A5026537547- Childhood Cancer Survivors' Quality of Life
- Family Support in Illness
- Adolescent and Pediatric Healthcare
- Family and Disability Support Research
- Palliative Care and End-of-Life Issues
- Acute Lymphoblastic Leukemia research
- Cancer survivorship and care
- Reproductive Biology and Fertility
- Obesity, Physical Activity, Diet
- Food Security and Health in Diverse Populations
- Child and Adolescent Psychosocial and Emotional Development
- Global Health Workforce Issues
- Gestational Diabetes Research and Management
- Infant Development and Preterm Care
- Healthcare Policy and Management
- Family and Patient Care in Intensive Care Units
- Pharmaceutical Practices and Patient Outcomes
- Pediatric Pain Management Techniques
- Interprofessional Education and Collaboration
- Intergenerational Family Dynamics and Caregiving
- Systemic Sclerosis and Related Diseases
- Pregnancy and preeclampsia studies
- Ectopic Pregnancy Diagnosis and Management
- Male Reproductive Health Studies
- Digital Mental Health Interventions
UNSW Sydney
2014-2025
Sydney Children's Hospital
2014-2025
University of Nottingham
2017-2022
The University of Sydney
2015-2021
Children's Hospital at Westmead
2019
John Hunter Children's Hospital
2019
Royal Children's Hospital
2019
Monash Children’s Hospital
2019
Christchurch Hospital
2019
Children's Cancer Institute Australia
2016
Current evidence highlights the importance of oral health during pregnancy. However, little is known about pregnant women in Australia. The aim this study was to report status, knowledge and practices south-western Sydney.A cross-sectional survey 241 attending a large hospital Sydney.More than half (59.3%) reported dental problems pregnancy, less third (30.5%) saw dentist last six months, only 10% had received any information perinatal many (>50%) were unaware potential impact poor maternal...
Cancer in adolescents and young adults (AYAs) can interrupt important developmental milestones. Absence from school time lost work, together with the physical impacts of treatment on energy cognition, disrupt educational vocational goals. The purpose this paper is to report AYA cancer survivors' experiences reintegration into and/or work describe perceived changes their goals.Adolescents recruited 7 hospitals Australia, aged 15 26 years ≤24 months posttreatment, were interviewed using...
Cancer diagnoses and treatment may have long-term effects on fertility. Semistructured interviews were administered to young cancer survivors (<20 years) their parents (n = 97). Fertility related concerns reported by 45 participants (46.4%). Themes included: distress regarding potential infertility; the effect of infertility future relationships, self-esteem, miscommunications/confusion about fertility status; access testing; preservation options. Parents also challenges how when it was...
To assess the safety and effectiveness of manual vacuum aspiration for abortion in a primary care office setting.Retrospective chart audit.Private family practice office.A total 1769 consecutive women who obtained an this between January 1, 1993, December 31, 1995, whom 1677 medical charts were available review.Rate complete abortion, estimated blood loss, rate complications. Complications included early complications uterine perforation, cervical injury, hospitalization, late pelvic...
Few studies have evaluated the impact of childhood cancer on parents' occupational/financial status. This study explored experiences posttreatment. Semistructured interviews were administered to 78 parents (44 mothers) survivors diagnosed in preceding 5 years. Transcripts organized into themes using QSR NVivo8. Parents reported familial, psychological, and practical factors affecting their ability return work. Prioritizing family, reinstigating career progression, negative workplace...
Telehealth interventions offer a practical platform to support adolescent and young adult (AYA) cancer survivors' mental health needs after treatment, yet efficacy data are lacking. We evaluated an online, group-based, videoconferencing-delivered cognitive-behavioral therapy (CBT) intervention ('Recapture Life') in 3-arm randomized-controlled trial comparing Recapture Life with online peer-support group, waitlist control, the aim of testing its impact on quality life, emotional distress...
Abstract Background Childhood cancer survivors are vulnerable to long-term treatment-related health conditions, which can lead poor quality of life. Little data exist on the overall Australian and New Zealand childhood or survivors’ motivations for attending survivorship clinics. Methods This study administers a cross-sectional questionnaire ≥5 years from their primary diagnosis. We compared participant-reported number late effects by diagnosis, identified clinical (eg, treatment)...
Background As pediatric brain tumor survivors may experience cognitive decline post‐treatment, a neuropsychology assessment is often conducted. The evaluates the child's functioning and highlights potential challenges. Whilst reports provide recommendations for home school, how this translates in practice under researched. This study explored parent teacher understanding of reports, implementation rates their perceived effectiveness. Barriers to were also investigated. Procedure Twenty‐five...
This study examined the quality and satisfaction of sexual/romantic relationships adolescents/young adults (AYAs) who recently completed cancer treatment. AYAs between 16 26 years old (62.5% female) less than 24 months post-treatment were interviewed using Psychosocial Adjustment to Illness Scale (PAIS) interview. Of 43 participants, (37.2%) in a relationship at time interview; eight (50%) reported minor relationship/sexual difficulties. identified emotional support with their partner as...
The objectives of this study were to assess the feasibility and perceived academic/psychosocial outcomes a pilot program using videoconferencing facilities connect children with cancer their home school. Eight parents, three patients, five teachers ( n = 16) participated in semistructured interviews evaluating efficacy/feasibility program. Results analyzed qualitative framework Miles Huberman. Parents reported that provided family sense normalcy connection outside world (4/8), often boosting...
Abstract Objective For families under stress, positive grandparental relationships provide a valued 'safety net'. However, coping with family stressors can place heavy burden on older individuals who may be experiencing declining health/energy themselves. This mixed-methods study assessed the prevalence of distress in grandparents children with, and without, cancer, aiming to identify predictors quantify their barriers care. Methods Two hundred twenty-one [87 cancer group; 134 controls; mean...
<h3>Objective:</h3> To investigate whether the location and extent of CT hyperdense artery sign (HAS) at presentation affects response to IV alteplase in randomized controlled Third International Stroke Trial (IST-3). <h3>Methods:</h3> All prerandomization follow-up (24–48 hours) brain scans IST-3 were assessed for HAS presence, location, by masked raters. We grew, persisted, shrank, or disappeared follow-up, association with 6-month functional outcome, effect alteplase. is registered...
Psychological support services for adolescent and young adults (AYAs) with cancer are moving online increasingly peer based. It is unclear whether service delivery impacts critical therapeutic elements such as collaborative patient–therapist rapport group cohesion. AYA survivors (N = 39) participating in a six-week cognitive-behavioral therapy program—"Recapture Life"—rated their perception of alliance Participant-rated cohesion were high throughout the program, therapist-rated participant...
Adolescents and young adults (AYAs) diagnosed with cancer experience physical, cognitive, psychosocial effects from treatment that can negatively affect their ability to remain engaged in education or work through the long term. Disengagement have lasting implications for AYAs' financial independence, well-being, quality of life. Australian AYAs lack access adequate specialist support needs report a preference web-based they anywhere, own time. However, it remains unclear what resources...
Background: Reproductive complications for cancer survivors are identified as one of the top unmet needs in survivorship period. However, current models care do not routinely incorporate reproductive follow-up pediatric or adolescent patients. The Kids Cancer Centre has had a one-stop clinic that includes attendance gynecologist and fertility specialist last 12 years. Methodology: To inform future development our care, we reviewed provided over 12-year period, specifically reviewing...