Palliative care settings in many countries acknowledge families as their prime focus of care, but Brazil, to date, researchers have devoted scant attention that practice setting. In this article, we report the findings a study explored how define and manage lives when they child or adolescent undergoing palliative at home. Data included individual semistructured interviews with 14 family members 11 different families. Interviews were transcribed coding procedure featured qualitative content...

O objetivo deste estudo foi identificar o significado e as intervenções de enfermeiros que atuam em oncologia pediátrica na promoção morte digna da criança. Utilizaram-se como referencial teórico metodológico interacionismo simbólico a pesquisa narrativa. Os dados foram coletados junto oito uma unidade um hospital público São Paulo, por meio entrevistas semiestruturadas. A análise dos permitiu identificação cinco categorias: sentir-se sem autonomia para tomada decisão; cuidar família;...

OBJECTIVES: to understand the family's experience of child and/or teenager in palliative care and building a representative theoretical model process experienced by family.METHODOLOGY: for this purpose Symbolic Interactionism Theory Based on Data were used. Fifteen families with kids teenagers interviewed, data collected through semi-structured interviews.RESULTS: after comparative analysis data, substantive theory was formed "fluctuating between hope hopelessness world changed losses",...

O objetivo desta pesquisa foi analisar as variáveis psicológicas de enfermeiros, obtidas por meio da Lista Estados Emocionais LEP - cujo questionário respondido no início e término do plantão. Fizeram parte (n=70) que trabalhavam Hospital das Clínicas / UNICAMP sob o regime 6 12 horas diárias, em atividades desenvolvidas Centro Cirúrgico (CC), Unidade Terapia Intensiva (UTI), Coronariana (UCO) Pronto Socorro (PS), com idade média 33,88 anos. Os resultados permitiram constatar perfil...

This qualitative study aimed to get know the relationship between experiences of families children with a life-threatening disease and their religion, illness life histories. The methodological framework was based on Oral History. data were collected through interviews participants nine from six different religions who had lived experience having child disease. interviews, held one or two family members, transcribed, textualized and, analysis, Vital Tone elaborated, representing moral...

OBJECTIVES: to perform the cultural adaptation of Family Management Measure into Brazilian Portuguese language. METHOD: method complied with international recommendations for this type study and was composed following steps: translation instrument language; reaching consensus over translated versions; assessment by an expert committee; back translation; pretest. RESULTS: these stages enabled us obtain conceptual, by-item, semantic, idiomatic, operational equivalences, in addition content...

ABSTRACT Objectives: To know the experiences of nurses in neonatal intensive care units face process communicating bad news to family newborns palliative care. Methods: Study with a descriptive qualitative approach, which 17 professionals participated. Data were collected through semi-structured interview script, from December/2018 February/2019, and submitted content analysis. Results: Four theoretical categories emerged, 11 subcategories inserted: meanings attributed news; nursing as...

Objective To know the facilities and difficulties of nurses in caring practice hospitalized children's families light Jean Watson's Theory Human Caring. Method It was used descriptive qualitative approach. The data collection conducted three stages: presentation theoretical content; engagement with theory; semi-structured interview 12 pediatric nurses. interviews were analysed using inductive thematic analysis, being possible to form themes: Recognizing a framework for care; Considering...

To understand the meanings assigned by bereaved parents to their relationships with healthcare professionals during end-of-life hospitalization of child.Qualitative-interpretative study based on hermeneutics. Data were collected from interviews who grieving death a child cancer in hospital and participant observation an oncology ward. Deductive thematic analysis for data interpretation ensued.The experience is sum all treatment. Therefore, form tangle interrelated senses built not only...

The care demands of individuals with cerebral palsy may pose physical and emotional burdens on their relatives. Therefore, nurses should intervene so as to meet the needs family well patient. objective this study was understand experience parents who take child palsy. This qualitative case performed at a health center in Botucatu, São Paulo, Brazil. Data were collected, after receiving approval Ethics Committee, then organized according Bardin's content analysis. analysis statements allowed...

Esse estudo teve como objetivos desvelar os elementos do cuidado humanizado presentes no encontro entre enfermeiro, família e criança com câncer, identificar a percepção desses enfermeiros quanto à humanização da assistência verificar em que situações o enfermeiro percebe está ancorada ao cuidado. Trata-se de exploratório-descritivo, abordagem qualitativa. Utilizou-se referencial teórico Teoria Cuidado Humano Watson. Os dados foram coletados por meio entrevista semiestruturada nove um...

This study aimed to understand how the family of a child with cancer manages illness and its intercurrences at home, it makes decision taking an emergency care service. Oral History was used as methodological strategy data analysis based on "Family Management Style Framework". Participants were six mothers between 28 47 years old, who experiencing their child's treatment. The possible need for is incorporated into routine resource manage whenever goes beyond mother's capacity keep control...

Aim: To identify scientific evidence about families of children with sickle cell disease. Method: An integrative review the search used following descriptors: anemia cell; hemoglobin SC disease; sickle; family; family relations; and, child. The was carried out for literature in Portuguese, English, and Spanish. databases such as MEDLINE, LILACS, CINAHL, PubMed, looked articles published between January 2005 2015. Results: There were 16 selected that originated thematic categories: impact...

To validate the Family Management Measure (FaMM) for Brazilian culture.Quantitative research excerpt, following recommendations validation studies. The data presented refer to last stage of process.The internal consistency items was analyzed through Cronbach's alpha six domains: Child's Daily Life (0.78); Condition Effort (0.51); Ability (0.55); Difficulty (0.86); View Impact (0.56); and Parental Mutuality (0.80). Exploratory factorial analysis instrument carried out, obtaining an acceptable...

Resumo Objetivo construir e validar um cenário de simulação realística sobre comunicação notícias difíceis no contexto cuidados paliativos para graduandos enfermagem. Método estudo metodológico, que seguiu três etapas; construção do cenário, fundamentada nos referenciais simulação, paliativos; validação conteúdo, na qual nove juízes analisaram a adequação por meio uma escala Likert, computar o Índice Validade Conteúdo (IVC) e, sugestões descritas instrumento análise cenário; teste ocorreu...

Abstract OBJECTIVE To analyze the influence of health professionals' receptiveness on parental care children with retinopathy prematurity (ROP). METHOD A qualitative study developed under theoretical framework Symbolic Interactionism and using a narrative research methodology. Six women three men, being parents were individually interviewed in depth. RESULTS From scope information, emotions their rights, experienced from some professionals unreceptiveness others. The predominance unreceptive...

Introdução: Ao tratar-se do contexto pediátrico, a princípio os casos de coronavírus em crianças eram escassos e possibilidade subnotificação nesta faixa etária era uma hipótese. Profissionais saúde enfrentaram diariamente impactos trazidos pela nova forma trabalho, o que impactou também no cuidado prestado pediátrico. Objetivos: Compreender experiência enfermeiro unidades pediátricas à criança sua família da pandemia COVID-19. Método: Realizado estudo abordagem qualitativa. A coleta dados...

RESUMO Objetivo: Compreender a vivência das crianças com necessidades de saúde especiais na escola. Método: Pesquisa qualitativa que empregou Interacionismo Simbólico como referencial teórico e pressupostos da Teoria Fundamentada nos Dados metodológico. coletados em um ambulatório pediátrico instituição hospitalar ensino no interior do estado São Paulo. Como estratégias coleta utilizaram-se: observação participante, desenho entrevista semiestruturada. Participaram pesquisa 22 idade escolar,...

ABSTRACT Objective: To understand the experience of children with special health needs at school. Method: Qualitative research using Symbolic Interactionism as a theoretical framework and assumptions Grounded Theory methodological framework. Data collected in pediatric outpatient clinic teaching hospital an inland city state São Paulo. The following collection strategies were used: participant observation, drawing, semi-structured interviews. Twenty-two school-age participated research, all...