A5070079669- Childhood Cancer Survivors' Quality of Life
- Family Support in Illness
- Palliative Care and End-of-Life Issues
- Adolescent and Pediatric Healthcare
- Acute Lymphoblastic Leukemia research
- Child and Adolescent Psychosocial and Emotional Development
- Family and Disability Support Research
- Ethics and Legal Issues in Pediatric Healthcare
- Early Childhood Education and Development
- Skin Protection and Aging
- Family and Patient Care in Intensive Care Units
- Patient-Provider Communication in Healthcare
- Cancer survivorship and care
- Cutaneous Melanoma Detection and Management
- Global Cancer Incidence and Screening
- BRCA gene mutations in cancer
- Infant Development and Preterm Care
- Health Systems, Economic Evaluations, Quality of Life
- Intergenerational Family Dynamics and Caregiving
- Economic and Financial Impacts of Cancer
- Neuroblastoma Research and Treatments
- Nasolacrimal Duct Obstruction Treatments
- Healthcare cost, quality, practices
- Neonatal Health and Biochemistry
- Cancer and Skin Lesions
UNSW Sydney
2015-2025
Sydney Children's Hospital
2014-2025
Bond University
2020
Children's Hospital at Westmead
2019
John Hunter Children's Hospital
2019
Royal Children's Hospital
2019
Monash Children’s Hospital
2019
Christchurch Hospital
2019
Children's Cancer Institute Australia
2016
Boston Children's Hospital
2011-2015
A cluster, stratified randomized design was used to evaluate the impact of universal, indicated, and combined universal plus indicated cognitive- behavioral approaches prevention depression among 13- 15-year-olds initially reporting elevated symptoms depression. None intervention differed significantly from a no-intervention condition or each other on changes in depressive symptoms, anxiety, externalizing problems, coping skills, social adjustment. All high-symptom students, irrespective...
Cancer diagnoses and treatment may have long-term effects on fertility. Semistructured interviews were administered to young cancer survivors (<20 years) their parents (n = 97). Fertility related concerns reported by 45 participants (46.4%). Themes included: distress regarding potential infertility; the effect of infertility future relationships, self-esteem, miscommunications/confusion about fertility status; access testing; preservation options. Parents also challenges how when it was...
For over two years, the global COVID-19 pandemic has forced major transformations on health, social, and educational systems, with concomitant impacts mental health. This study aimed to understand unique additional challenges faced by children chronic illness their families during era.Parents of receiving treatment for a within neurology, cancer, renal respiratory clinics Sydney Children's Hospital were invited participate. We used qualitative methodology, including semi-structured interview...
Purpose: To examine key factors related to adolescent cancer survivors' return school after treatment completion, which can be a time of complex transition. Patients and Methods: Seventy semi-structured interviews were conducted with 19 survivors (mean age 16.1 years), 21 mothers, 15 fathers, siblings from 22 Australian families. The conceptual framework Miles Huberman (1994) was employed analyze interview data emergent themes organized using the software package QSR NVivo 8.0. Results:...
Few studies have evaluated the impact of childhood cancer on parents' occupational/financial status. This study explored experiences posttreatment. Semistructured interviews were administered to 78 parents (44 mothers) survivors diagnosed in preceding 5 years. Transcripts organized into themes using QSR NVivo8. Parents reported familial, psychological, and practical factors affecting their ability return work. Prioritizing family, reinstigating career progression, negative workplace...
Starting or returning to school after intense medical treatment can be academically and socially challenging for childhood cancer survivors. This study aimed evaluate the (re)entry experience of children who had recently completed treatment. Forty-two semi-structured telephone interviews were conducted explore parents' perceptions their child's completing (23 mothers, 19 fathers, parent mean age 39.5 years; child 7.76 years). Interviews analysed using framework Miles Huberman emergent themes...
Young people recovering from cancer may lack adequate support post-treatment, yet little is known about the types of and information young Australians their families need. This study investigated adolescent/young adult survivors' families' perceptions care needs after completing treatment. Seventy semi-structured interviews were conducted with 19 survivors (mean age 16.1 years), 21 mothers, 15 fathers siblings. Interviews recorded, transcribed analysed using conceptual framework Miles...
Abstract Aim Childhood cancer survivors remain at risk of developing life‐altering and/or life‐threatening health conditions following the completion curative treatment. However, no uniform model care for childhood exists in Australia and New Zealand (ANZ). This study reports on current survivorship ANZ, highlighting challenges survivor long‐term follow‐up (LTFU) clinics face. Methods We conducted semistructured, telephone interviews with pediatric medical director clinical nurse consultant...
Abstract Purpose Few studies have investigated the health‐related quality of life (HRQoL) young childhood cancer survivors and their parents. This study describes parent child survivor HRQoL compared to population norms identifies factors influencing HRQoL. Methods We recruited parents who were currently <16 years, >5 years postdiagnosis. Parents reported on child's (Kidscreen‐10), own (EQ‐5D‐5L). rated resilience fear recurrence listed cancer‐related late effects. Results One hundred...
Abstract Background Childhood cancer survivors are vulnerable to long-term treatment-related health conditions, which can lead poor quality of life. Little data exist on the overall Australian and New Zealand childhood or survivors’ motivations for attending survivorship clinics. Methods This study administers a cross-sectional questionnaire ≥5 years from their primary diagnosis. We compared participant-reported number late effects by diagnosis, identified clinical (eg, treatment)...
ABSTRACT Introduction Lifelong follow‐up care for childhood cancer survivors (CCS) is recommended and ideally involves both medical psychosocial care. It important CCS their families to be adequately informed about what expect after treatment completion ensure they receive appropriate This study aimed describe patterns of access survivorship among a multi‐national sample, as well examine unmet information support needs, parents. Method An online survey, developed by pediatric psycho‐oncology...
We evaluated a survivorship program Engage, aimed at improving childhood cancer survivors' health-related self-efficacy and their quality of life (HRQoL). Engage provides (1) telehealth nurse-led health assessment, (2) remote multidisciplinary case review, (3) personalized recommendations care plan for survivors primary physician (PCP), (4) consultation to promote understanding the recommendations. recruited >5 years postdiagnosis any age who had not received cancer-related in past 24...