they processed made available comply with ethical regulatory frameworks informed consent data conditions. To enable streamline access these datasets, the Global Alliance Genomics Health (GA4GH) Data Use Researcher Identities (DURI) work stream developed approved...
The Global Alliance for Genomics and Health (GA4GH) supports international standards that enable a federated data sharing model the research community while respecting security, ethical regulatory frameworks, authorization access processes sensitive data. GA4GH Passport standard (Passport) defines machine-readable digital identity conveys roles permissions (called "visas") individual users. Visas are issued by stewards, including committees (DACs) working with public databases, entities...