A5064802797- Cystic Fibrosis Research Advances
- Tracheal and airway disorders
- Patient-Provider Communication in Healthcare
- Child Nutrition and Feeding Issues
- Ethics in medical practice
- Respiratory viral infections research
- Bacterial Infections and Vaccines
- Mobile Health and mHealth Applications
- Pancreatic function and diabetes
- Vascular Anomalies and Treatments
- Gastrointestinal motility and disorders
- Diabetes Management and Research
- Pneumonia and Respiratory Infections
- Biomedical and Engineering Education
- Eosinophilic Esophagitis
- Pediatric health and respiratory diseases
- Ethics in Clinical Research
Cystic Fibrosis Foundation
2018-2024
BackgroundPeople with cystic fibrosis (PwCF) have experienced substantial improvements in health following use of transmembrane conductance regulator (CFTR) modulator therapies. However, less is known about how therapies impact well-being.MethodsWe used a cross-sectional observational study to identify relationships between CFTR therapies, health-related quality life (HRQoL), and well-being. Adult PwCF caregivers children CF completed the Wellness Modulator Era (Well-ME) survey June 22 July...
Introduction: Bacterial meningitis is a serious and potentially fatal disease that has represented significant challenge to medicine since its identification in the 19th century. Despite advances antimicrobial treatment, it remains major cause of morbidity mortality worldwide. This review aims update current perspectives on diagnosis management bacterial meningitis, focusing pathogenesis, clinical manifestations, diagnostic methods, therapeutic strategies. Methods: A search for information...
Background: Diabetes technologies are associated with improvements in glycemic control and health-related quality of life among people type 1 diabetes (T1D). Use perceptions continuous glucose monitors (CGM) insulin pumps within the cystic fibrosis (CF) community have not been well studied. Methods: A 30-item online survey addressing fibrosis-related (CFRD) diagnosis, CGM pump use, was sent to a CF group, including (pwCF) parents children (cwCF). Results: The response rate 11% (n = 120; 83...
Abstract Introduction People with cystic fibrosis (CF) are living longer, thus complications associated age, such as hemoptysis, increasing. The Institute of Medicine has emphasized the importance patient‐centeredness. Although guidelines about hemoptysis in people CF available, these focus on management complication and not patient perspective. Objective We sought to understand from point view those who have experienced it. Methods fielded an 11‐question survey adults asked had respond....