A5069038844- Health Systems, Economic Evaluations, Quality of Life
- Economic and Environmental Valuation
- Amyotrophic Lateral Sclerosis Research
- Cerebral Palsy and Movement Disorders
- Behavioral Health and Interventions
- Organ Donation and Transplantation
- Fibromyalgia and Chronic Fatigue Syndrome Research
- Neurogenetic and Muscular Disorders Research
- Renal Transplantation Outcomes and Treatments
- Social Media in Health Education
- Orthopedic Surgery and Rehabilitation
- Pharmaceutical industry and healthcare
- Patient-Provider Communication in Healthcare
- Consumer Attitudes and Food Labeling
- Musicians’ Health and Performance
- Pharmaceutical Economics and Policy
- Delphi Technique in Research
- Cystic Fibrosis Research Advances
- Mobile Health and mHealth Applications
- Telemedicine and Telehealth Implementation
- Mental Health and Patient Involvement
- Patient Satisfaction in Healthcare
- Usability and User Interface Design
- Musculoskeletal Disorders and Rehabilitation
- Health Policy Implementation Science
Temple University
2018-2025
Temple College
2020-2025
Thomas Jefferson University
2025
Public Health Department
2023
Porter Adventist Hospital
2022
Philadelphia University
2022
University of Southern California
2017-2018
Center for Policy Analysis
2018
Cystic Fibrosis Foundation
2018
National Health Council
2017
Best-worst scaling (BWS) is a theory-driven choice experiment used for the prioritization of finite number options. Within context prioritization, BWS also known as MaxDiff, object case, and Case 1. Now in numerous fields, we conducted transdisciplinary literature review all published applications focused on to compare norms development, design, administration, analysis, quality across fields. We identified 526 publications before 2023 fields health (n = 195), agriculture 163), environment...
BackgroundThere is growing agreement that regulators performing benefit–risk evaluations should take patients' and caregivers' preferences into consideration. The Patient-Focused Drug Development Initiative at the US Food Administration offers patients caregivers an enhanced opportunity to contribute regulatory processes by offering direct testimonials. This process may be advanced providing scientific evidence regarding treatment through engagement of a broad community...
Clinical care for people living with amyotrophic lateral sclerosis (PLWALS) is directed at slowing disease progression and symptom management. The American Academy of Neurology recommends a multidisciplinary approach to providing ALS health because observational studies show that clinics (MDCs) extend survival improve quality life. However, challenging financial proposition. To understand how MDCs are financed, we surveyed across the Northeast Consortium network in United States. We clinic...
ABSTRACT Introduction This study quantified caregiver and patient preferences for a therapeutic agent with demonstrated pulmonary benefits Duchenne muscular dystrophy (DMD). Caregiver differences were also explored. Methods A best–worst scaling survey (BWS) was administered to caregivers patients. Across 9 profiles, respondents selected the best worst attributes. Utility scores estimated using mixed logistic regression. Results Respondents indicated greatest preference therapies that...
Duchenne muscular dystrophy (DMD) is a progressive, fatal pediatric disorder with significant burden on parents. Assessing disease impact can inform clinical interventions. Best-worst scaling (BWS) was used to elicit parental priorities among 16 short-term, DMD-related worries identified through community engagement. Respondents viewed subsets of worries, using balanced, incomplete block design, and the most least worrying items. Priorities were assessed best-worst scores (spanning +1 -1)...
Health preference research (HPR) is being increasingly conducted to better understand patient preferences for medical decisions. However, patients vary in their desire play an active role Until now, few studies have considered patients' preferred roles decision making. In this opinion paper, we advocate HPR researchers assess and account studies, increase the relevance of work shared We provide recommendations on how can be elicited integrated with health preferences: (1) formative prior a...
The most effective use of electronic medical records (EMRs) will result from wide-scale adoption and appropriate the technology—two factors that rely heavily on a system’s usability. We conducted qualitative quantitative usability assessment an EMR developed specifically for treating HIV/AIDS patient population. purpose this study was to inform developers how prioritize resources their impending software rebuild initiative evaluate dual methodology consisting both components. results...
Proximal focal femoral deficiency is a congenital transverse in which the femur globally smaller with typical proximal deformity at hip that may include distal involvement of knees, leg, and feet. Congenital (CFD) describes broader spectrum longitudinal inclusive deficiency. CFD also lateral hypoplasia, knee cruciate ligament deficiency, rotational instability, patellar dislocation, fibular hemimelia, ray absence, contralateral limb involvement. Treatment intends to maximize function by...
Background: Project ReD CHiP (reducing disparities and controlling hypertension in primary care) care management was a clinic-based intervention that aimed to improve blood pressure control through improved coordination provide self-management support patients from racially socioeconomically. Objective: To evaluate the cost-effectiveness of versus standard treat diverse communities. Research Design: Microsimulation model health sector perspective over 15 years. We used published literature...
Purpose. Assess patient preferences for aspects of breast cancer treatments to evaluate and inform the usual assumptions in scoring rubrics value frameworks. Methods. A discrete-choice experiment (DCE) was designed implemented collect quantitative evidence on from 100 adult female patients with a self-reported physician diagnosis stage 3 or 4 cancer. Respondents were asked some treatment currently considered Respondents' choices analyzed using logit-based regression models that produced...
Innovation remains an understudied resource within health care. Furthermore, the goals of US care reform make innovation vitally important, while time and limitations characteristic new strategies for both necessary potentially highly meaningful. The purpose this study was to examine in various industries draw lessons improving This qualitative began with literature research that provided a framework discussion identified recurrent challenge innovation: balancing freedom be creative need...