A5010069727- Burn Injury Management and Outcomes
- Injury Epidemiology and Prevention
- Wound Healing and Treatments
- Disaster Response and Management
- Climate Change and Health Impacts
- Musculoskeletal pain and rehabilitation
- Traumatic Brain Injury Research
- Palliative Care and End-of-Life Issues
- Fire dynamics and safety research
- Optimism, Hope, and Well-being
- Healthcare Policy and Management
- Intimate Partner and Family Violence
- Intensive Care Unit Cognitive Disorders
- Youth Education and Societal Dynamics
- Mental Health and Patient Involvement
- Family and Patient Care in Intensive Care Units
- Posttraumatic Stress Disorder Research
- Criminal Justice and Corrections Analysis
- Digital Mental Health Interventions
- Homelessness and Social Issues
- Agriculture and Farm Safety
- Resilience and Mental Health
Phoenix Society for Burn Survivors
2016-2025
Spaulding Rehabilitation Hospital
2018-2023
Harvard University
2018-2023
Boston University
2018-2023
Massachusetts General Hospital
2018-2023
Johns Hopkins University
2002-2022
Shriners Hospitals for Children - Boston
2021
The University of Texas Southwestern Medical Center
2019
Southwestern Medical Center
2019
University of Washington
2018
Abstract Introduction Adverse sequelae due to burn injury may be addressed by resources provided healthcare institutions, however, survivors commonly report a lack of and assistance after hospitalization. Therefore, the aim this study is identify categorize institutions assist in their post-discharge transition aftercare phase recovery. Methods Burn providers were recruited nationally participate document study. Selected representatives data on institutions’ implementation strategies....
Many burn survivors experience social challenges throughout their recovery. Measuring the impact of a injury is important to identify opportunities for interventions. The aim this study develop pool items addressing injuries in adults create self-reported computerized adaptive test based on item response theory. authors conducted comprehensive literature review preexisting other measures and used data from focus groups new items. classified using guiding conceptual framework participation....
Social interactions and activities are key components of social recovery following burn injuries. The objective this study is to determine the predictors these areas recovery. This provides a secondary analysis cross-sectional survey adult survivors. Life Impact Burn Recovery Evaluation-192 was administered 601 survivors for field-testing Evaluation Profile. Survivors aged 18 years older with injuries ≥5% total BSA or burns critical (hands, feet, face, genitals) were eligible participate....
Burn injury can be debilitating and affect survivors' quality of life in a profound fashion. may also lead to serious psychosocial challenges that have not been adequately studied addressed. Specifically, there has limited research into the associations burn on community reintegration based gender. This work analyzed data from 601 survivors who completed field testing new measure social participation for survivors, Life Impact Recovery Evaluation (LIBRE) Profile. Differences item responses...
The burn survivor's perspective is critical in helping focus the priorities for research during next 10 years. goal of medical science to improve outcomes and lives those we serve. As individuals who have experienced a injury, survivors can provide an important unique perspective. There been numerous advances care and, as was discussed first 2 days this State Science conference, there lot work yet be done. Each us has tremendous respect gratitude toward team, following comments are made with...
The Life Impact Burn Recovery Evaluation (LIBRE) Profile is a patient-reported outcome measure developed to assess social participation in adult burn survivors. This study identified numeric score cut-points that define different levels of ability and described each level. An expert panel distinguish for the six LIBRE domains. Methods employed an iterative, modified-Delphi approach, bookmarking review calibrated item banks. Analyses (using calibration sample data repeated validation sample)...
Social and emotional recovery from burn injury is a complex process impacted by both clinical social factors. Because level of education (LOE) has been correlated to overall health, health outcomes, life expectancy, we questioned whether LOE might be associated with successful after injury. The Life Impact Burn Recovery Evaluation (LIBRE) data set served as novel tool explore this question. LIBRE project collaborative effort designed provide yardstick for reintegration among survivors. After...
The State of the Science (SOS) meeting included burn survivor perspective in relation to community reintegration and future research recommendations. Phoenix Society for Burn Survivors (PSBS), a national organization largest support with commitment work survivors, their families, develop programs services improve lives advocate needs, shared summary priorities survivors families involved progress noted since 2006 SOS regarding long-term quality life reintegration. Consumers' goals from...
Abstract Burn survivors are involved in burn research, but typically the role of research subject. We believe that outcomes and impact can be improved by engaging as collaborators planning, implementation, dissemination research. The goal this work was to produce first agenda generated prioritized other stakeholders from community. A series structured focus groups covering 5 topics (Patient Family Education, Aftercare, Navigating Healthcare System, Recovery: Physical Psychosocial, Barriers...
Abstract Introduction Social rehabilitation is a critical step in the recovery process post burn injury, yet there limited published data on topic. The LIBRE Profile was developed as specific instrument to examine social participation outcomes across six domains. objective of this study use measure and explore trajectories each domain. Methods Data from Journey Study analyzed, utilizing both Computer Adaptive Test fixed short forms. Demographic clinical characteristics included age, gender,...