A5101410560- Burn Injury Management and Outcomes
- Injury Epidemiology and Prevention
- Autism Spectrum Disorder Research
- Traumatic Brain Injury Research
- Family and Disability Support Research
- Inflammatory Bowel Disease
- Child Nutrition and Feeding Issues
- Wound Healing and Treatments
- Microscopic Colitis
- Trauma and Emergency Care Studies
- COVID-19 Clinical Research Studies
- COVID-19 and healthcare impacts
- Child and Adolescent Health
- Traffic and Road Safety
- Tuberculosis Research and Epidemiology
- Child Development and Digital Technology
- Posttraumatic Stress Disorder Research
- Pancreatitis Pathology and Treatment
- Climate Change and Health Impacts
- Infant Development and Preterm Care
- Anatomy and Medical Technology
- Resilience and Mental Health
- Computer Graphics and Visualization Techniques
- Immunodeficiency and Autoimmune Disorders
- Diverse Approaches in Healthcare and Education Studies
Harvard University
2018-2023
Harvard Pilgrim Health Care
2022-2023
University of Washington
2019-2022
Spaulding Rehabilitation Hospital
2018-2022
The University of Texas Southwestern Medical Center
2020-2022
Shriners Hospitals for Children - Boston
2019-2022
Boston University
2019-2022
Massachusetts General Hospital
1995-2022
The University of Texas Medical Branch at Galveston
2020-2022
Harborview Injury Prevention and Research Center
2022
BACKGROUND: Current guidelines from the American Academy of Pediatrics recommend screening children for developmental problems by using a standardized tool and referring at-risk patients to early intervention (EI) or subspecialists. Adoption has been gradual, with research showing many still not being screened referred. METHODS: We analyzed Periodic Survey data 2002 (response rate = 58%; N 562), 2009 57%; 532), 2016 47%, 469). Surveys included items on pediatricians’ knowledge, attitudes,...
OBJECTIVE: Pediatric primary care providers (PCPs) caring for patients with autism spectrum disorder (ASD) often encounter irritability (vocal or motoric outbursts expressive of anger, frustration, distress) and problem behavior (directed acts aggression toward other people, self, property). The Autism Intervention Research Network on Physical Health Speaks Treatment charged a multidisciplinary workgroup developing practice pathway to assist PCPs in the evaluation treatment (I/PB). METHODS:...
People living with burn injury often face long-term physical and psychological sequelae associated their injuries. Few studies have examined the impacts of injuries on health function, life satisfaction, community integration beyond 5 years postinjury. The purpose this study was to examine these outcomes up 20 after injury.Data from Burn Model System National Longitudinal Database (1993-2020) were analyzed. Patient-reported outcome measures collected at discharge (preinjury status recall)...
INTRODUCTION: Many patients with Crohn's disease (CD) lose response or become intolerant to antitumor necrosis factor (TNF) therapy and subsequently switch out of class. We compared the effectiveness safety ustekinumab vedolizumab in a large, geographically diverse US population TNF-experienced CD. METHODS: conducted retrospective cohort study using longitudinal claims data from large insurer (Anthem, Inc.). identified CD initiating anti-TNF treatment prior 6 months. Our primary outcome was...
Over 10 years, the Autism Intervention Research Network on Physical Health (AIR-P) and Speaks Treatment (ATN) have collaborated to produce much of material presented in this supplement been pioneers bringing attention medical needs children adolescents with autism spectrum disorders (ASDs) related conditions. Whereas, until recently, complaints (eg, abdominal pain, poor sleep, or disruptive behaviors) were typically considered part disorder therefore not requiring specific attention, today...
Abstract Participant attrition in longitudinal studies can lead to substantial bias study results, especially when is nonrandom. A previous of the Burn Model System (BMS) database prior 2002 identified participant and study-related factors related attrition. The purpose current was examine changes rates BMS since revisit associated with Individuals 18 years older enrolled between 2018 were included this study. Stepwise logistic regression models significantly at 6, 12, 24 months postburn...
Abstract Depression and posttraumatic stress (DPTS) are common psychiatric comorbidities following burn injury. The purpose of this study was to develop an admission scoring system that assesses the risk development depression or symptoms in population. This is a retrospective review prospectively collected Burn Model System National Database. Adult survivors enrolled from 2014 2018 (n = 486) were included. primary outcome presence DPTS at 6, 12, 24 months postinjury. Logistic regression...
Introduction Inhalation injuries carry significant acute care burden including prolonged ventilator days and length of stay. However, few studies have examined post-acute outcomes inhalation injury survivors. This study compares the long-term burn survivors with without injury. Methods Data collected by Burn Model System National Database from 1993 to 2019 were analyzed. Demographic clinical characteristics for adult examined. Outcomes included employment status, Short Form-12/Veterans...
The Life Impact Burn Recovery Evaluation (LIBRE) Profile is a patient-reported outcome measure developed to assess social participation in adult burn survivors. This study identified numeric score cut-points that define different levels of ability and described each level. An expert panel distinguish for the six LIBRE domains. Methods employed an iterative, modified-Delphi approach, bookmarking review calibrated item banks. Analyses (using calibration sample data repeated validation sample)...
Immunosuppressed individuals are at higher risk for COVID-19 complications, yet data in patients with inflammatory bowel disease (IBD) limited. We evaluated the of COVID-19- severe sequelae by medication utilization a large cohort IBD.
Representativeness of research populations impacts the ability to extrapolate findings. The Burn Model System (BMS) National Database is one largest prospective, longitudinal, multi-center repositories collecting patient-reported outcomes after burn injury.To assess if BMS representative population that eligible participate.Data on adult survivors who were for from 2015 2019 analyzed.Not applicable.Burn treated at centers meeting eligibility criteria Database. Eligibility database based size...
Abstract While disparities in healthcare outcomes and services for vulnerable populations have been documented, the extent to which burn demonstrate long-term care is relatively underexplored. This study’s goal was assess differences occupational or physical therapy (OT/PT) psychological service use after injury populations. Data from Burn Model System National Database (2006–2015) were analyzed. The group included participants one more of these categories: 65 years age older, nonwhite, no...
Abstract Background Antitumor necrosis factor (anti-TNF) inhibitors are first-line treatment among patients with ulcerative colitis (UC). With time, tend to lose response or become intolerant, necessitating switching small cell biologics such as tofacitinib vedolizumab. In this real-world study of a large, geographically diverse US population TNF-experienced UC, we evaluated the effectiveness and safety newly initiating vs Methods We conducted cohort using secondary data from large insurer...
Burns affecting the head and neck (H&N) region may lead to significant changes in appearance. It is postulated that such injuries have a negative impact on patients’ social functioning, quality of life, physical health, satisfaction with appearance, however, there has been little investigation these effects using patient reported outcome measures. This study evaluates long-term outcomes patients H&N burns compared those other areas. Data from Burn Model System National Database collected...
Abstract Introduction Research participants often receive little to no feedback after participating in a research study. We sought better understand what information burn survivors might want based on their participation research, and formats be most useful. Participant preferences will used develop summary reports responses survey questions can inform patient dissemination clinics. Methods Adult caregivers/partners participated focus groups. Multiple of health domains, such as pain,...