A5046371908- Cystic Fibrosis Research Advances
- Family and Disability Support Research
- Child Nutrition and Feeding Issues
- Child and Adolescent Health
- Pediatric health and respiratory diseases
- Child and Adolescent Psychosocial and Emotional Development
- Adolescent and Pediatric Healthcare
- Medication Adherence and Compliance
- Mobile Health and mHealth Applications
- Infant Development and Preterm Care
- Migration, Health and Trauma
- Interprofessional Education and Collaboration
- Health Policy Implementation Science
- HIV/AIDS Research and Interventions
- Health Systems, Economic Evaluations, Quality of Life
- Cultural Competency in Health Care
- Optimism, Hope, and Well-being
- Child Therapy and Development
- Mental Health and Patient Involvement
- Noise Effects and Management
- Healthcare Policy and Management
- Suicide and Self-Harm Studies
- Healthcare professionals’ stress and burnout
- Dysphagia Assessment and Management
- Mindfulness and Compassion Interventions
University of Colorado Denver
2015-2025
University of Colorado Anschutz Medical Campus
2023-2025
Children's Hospital Colorado
2016-2024
University of Colorado Hospital
2022
University at Buffalo, State University of New York
2019
Abstract Background Elexacaftor/tezacaftor/ivacaftor (ETI) has been associated with unprecedented clinical improvements, transforming the management of cystic fibrosis (CF). However, side effects implications for safety and well‐being have reported, including neuropsychiatric changes. This study aimed to better characterize emerging positive negative impacts ETI. Methods The Cystic Fibrosis Foundation's Mental Health Advisory Committee distributed a 26‐item survey US CF care teams assess...
Background Adolescents and young adults (AYA) with cystic fibrosis (CF) are at risk for deviating from their daily treatment regimen due to significant time burden, complicated therapies, life stressors. Developing patient-centric, effective, engaging, practical behavioral interventions is vital help sustain therapeutically meaningful self-management. Objective This study aimed devise refine a patient-centered telecoaching intervention foster self-management in AYA CF using combination of...
Objective: The current study examines the scope of integrated behavioral health services provided by clinicians in pediatric primary care. Methods: A cross-sectional electronic record review was conducted to characterize including consultation types, recommendations, and medical diagnoses. Services were over a 6-year period an urban, residency-training clinic serving primarily publicly insured population. Results: Of 4,440 patients seen (BHCs), 2,829 (63.7%) during well-child checks address...
Although care within a medical home increases parental satisfaction with health services and improves utilization, significant racial/ethnic language disparities persist in settings. Integrated, team-based approaches can decrease disparities. The current study examines records of 2,353 youth who received behavioral consultation an urban, residency training pediatric primary clinic. A three-phase, mixed-method approach was used to examine whether differences clinician-identified presenting...
Abstract Objectives The CF Foundation sponsored competitive awards for Mental Health Coordinators (MHCs) from 2016 to 2018 implement the international guidelines mental health screening and treatment in US centers. Longitudinal surveys evaluated success implementing these using Consolidated Framework Implementation Research (CFIR). Methods MHCs completed annual assessing implementation preparation/basic (e.g., recommended screeners) full implementation/sustainability providing evidence‐based...
Introduction : Pediatric primary care (PPC) is ideally suited to promote development and wellbeing through the provision of expanded services that address psychosocial risk factors behavioral health issues in context a trusting relationship with familiar providers (Talmi & Fazio, 2012). There are approximately 34,000,000 routine well-child checks per year PPC U. S. for patients from birth 22 years age, 121,000,000 visits children under 15 age (American Academy Pediatrics, 2009). Families...
Goals of therapy in cystic fibrosis-related diabetes:The primary goals the management fibrosisrelated diabetes (CFRD) are to preserve pulmonary function and optimize nutritional status (1).This is contrast type 1 2 diabetes, where geared towards reducing long-term vascular complications.Macrovascular complications not a significant source mortality CFRD, while microvascular appear be less common severe compared other types (2).Whereas glycemic targets for represent what clinical studies have...
Cystic fibrosis (CF) is an inherited, life-limiting chronic health condition that impacts many organ systems including the lungs, pancreas, liver, intestines, and reproductive organs. Given various impacted, treatments can be complex, burdensome, time consuming. In addition, stress emotional impact of CF on caregivers as well patients significant. This paper describes delivery psychosocial care across developmental stages in largest pediatric center country. The focus will goals assessment...
Context: Early childhood (ages birth to 5 years old) is well documented as a critical period of development during which interventions are especially effective in preventing and reducing both current future developmental disabilities, mental health problems, family stress (Sameroff &Fiese; Zeanah, Stafford, & 2005; Godoy, et al., 2014). Culturally-informed early for immigrants refugees with disparities particularly important promoting optimal development, health, well-being. Among...