A5083258497- Childhood Cancer Survivors' Quality of Life
- Palliative Care and End-of-Life Issues
- Ethics and Legal Issues in Pediatric Healthcare
- Family Support in Illness
- Grief, Bereavement, and Mental Health
- Family and Patient Care in Intensive Care Units
- Family and Disability Support Research
- Migration, Health and Trauma
- Adolescent and Pediatric Healthcare
UNSW Sydney
2014-2024
Children’s Health Queensland Hospital and Health Service
2017-2023
Royal Children's Hospital
2014-2023
The University of Western Australia
2023
Sydney Children’s Hospitals Network
2023
Children's Hospital at Westmead
2023
Sydney Children's Hospital
2014-2023
Queensland Children’s Hospital
2018-2020
Collaborative Research Group
2018
Morbidity and mortality associated with bereavement is an important public health issue, yet economic resource investments to effectively implement sustain integrated services are sorely lacking at national global levels. Although support a component of palliative care provision, continuity for bereaved individuals often not standard practice in end-of-life contexts. In addition potentially provoking feelings abandonment, failure extend family-centred after patient's death can leave families...
Purpose: The Quality of Care Collaborative Australia (QuoCCA) provided pediatric palliative care education across with the aim improving quality services. was delivered through a collaboration six tertiary services, funding for Nurse Educators, Medical Fellows, National Allied Health Educator, and national project staff. Methods: Pre- post-education surveys were completed by participants immediately following education, confidence knowledge measured along nine domains related to child...
Background: Pediatric palliative care is an evolving specialty that aims to improve the lives of children with a life-limiting condition. As emerging specialty, there much be learned about service provision and expected outcomes can achieved. Additionally, quantification needs for pediatric complicated by uncertainty defining population requires care. Objectives: Our aim was define characteristics cared newly formed state-wide in Queensland, Australia, describe development over 24-month...
Background: Risk minimization in research with bereaved parents is important. However, little known about which methods balance the sensitivity required for participants and need generalizable results.Aim: To explore parental experiences of participating mixed method bereavement via a pilot study.Design: A convergent parallel design assessing parents' experience participation.Setting/participants: Eleven whose child was treated cancer at The Royal Children's Hospital, Brisbane completed...
This mixed method study explored parent and child characteristics that impact grief personal growth in parents (n = 119) after a dies from cancer Australia. Medical components of child's care including radiation treatment, referral to palliative care, location death had significant on levels grief. Parents' gender, religious affiliation, education level growth. further enhances our understanding the specific throughout treatment end life may influence their families' experience bereavement.
Demand for generalist health professional knowledge and skills in pediatric palliative care (PPC) is growing response to heightened recognition of the benefits a approach across neonatal, pediatric, adolescent young adult lifespan. This study investigates factors that enhanced PPC workforce capability education outcomes metropolitan regional areas through integration dedicated educator roles within specialist (SPPC) teams national project.Cross-sectional, prospective qualitative guided by...
Background: The greater proportion of children with a life-limiting condition (LLC) and their families want to remain at home as much possible. Building capability in paediatric palliative care (PPC) for generalist health social professionals nonmetropolitan regions through the Quality Care Collaborative Australia (QuoCCA) has improved access families, regardless where they live. Aim: To understand experience whose child received specialist PPC, ensure future service development is informed...
Abstract Background : Childhood dementias are a group of over 70 rare and ultra-rare paediatric conditions clinically characterised by enduring global decline in central nervous system function, associated with progressive loss developmentally acquired skills, quality life shortened expectancy. Traditional research, service development advocacy efforts have been fragmented due to focus on individual disorders, or groups classified specific mechanisms molecular pathogenesis. There significant...