Lieke van Heumen

ORCID: 0000-0001-9830-9011
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About
Contact & Profiles
Research Areas
  • Healthcare innovation and challenges
  • Retirement, Disability, and Employment
  • Aging and Gerontology Research
  • Family and Disability Support Research
  • Disability Rights and Representation
  • Disability Education and Employment
  • Geriatric Care and Nursing Homes
  • Down syndrome and intellectual disability research
  • Migration, Aging, and Tourism Studies
  • Community Development and Social Impact
  • Adolescent and Pediatric Healthcare
  • Technology Use by Older Adults
  • Global Health Workforce Issues
  • Employment and Welfare Studies
  • HIV-related health complications and treatments
  • Participatory Visual Research Methods
  • Art Therapy and Mental Health
  • Intergenerational Family Dynamics and Caregiving
  • Aging, Health, and Disability
  • Older Adults Driving Studies
  • demographic modeling and climate adaptation
  • Entrepreneurship Studies and Influences
  • Chronic Disease Management Strategies
  • Mental Health and Patient Involvement
  • Autism Spectrum Disorder Research

University of Illinois Chicago
2014-2025

Roosevelt University
2017-2024

University of Illinois Urbana-Champaign
2015

Abstract Background and objectives Research has yet to seek a more complete understanding of how people aging with intellectual disabilities experience their social relations, earlier life experiences impact the development relations. This study investigated older adults relations from course perspective. Design Methods A process paired recruitment generated sample 12 age 50 over at least one key support person each. Data collection consisted in-depth qualitative history interviews...

10.1093/geront/gnaf065 article EN The Gerontologist 2025-02-17

To build capacity among people with intellectual and developmental disabilities to become co-researchers they need the opportunity learn about research.

10.1111/jar.13200 article EN cc-by-nc-nd Journal of Applied Research in Intellectual Disabilities 2024-02-22

The literature on inclusive research has established its relationship with self-advocacy for people intellectual disabilities. Self-advocacy been described as both a requirement and result of research. Additionally, the process becoming an researcher can be seen As continues to become more prominent, disabilities researchers, we need continue consider this fundamental how inform support each other. In paper, first discuss history what researchers have shared about between We then present...

10.3390/socsci13030134 article EN cc-by Social Sciences 2024-02-28

Background In this study we evaluated the long-term impact of a project in which families were individually supported realisation personal future plans city Almere, Netherlands (2004–2006).Method We used fourth-generation evaluation principles. Data collection consisted semistructured interviews with family members and adults intellectual disability as well focus groups both groups. Photovoice was strategy to engage 4 young Down syndrome research. The results photovoice presented community...

10.3109/13668250.2016.1213797 article EN Journal of Intellectual & Developmental Disability 2016-08-07

The study examined the differential experiences and outcomes for people with intellectual developmental disabilities their families receiving self-directed services based on type of personal support worker hired (parents, siblings, other relatives, friends, agency staff). sample consisted 372 participants in a waiver program who used assistance services. Results indicated that caregiver's satisfaction worker, self-efficacy managing workers, mental health varied significantly hired. Also,...

10.1352/1944-7558-117.6.464 article EN American Journal on Intellectual and Developmental Disabilities 2012-11-01

The development and practice of inclusive research with people intellectual disabilities is complex, revealing challenges lessons that inform innovative novel methodological approaches. In Africa, still lags for various reasons. First, due to societal misconceptions portray as unable self-advocate or lacking agency self-determination; second, a lack trained researchers ethics committees on practices. This paper critically reflects discusses the strategies methods used conduct an study in...

10.3390/socsci13020095 article EN cc-by Social Sciences 2024-02-02

A key feature of inclusive research is the accessibility procedures to meaningfully engage people with intellectual disabilities in processes. Creating accessible requires innovations methods traditionally used research. This paper describes how Lifeline Interview Method by Assink and Schroots was adapted implemented a study using life story better understand experiences older adults disabilities. Twelve over age 50 participated between two seven times interviews about their histories. The...

10.3390/socsci13020107 article EN cc-by Social Sciences 2024-02-08

The International Journal of Integrated Care (IJIC) is an online, open-access, peer-reviewed scientific journal that publishes original articles in the field integrated care on a continuous basis.IJIC has Impact Factor 5.120 (2020 JCR, received June 2021)The IJIC 20th Anniversary Issue was published 2021.

10.5334/ijic.1091 article EN cc-by International Journal of Integrated Care 2012-11-07

Inclusive research is an approach in which individuals with intellectual and/or developmental disabilities (IDD) are included as co-researchers throughout the processes, and has demonstrated benefits for people IDD. Because inclusive still not common within disability research, it important teams to provide reflections lessons learned encourage future approaches. This paper provides case studies of two projects completed collaboration adults IDD using Photovoice that can increase access...

10.33596/coll.45 article EN cc-by Collaborations A Journal of Community-Based Research and Practice 2020-01-01

Purpose: This paper aims to report process findings of two online inclusive research projects with people intellectual and developmental disabilities (IDD). It includes a discussion the potential benefits barriers its impact on future research. Design/methodology/approach: Two researchers describe transition their from in-person formats highlight how they operationalized principles throughout these transitions. Findings: Potential include enabling participation participants IDD when methods...

10.1108/jet-12-2020-0051 article EN Journal of Enabling Technologies 2021-05-25

Evidence-based supports and interventions are needed to address the unique needs of individuals with intellectual disability (ID) as they age. This research evaluates impact an updated version evidence-based person-centered planning curriculum for older adults ID (Heller et al., 1999, 2000). Revisions reflect new knowledge on ways support health wellness in this population. The researchers work closely a community partner build capacity future implementation person centered services. deliver...

10.1093/geroni/igy023.3196 article EN cc-by-nc-nd Innovation in Aging 2018-11-01

Abstract This presentation outlines future directions for research on aging with intellectual and developmental disabilities (IDD) informed by positive psychology disability studies theory. Research IDD often focuses losses in functioning that come age ways to prevent such decline. When applying a lens the experience of focus shifts determinants emotions strength increasing meaningfulness life as one ages. A also relies assumption people can self-direct organize their lives, which is...

10.1093/geroni/igab046.867 article EN cc-by Innovation in Aging 2021-12-01

showed more impairment of their memory performance when confronted with negative age stereotypes (vs.control condition).In addition, results Experiment 2 (N = 55; 65-88 years) that older adults' perception threat vs. challenge also depend on beliefs about the nature aging as a fixed malleable process.We discuss ways to stimulate positive plasticity by changing essentialist aging.

10.1093/geront/gnv323.01 article EN The Gerontologist 2015-10-23

Abstract Influencing health policy change is a significant focus for scholars and clinicians in the aging field. Nevertheless, they seldom receive formal training on how to influence policymaking process effectively or translate their clinical research experiences inform policymakers best. Exposing can advance effectiveness as seek realize meaningful promote healthy of our population. This poster presentation focuses providing with strategies understand federal process. The addresses current...

10.1093/geroni/igaa057.342 article EN cc-by Innovation in Aging 2020-12-01

Abstract This presentation discusses amendments made to the Older Americans Act titles III, IV and V through most recent reauthorization. Title III reauthorizes programs, title programs VI programs. The reauthorizations each include a seven percent increase in fiscal year 2020 six per for next four years. New are an amendment that allows projects address traumatic brain injury among older adults be included grant improves existing transportation program multigenerational collaboration....

10.1093/geroni/igaa057.2520 article EN cc-by Innovation in Aging 2020-12-01
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