- Down syndrome and intellectual disability research
- Chronic Disease Management Strategies
- Immunodeficiency and Autoimmune Disorders
- Medical Coding and Health Information
- Adolescent and Pediatric Healthcare
- Elder Abuse and Neglect
- Family and Disability Support Research
- Frailty in Older Adults
Radboud University Medical Center
2021-2024
Radboud University Nijmegen
2021-2024
Community Care
2023-2024
Maastricht University
2023
Chronic disease and comorbidity patterns in people with intellectual disabilities (ID) are more complex than the general population. However, incomplete understanding of these differences limits care providers addressing them.To compare chronic chronically ill patients without ID Dutch practice.In this population-based study, a multi-regional primary database 2018 was combined national population data to improve identification adults ID. Prevalence calculated using Poisson regression...
Abstract The COVID-19 pandemic has disproportionately affected persons in long-term care, who often experience health disparities. To delineate the disease burden among with intellectual disabilities, we prospectively collected data from 36 care facilities for 3 waves during March 2020–May 2021. We included outcomes 2,586 clients PCR-confirmed SARS-CoV-2 infection, whom 161 had severe illness and 99 died. During first 2 waves, infection disabilities reflected patterns observed general...
Abstract Background To reduce the impact of chronic diseases (cardiovascular disease, diabetes mellitus type 2, and lung disease (asthma or obstructive pulmonary (COPD)), it is imperative that care high quality suitable to patients’ needs. Patients with intellectual disabilities (ID) differ from average patient population in general practice because their limitations adaptive behaviour functioning, concomitant difficulties recognising reacting symptoms, proactively searching health...
Disease management programmes (DMPs) aim to deliver standardised, high- quality care patients with chronic diseases. Although diseases are common among people intellectual disabilities (ID), this approach may be suboptimal for meeting their needs.To examine differences between and without ID who have a illness in DMP enrolment disease monitoring Dutch general practice.Observational study utilising the Nivel Primary Care Database (2015-2018) comparing cardiovascular disease, diabetes...
Abstract Background Type 2 diabetes mellitus, cardiovascular disease and chronic obstructive pulmonary contribute significantly to societal individual impact globally. High‐quality management of these long‐term health conditions is important prevent deterioration health, although potentially more complex for patients with intellectual disabilities in residential care. Disease this context particularly benefits from complete accurate recording management. Without records, are difficult track...