A5071355382- Palliative Care and End-of-Life Issues
- Resilience and Mental Health
- Geriatric Care and Nursing Homes
- Intergenerational Family Dynamics and Caregiving
- Grief, Bereavement, and Mental Health
- Family and Patient Care in Intensive Care Units
- Family Caregiving in Mental Illness
- Dementia and Cognitive Impairment Research
- Family Support in Illness
- Aging and Gerontology Research
- Employment and Welfare Studies
- Mental Health via Writing
- Health Literacy and Information Accessibility
- Migration, Health and Trauma
- Health and Well-being Studies
- Health disparities and outcomes
- Identity, Memory, and Therapy
- Patient-Provider Communication in Healthcare
- Aging, Elder Care, and Social Issues
- Health, psychology, and well-being
- Family and Disability Support Research
- Maternal Mental Health During Pregnancy and Postpartum
- Disaster Response and Management
- Dialysis and Renal Disease Management
- Music Therapy and Health
University of Liverpool
2014-2024
Rathbone Hospital
2021-2022
University of Central Lancashire
2022
University of Oxford
2021
University of Sheffield
2021
Meeting the needs of relatives when a family member is dying can help facilitate better psychological adjustment in their grief. However, end life experiences for families are likely to have been deleteriously impacted by COVID-19 crisis. Understanding how families' be met during global pandemic will current/future relevance clinical practice and policy.
Much is known about the factors making caring for a spouse with dementia burdensome. However, relatively little that help some spouses become resilient. We define resilience as 'the process of negotiating, managing and adapting to significant sources stress or trauma'. aimed assess whether spousal carers can achieve highlight which assets resources they draw on facilitate hinder resilience, using an ecological framework .Twenty in-depth qualitative interviews from two carer support groups...
Background: Health and social care professionals’ ability to address the needs of patients their relatives at end life is likely have been impacted by COVID-19 pandemic. Aim: To explore health experiences providing during pandemic help inform current/future clinical practice policy. Design: A qualitative interview study. Data were analysed using thematic analysis. Setting/participants: Sixteen professionals working across a range settings in supporting dying first wave (March–June 2020)...
Background: COVID-19 public health restrictions have affected end-of-life care experiences for dying patients and their families. Aim: To explore bereaved relatives’ of quality family support provided during the last days life; to identify impact factors associated with perceived support. Design: A national, observational, open online survey was developed disseminated via social media, fora professional networks (June–September 2020). Validated instruments purposively designed questions...
Spousal dementia carers have unique support needs; they are likely to disengage from their existing social networks as need devote more time caring the disease progresses. Previously we showed that resources can facilitate resilience in carers, but relationship is complex and varies by type. The current paper aims explore a key component of identify availability, function perceived functional aspects provided older spousal carers.We conducted 23 in-depth qualitative interviews with two carer...
Objectives To explore the different factors of resilience for people living with dementia and unpaid carers, in response to sudden changes care lifestyle during COVID-19 pandemic. Methods Unpaid carers were offered telephone interviews April 2020 discuss their experiences since Participants asked about benefits challenges accessing support, as well coping, symptoms, strategies impacts. Each transcript was analysed using inductive deductive thematic analysis by two researchers. Findings...
Most perinatal research relating to COVID-19 focuses on its negative impact maternal and parental mental health. Currently, there are limited data how optimise positive health during the pandemic. We aimed bridge this knowledge gap by exploring women have adapted becoming a new parent pandemic identify elements of resilience growth within their narratives. Mothers infants under age 4 months were recruited as part wider UK mixed-methods study. Semi-structured interviews with 20 mothers...
Objectives: The aim of this study was to explore unpaid carers' experiences supporting people with dementia use social media.
Background: People with dementia and carers can face many barriers, or inequalities, in accessing a diagnosis care. These barriers are unjust be addressed by the right interventions, to ensure that everyone receives equitable access A lack of knowledge about health social care workforce is recognised barrier. The Dementia Inequalities Game was co-produced people personal, professional, voluntary sector experiences dementia, offers an educational tool educate associated inequalities overcome...
Objectives: Little research examines trajectories of carer resilience or the factors that facilitate hinder over time. We use qualitative longitudinal methods to examine and which assets resources are associated with care status transitions in spousal dementia carers. Method: Based on an original sample 23 carers (Donnellan, Bennett, & Soulsby, 2015 ), we conducted 13 follow-up interviews, including: 5 continuing home carers, 3 former (institutionalised), (widowed). Results: Five...
SUMMARY Background Diagnosis and treatment for End‐Stage Kidney Disease (ESKD) results in vast lifestyle changes. Despite the high prevalence of depression people with ESKD, psychosocial impacts ESKD are still often overlooked. Illness perceptions enable to make sense their illness closely associated depression. Due levels within this study sought understand nature ESKD. Methodology In qualitative study, eleven participants were identified through hospital online patient support groups....
Informal dementia care is uniquely stressful and necessitates effective methods of identifying understanding the needs potentially at-risk carers so that they can be supported sustained in their roles. One such method examining carers' engagement online support platforms. Research has explored emotional word use on discussion forums as a proxy for underlying functioning. We are not aware any research analyzed content posts specific to people living with order examine states.We addressed...
COVID-19 has posed serious challenges for informal carers living in the UK. This article examines some of specific facing and resources they used to manage them throughout first UK lockdown. We a framework approach analyse naturalistic, longitudinal data from 30 taking part 96 Mobilise’s daily Virtual Cuppas between March July 2020. found that lack information social restrictions cumulatively impacted carers’ sense certainty, control motivation. took an emotional toll on carers, leading...
Purpose Research has shown that informal carers of people living with dementia (PLWD) can be resilient in the face caregiving challenges. However, little is known about resilience across different kinship ties. This study aims to update and build on our previous work, using an ecological framework identify explore factors facilitate or hinder spousal adult daughter PLWD. Design/methodology/approach conducted in-depth qualitative interviews a purposive sample 13 from North West England...
Background: Research shows that formal and informal social support can facilitate resilience in carers. There is a paucity of research exploring amongst recently bereaved Aim: To examine how the presence or absence distinct dimensions hinder Participants: 44 carers, who had been identified by GP as 'main carer' someone deceased (3-12 months), aged between 38 87 years old (mean= 67). Methods: Thematic analysis then Ecological Framework Resilience an organisational tool to develop overarching...
Domiciliary carers (DCs) provide an invaluable service that enables people living with dementia (PLWD) to remain in their own homes for as long possible. We know a lot about the negative impacts of providing domiciliary care and recent evidence suggests this was exacerbated by COVID-19 pandemic. However, we much less how these DCs manage stressors associated roles. The current study adopts resilience perspective identify resources caring PLWD draw on stress roles before during conducted...
Increasing numbers of older men are informal carers. Whilst caregiving is stressful, some carers can be classified as resilient: able to adapt or bounce back in the face adversity (Windle, 2011). There growing interest resilience amongst these men, and factors that contribute resilience. We analyse data from twenty-five in-depth interviews who caring informally for people with dementia, brain injury at end-of-life. Utilising ecological framework (Windle & Bennett, 2011), we examine promoting...
<h3>Background</h3> The COVID-19 pandemic significantly affected experiences of death and dying for patients families. Our focus was on bereaved relatives' perceptions about care in the last days life during to help inform practice policy. <h3>Methods</h3> A national online survey, informed by patient public involvement, developed disseminated via social media, professional networks between June October 2020. Validated instruments (e.g. abbreviated 'Care Of Dying Evaluation' questionnaire)...
<sec> <title>BACKGROUND</title> Informal dementia care is uniquely stressful and necessitates effective methods of identifying understanding the needs potentially at-risk carers so that they can be supported sustained in their roles. One such method examining carers’ engagement online support platforms. Research has explored emotional word use on discussion forums as a proxy for underlying functioning. We are not aware any research analyzed content posts specific to people living with order...