- Down syndrome and intellectual disability research
- Chronic Disease Management Strategies
- Family and Disability Support Research
- Cerebral Palsy and Movement Disorders
- Elder Abuse and Neglect
- Assistive Technology in Communication and Mobility
- Healthcare innovation and challenges
- Adolescent and Pediatric Healthcare
- Autism Spectrum Disorder Research
- Balance, Gait, and Falls Prevention
- Emergency and Acute Care Studies
- Genetics and Neurodevelopmental Disorders
- COVID-19 Clinical Research Studies
- Palliative Care and End-of-Life Issues
- Intergenerational Family Dynamics and Caregiving
- Suicide and Self-Harm Studies
- Pelvic floor disorders treatments
- Ophthalmology and Visual Impairment Studies
- Family Support in Illness
- Congenital gastrointestinal and neural anomalies
- Ophthalmology and Visual Health Research
- Urinary Tract Infections Management
- Respiratory Support and Mechanisms
- Gun Ownership and Violence Research
- Aging, Health, and Disability
Glasgow Caledonian University
2011-2024
University of Florida
2021
Centre for Nursing Innovation
2008-2015
University of Glasgow
2005-2010
Royal Victoria Hospital
2007
University of Ulster
2007
Gartnavel General Hospital
2007
Stornoway Historical Society
2004
Abstract Introduction Aggressive behaviours can be disabling for adults with intellectual disabilities (ID), negative consequences the adult, their family and paid carers. It is surprising how little research has been conducted into epidemiology of these needs, given impact they have. This study investigates point prevalence, 2‐year incidence remission rates aggressive behaviour (physically aggressive, destructive verbally aggressive), it which factors are independently associated behaviour....
Self-injurious behaviour (SIB) is a serious condition, with implications for the person, their family and financial costs to state providing care. The previously reported prevalence of SIB has ranged from 1.7% 41%, or 1.7%-23.7% in community studies. There been little study remission rate, incidence not reported. be individually associated lower ability, autism communication impairments, but given inter-relationships between these three factors, it known whether they are independently SIB....
While there is considerable literature on adults with Down syndrome who have dementia, little published the epidemiology of other types mental ill-health in this population.Longitudinal cohort study received detailed psychiatric assessment (n = 186 at first time point; n 134 second point, 2 years later).The prevalence for 16 and over population was 5.9 per 10 000 general population. Point any type, excluding specific phobias, 23.7% by clinical, 19.9% Diagnostic Criteria Psychiatric Disorders...
Injuries are among the leading causes of death and disability in world a major public health concern. Falls common cause. Young persons with intellectual disabilities (ID) have higher rate different pattern injuries than general population, but little is known regarding adults.The aim this study was to determine incidence types experienced by community-based cohort adults ID (n = 511) 12-month period. Face-to-face interviews were conducted participants 2 years after they had first been...
Background The point prevalence of mental ill-health among adults with intellectual disabilities is 40.9%, but its incidence unknown. Aims To determine the and possible predictors ill-health. Method Prospective cohort study to measure in mild profound disabilities. Results Cohort retention was 70% (n =651). 2-year 16.3% (12.6% excluding problem behaviours, 4.6% for behaviours) standardised ratio 1.87 (95%CI1.51 2.28). Factors related incident have some similarities those general population,...
Abstract Background People with intellectual disabilities (IDs) have a higher level of health needs, which is unmet, compared the general population. Health screening can detect unmet but it unknown whether effects beneficial outcomes in longer term. IDs are reliant on management by proxy and there many potential access barriers that may prevent needs identified at from subsequently being met. This study aims to determine gains be detected 1 year after programme specific adults IDs. Methods...
Background There are no previous studies of the prevalence and incidence mental ill‐health in adults with profound intellectual disabilities. Method In this population‐based prospective cohort study, disabilities underwent psychiatric assessment ( n = 184), further after 2 years 131). Results Point was 52.2% by clinical, 45.1% Diagnostic Criteria for Psychiatric Disorders use Adults Learning Disabilities (DC‐LD), 10.9% ICD‐10 Classification Mental Behavioural Research (1993) (DCR‐ICD‐10)...
Background Lack of regular physical activity is globally one the most significant risks to health. The main aims this study were describe types and levels undertaken by adults with intellectual disabilities, investigate factors predicting low activity. Materials Methods Interviews conducted a community‐based sample disabilities ( n = 433) at two time points. Data hypothesized be predictive collected 1. Descriptive data on frequency intensity, actual level participation in activities 2....
Primary health care teams have an important part to play in addressing the inequalities and high levels of unmet needs experienced by people with intellectual disabilities (ID). Practice nurses expanding role within primary teams. However, no previous studies measured their attitudes, knowledge, training needs, self-efficacy work ID.All practice working a defined area were identified. A purpose-designed questionnaire measure nurse was developed piloted. All then invited participate. Data...
Abstract Background People with intellectual disabilities (IDs) experience significant health inequalities compared the general population. The barriers people IDs in accessing services contribute to these inequalities. Professionals’ unmet training needs are an important barrier appropriate meet their needs. Method A three group, pre‐ and post‐intervention design was used test hypothesis that a intervention for primary care professionals would increase knowledge self‐efficacy of...
Abstract Background Illness and death are part of life for everyone, including people with intellectual disabilities. This study investigated the extent to which staff communicate about disability facing terminal illness or bereavement. Method Staff who support in UK ( n = 690) completed an electronic survey. Detailed data were obtained from where a client had died past 12 months 111), was terminally ill 41) been bereaved 200). Analysis included descriptive chi‐squared statistics. Results...
High rates of health needs among adults with intellectual disabilities flag the need for information about economic consequences strategies to identify and address unmet needs. Health-check interventions are one such strategy, have been demonstrated effect gains over following 12-month period. However, little is known their effects on service use costs, hence how affordable are.We examined patterns costs a period 50 adult participants who received health-check intervention individually...
Abstract Background Physical decline and high rates of inactivity lead to an increased risk falling in the intellectual disability (ID) population. It is important therefore develop interventions prevent falls valid reliable assessment tools, which are suitable for use with people ID. Targeting most fall factors such as strength, balance gait measurement important, yet there a paucity previous research on testing feasibility reliability assessments Aims The aims this study (i) describe...
Background Lack of regular physical activity is a significant risk to health. The aim this study was objectively measure the levels and patterns adults with intellectual disabilities, inform design studies aimed at increasing health in population. Materials Methods Interviews were conducted 62 community-based mild moderate disabilities start end 7-day period activity/inactivity measurement using an monitor. Results Forty-one (66%) participants wore monitor least 5 days. Of these, only 11...
Introduction: People with learning disabilities experience higher rates of injury compared to the general population, but little is known about circumstances and perceived impact these injuries on people themselves. Method: Content analysis was conducted from interviews 113 adults who had at least one in a 12-month period. Qualitative were ten (and their carers where appropriate) experienced serious or frequent falls without Findings: The most commonly reported contributory factors for...
Between 26% and 52% of adults with intellectual disability experience urinary incontinence (UI). Little is known about the implications tract infections (UTIs) for this group. The aim was to screen UTIs in a sample UI.
Background People with intellectual disabilities experience high rates of falls. Balance and gait problems are common in people disabilities, increasing the likelihood falls; thus, tailored exercise interventions to improve balance recommended. The present authors set up a physiotherapy‐led falls pathway service ( FPS ) for clients promote prevent Method Fifty were referred an 18‐month period, 35 (70%) prescribed 27 (54%) completed programme. was evaluated using following outcome measures:...
Abstract Background Adults with intellectual disabilities ( IDs ) experience a higher incidence of injury, compared the general population. The aim this study was to investigate provision aids and adaptations, residential service providers' individual risk assessments training in these, injury incident recording reporting procedures, relation prevention. Method Interviews were conducted community‐based cohort adults n = 511) who live G reater lasgow, S cotland, UK their key carer 446). They...
One of the established principles in selection patients for mitral valvotomy is that symptoms must be disabling enough to warrant risks surgery. In practice this generally taken mean there at least moderate dyspnoea before operation recommended. paper we present evidence stenosis may become serious and potentially lethal without causing any definite symptoms.
Purpose The purpose of this paper is to provide a narrative review what currently known about the high rates falls, and fall injuries, which are experienced by people with learning disabilities (LDs) throughout their lives. Design/methodology/approach Narrative review. Current evidence summarised as key points recommendations for practitioners researchers. Findings People LDs experience similar falls older adults in wider population, but lives, or at an earlier age. Originality/value Key...
Abstract Background Poor oral health is largely preventable. Prevention includes toothbrushing and regular dental checks. Oral has important consequences for general nutrition, chewing, communication, wider systemic disease, self‐confidence participation in society. This study investigated the prevalence of edentulousness (no natural teeth) adults with intellectual disabilities (IDs) compared population associated factors. Methods An adult cohort IDs residing Greater Glasgow Clyde, Scotland,...
Background Providers of supported living services to adults with intellectual disabilities ( ID s) in the United Kingdom have procedures place monitor injuries; this provides opportunity learn about injuries being reported and recorded. The aim was determine incidence, causes types experienced by 593 who live paid support a 12‐month period. Method Injury data, collected via standard electronic injury monitoring system, were compared data for matched sample general population same year....
Adults with intellectual disabilities (IDs) experience high rates of falls and have gait or balance issues which contribute to falls. Lycra splinting garments (LSGs) potential improve balance, but they never before been tested adults IDs who fall due issues. The aim this study was test in IDs, the feasibility using LSGs movement function reduce falls, whilst also exploring usability likely compliance.A convenience sample nine wore tailored over a 6-week assessment period. Laboratory-based...