A5029661678- Down syndrome and intellectual disability research
- Chronic Disease Management Strategies
- Patient-Provider Communication in Healthcare
- Palliative Care and End-of-Life Issues
- Frailty in Older Adults
- Patient Satisfaction in Healthcare
- Genetics and Neurodevelopmental Disorders
- Adolescent and Pediatric Healthcare
- Health Systems, Economic Evaluations, Quality of Life
- Acute Lymphoblastic Leukemia research
- Cancer Diagnosis and Treatment
- Global Cancer Incidence and Screening
- Prostate Cancer Diagnosis and Treatment
- Economic and Financial Impacts of Cancer
- Childhood Cancer Survivors' Quality of Life
- Patient Dignity and Privacy
- Medical Coding and Health Information
- Biomedical Text Mining and Ontologies
- Family and Disability Support Research
- Occupational and environmental lung diseases
- Urinary Bladder and Prostate Research
- Elder Abuse and Neglect
- Plant and animal studies
- Genomic variations and chromosomal abnormalities
- Immunodeficiency and Autoimmune Disorders
Radboud University Medical Center
2018-2025
Radboud University Nijmegen
2018-2025
Community Care
2023-2025
University Medical Center
2023-2025
Ministry of Health Welfare and Sport
2023
Maastricht University
2023
University Hospital and Clinics
2023
Radboud Institute for Molecular Life Sciences
2021
Tilburg University
2015-2019
Elisabeth-TweeSteden Ziekenhuis
2017
People with an intellectual disability face diverse health disparities, including challenges accessing cancer care. In the Netherlands, as in many other countries, there are national screening programmes for early detection of breast, cervical, and colon cancer. These were, however, initially introduced general population, they often fail to meet needs population disability. This study aimed assess participation rates outcomes these compared population. this cross-sectional population-based...
Background Concerns have been raised about access to cancer screening and the timely receipt of care for people with an intellectual disability (ID). However, knowledge mortality as a potential consequence these disparities is still limited. This study, therefore, compared cancer‐related patterns between without ID. Methods A historical cohort study (2015‐2019) linked Dutch adult population (approximately 12 million ID prevalence 1.45%) registries. Cancer‐related was identified by underlying...
Abstract Objective To determine the satisfaction with information received by prostate cancer survivors and associations health‐related quality of life (HRQoL) illness perception. Methods A cross‐sectional study was performed among 999 patients diagnosed between 2006 2009. All a questionnaire on HRQoL (EORTC QLQ‐C30), perception (B‐IPQ) provision QLQ‐INFO‐25). Multivariate regression analyses were to assess association as well Results Response rate 70% ( N = 697), 34% 222) indicated be...
Abstract Background Concerns have been raised about the accessibility and quality of cancer‐related care for people with intellectual disabilities (ID). However, there is limited insight into cancer incidence utilization at ID population level to inform targeted control strategies. Therefore, we aimed examine differences in between without ID, identified through diagnostic codes on health insurance claims. Methods In a population‐based cohort study, Dutch individuals all ages who received...
Abstract Background Data on the development of Covid‐19 among people with intellectual disabilities (IDs) are scarce and it is uncertain to what extent general population data applies ID. To give an indication possible implications, this study investigated excess mortality patterns during a previous influenza epidemic. Methods Using Dutch registers, historical cohort was designed compare 2017–2018 epidemic in same period three years. People ID were identified by entitlements residential...
Chronic disease and comorbidity patterns in people with intellectual disabilities (ID) are more complex than the general population. However, incomplete understanding of these differences limits care providers addressing them.To compare chronic chronically ill patients without ID Dutch practice.In this population-based study, a multi-regional primary database 2018 was combined national population data to improve identification adults ID. Prevalence calculated using Poisson regression...
Individuals with intellectual disabilities (ID) depend on public services for daily support and medical care; however, this group of individuals can be difficult to identify within population data. This therefore limits the opportunities accurately estimate size ID, monitor trends tailor health interventions according needs characteristics group. By linking relevant databases, study sought ID in national data, prevalence based service use explore how method used better ID. Explorative data...
Abstract The COVID-19 pandemic has disproportionately affected persons in long-term care, who often experience health disparities. To delineate the disease burden among with intellectual disabilities, we prospectively collected data from 36 care facilities for 3 waves during March 2020–May 2021. We included outcomes 2,586 clients PCR-confirmed SARS-CoV-2 infection, whom 161 had severe illness and 99 died. During first 2 waves, infection disabilities reflected patterns observed general...
At an early stage, prostate cancer patients are often eligible for more than one treatment option, or may choose to defer curative treatment. Without a pre-existing superior patient has weigh his personal preferences against the risks and benefits of each alternative select most appropriate Given this context, in decision-making, it is particularly suitable follow principles shared decision-making (SDM), especially with support specific instruments like decision aids (DAs). Although several...
To compare patients' evaluation of the treatment decision-making process in localized prostate cancer between counseling that included an online decision aid (DA) and standard counseling.Eighteen Dutch hospitals were randomized to DA (n = 235) or control group with 101) a pragmatic, cluster controlled trial. The was provided patients at, soon after diagnosis. Decisional conflict, involvement, knowledge, satisfaction information assessed questionnaire decision-making. Anxiety depression...
Abstract Urbanisation is often put forward as an important driver of biodiversity loss, including for pollinators such wild bees. However, recent evidence shows that the mosaics urban green spaces, and in particular certain categories informal spaces (IGS), can play role to help native bees thrive cities. Here, we describe results 5 years citizen science standardised field surveys conducted at Friche Josaphat, a 24‐ha wasteland Brussels‐Capital Region (Belgium). These were initiated...
Cancer is a global public health problem, but its exact prevalence in people with intellectual disabilities still uncertain. This population, limited skills and complex needs, faces many challenges cancer prevention, screening, timely diagnosis treatment. Furthermore, they are often underrepresented general prevention screening policies across Europe, leading to widened disparities outcomes premature mortality. Thus, unified national local needed reduce inequalities promoting pan-European...
Many new decision aids are developed while aspects of existing could also be useful, leading to a sub-optimal use resources. To support treatment decision-making in prostate cancer patients, pre-existing evidence-based Canadian aid was adjusted Dutch clinical setting. After analyses the original and routines care, adjustments structure content were made. Subsequent usability testing (N = 11) resulted 212 comments. Care providers mainly provided feedback on medical content, patients commented...
AimsTo conduct an epidemiological analysis of patterns observed in diabetes care provided to individuals with and without intellectual disabilities (ID) primary settings.MethodsAn ID-cohort (N = 21,203) was compared a control group similar age sex from the general Dutch population 267,628). Distinctive data for (both type 1 2) related complications were retrieved national databases.ResultsThe prevalence higher people ID than (9.9% versus 6.6%). Largest differences seen younger groups. Women...
The objective of this study is to test if patients' health-related quality life (HRQoL) declines after prostate biopsy detect Pca, and subsequent treatment decision-making in case Pca confirmed, whether personality state traits are associated with these potential changes HRQoL. Patients who were scheduled for (N = 377) filled out a baseline questionnaire about HRQoL (EORTC QLQ-C30 PR25), "big five" (BFI-10), optimism (LOT-r), self-efficacy (Decision Self-efficacy Scale) (t0). confirmed 126)...
Implementation of patient’s decision aids in routine clinical care is generally low. This study evaluated uptake and usage a novel Dutch web-based prostate cancer treatment aid within the Prostate Cancer Patient Centered Care trial. From an estimated total patient sample 1006 patients, 351 received (35% implementation rate; hospital ranges 16%–84%). After receipt aid, most patients accessed utilized functions, although not completely, discussed summary subsequent consultation with their...