A5080502743- Congenital Heart Disease Studies
- BRCA gene mutations in cancer
- Infant Development and Preterm Care
- Cardiovascular Issues in Pregnancy
- Cutaneous Melanoma Detection and Management
- Adolescent and Pediatric Healthcare
- Family and Disability Support Research
- Cancer survivorship and care
- Childhood Cancer Survivors' Quality of Life
- Neurogenetic and Muscular Disorders Research
- Cardiac Structural Anomalies and Repair
- Family Support in Illness
- Family and Patient Care in Intensive Care Units
- Child and Adolescent Psychosocial and Emotional Development
- Skin Protection and Aging
- Maternal Mental Health During Pregnancy and Postpartum
- Health Systems, Economic Evaluations, Quality of Life
- COVID-19 and Mental Health
- Congenital Diaphragmatic Hernia Studies
- Cardiac pacing and defibrillation studies
- Coronary Artery Anomalies
- Cerebral Palsy and Movement Disorders
- Tracheal and airway disorders
- Prenatal Screening and Diagnostics
- Mechanical Circulatory Support Devices
Cincinnati Children's Hospital Medical Center
2020-2025
University of Cincinnati
2020-2025
University of Cincinnati Medical Center
2020-2025
Sydney Children’s Hospitals Network
2016-2024
Australian Centre for Heart Health
2024
Children's Center
2020-2023
UNSW Sydney
2011-2020
Boston Children's Hospital
2013-2020
Harvard University
2019-2020
Children's Hospital at Westmead
2010-2020
Purpose People with a history of melanoma commonly report fear cancer recurrence (FCR), yet psychologic support is not routinely offered as part ongoing care. This randomized controlled trial examined the efficacy psychoeducational intervention to reduce FCR and improve adjustment in this patient group compared usual Methods The comprised newly developed resource three telephone-based psychotherapeutic sessions over 1-month period timed accordance dermatologic appointments. Participants were...
development and implementation of effective family-based psychosocial intervention treatment strategies during COVID-19 will require a detailed understanding how the virus has impacted lives families.written reports on life impacts for parents (n = 56) their children 43), questionnaire assessing parent positive negative affect, were collected between April May 2020. An inductive approach was used to identify themes in written reports, followed by statistical analysis explore associations...
The incidence of melanoma continues to increase in many countries, and primary prevention includes avoidance sunburn as well adequate sun protection behavior. aim this study was examine the prevalence self-reported behaviors users Internet, identify demographic, clinical, attitudinal/motivational correlates behaviors.Self-report data were gathered on behalf GenoMEL consortium using an online survey available 10 different languages, 8,178 individuals successfully completed at least 80% items,...
This cross-sectional study assesses psychological functioning, including prolonged grief and posttraumatic stress symptoms, identifies factors that correlate with adverse outcomes after the sudden cardiac death of a young relative.
Abstract Background Spinal muscular atrophy (SMA) is a neurodegenerative disease that has substantial and multifaceted burden on affected adults. While advances in supportive care therapies are rapidly reshaping the therapeutic environment, these efforts have largely centered pediatric populations. Understanding natural history, pathways, patient-reported outcomes associated with SMA adulthood critical to advancing health policy, practice research across spectrum. The aim of this study was...
Adverse childhood and adult experiences can affect health outcomes throughout life across generations. The perinatal period offers a critical opportunity for obstetric clinicians to partner with patients provide support improve outcomes. This article draws on stakeholder input, expert opinion, available evidence recommendations clinicians' inquiry about response pregnant patients' past present adversity trauma during prenatal care encounters. Trauma-informed is universal intervention that...
The aim of the present paper was to describe and evaluate many measurement scales currently used in genetic counseling outcomes research. A team three researchers reviewed available literature selected a variety validated instruments suitable for outcomes. There are numerous assess each following among counselees: satisfaction with counseling; knowledge; decision-making; psychological adjustment; coping; perceived personal control; perceptions disease risk; family communication about risk....
<h3>Objectives</h3> Spinal muscular atrophy (SMA) has profound implications for patients and families. The aim of the present study was to gain insights into effects caring a child with SMA on costs incurred by families from carer perspectives identify gaps in provision care, inform public policy cost-effectiveness analyses. <h3>Design</h3> Interpretive phenomenological analysis guided delivery semi-structured interviews undertaken explore financial, opportunity psychosocial associated...