Regina Szylit Bousso

ORCID: 0000-0002-9250-0250
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About
Contact & Profiles
Research Areas
  • Palliative and Oncologic Care
  • Palliative Care and End-of-Life Issues
  • Family and Patient Care in Intensive Care Units
  • Health, Nursing, Elderly Care
  • Childhood Cancer Survivors' Quality of Life
  • Grief, Bereavement, and Mental Health
  • Family and Disability Support Research
  • Family Support in Illness
  • Infant Development and Preterm Care
  • Patient Dignity and Privacy
  • Maternal and Neonatal Healthcare
  • Health Education and Validation
  • Ethics in medical practice
  • Psychology and Mental Health
  • Ethics and Legal Issues in Pediatric Healthcare
  • Religion, Spirituality, and Psychology
  • Organ Donation and Transplantation
  • COVID-19 and Mental Health
  • Youth, Drugs, and Violence
  • Ethics and bioethics in healthcare
  • Pediatric Pain Management Techniques
  • Nursing care and research
  • Intergenerational Family Dynamics and Caregiving
  • Hemoglobinopathies and Related Disorders
  • Male Reproductive Health Studies

Universidade de São Paulo
2016-2025

Centre of Advanced Studies
2025

Minnesota State University, Mankato
2022

Hospital Universitário da Universidade de São Paulo
2021

Escola Superior de Enfermagem de Lisboa
2010-2019

Universidade Brasil
2008-2018

Universidade de Ribeirão Preto
2017

Universidade Federal de São Paulo
2016

Escola da Cidade
2014

Hospital Israelita Albert Einstein
2011

The theory framework of nursing science is built in a dynamic process that arises from practice and reproduced through research, mainly by analysis development concepts theories. This study presents reflection on knowledge construction points out subsidies for future studies the area. interrelation among theory, clinical required continuous as profession science. Ideally, must be based validated research. Therefore, affect each other reciprocally continuously.

10.1590/s0080-623420140000100018 article EN cc-by Revista da Escola de Enfermagem da USP 2014-02-01

ABSTRACT Objective: To analyze the incidence and means of elderly suicide in Brazil. Method: Epidemiologic, cross-sectional, quantitative, retrospective study. The data were obtained a platform maintained by Ministry Health analyzed. mortality rate was calculated percentages regarding employed obtained. Results: In this period, 8,977 suicides took place among population over 60 years. highest rates concentrated 80, which presented mean 8.4/100,000 for between 70 79 years, with 8.2/100,000....

10.1590/s1980-220x2019026603694 article EN cc-by Revista da Escola de Enfermagem da USP 2021-01-01

Abstract Objective: To unveil spirituality in the care process of nursing professionals hospital context under lens Transpersonal Caring. Method: A descriptive-exploratory study implementing a qualitative approach conducted with from team general Bahia, using semi-structured interview submitted to content analysis technique and analyzed perspective Theory Caring theoretical framework. Results: There were 16 who participated. It was found that perceives patient family’s demand for spiritual...

10.1590/s1980-220x2018053403592 article EN cc-by Revista da Escola de Enfermagem da USP 2020-01-01

Este estudo teve como objetivos identificar temas predominantes sobre religião, doença e morte nas histórias de vida famílias examinar a relação entre as crenças religiosas, na narrativa que conviveram com um familiar doente. Utilizamos referencial teórico o Interacionismo Simbólico metodológico História Oral. Participaram do dezessete nove religiões diferentes vivenciaram experiência algum familiar. Por meio da análise dos dados, foi possível compreender religiosidade é parte relevante...

10.1590/s0080-62342011000200014 article PT cc-by-nc Revista da Escola de Enfermagem da USP 2011-04-01

Palliative care settings in many countries acknowledge families as their prime focus of care, but Brazil, to date, researchers have devoted scant attention that practice setting. In this article, we report the findings a study explored how define and manage lives when they child or adolescent undergoing palliative at home. Data included individual semistructured interviews with 14 family members 11 different families. Interviews were transcribed coding procedure featured qualitative content...

10.1177/1074840711427038 article EN Journal of Family Nursing 2012-01-05

O objetivo deste estudo foi identificar o significado e as intervenções de enfermeiros que atuam em oncologia pediátrica na promoção morte digna da criança. Utilizaram-se como referencial teórico metodológico interacionismo simbólico a pesquisa narrativa. Os dados foram coletados junto oito uma unidade um hospital público São Paulo, por meio entrevistas semiestruturadas. A análise dos permitiu identificação cinco categorias: sentir-se sem autonomia para tomada decisão; cuidar família;...

10.1590/s0080-62342013000100004 article PT cc-by Revista da Escola de Enfermagem da USP 2013-02-01

Grief is a family affair, yet it commonly viewed as an individual phenomenon. As international, interdisciplinary team, we explore grief within context across theoretical, research, practice, and educational domains. Families are complex working with this complexity challenging but necessary for holistic view of grief. We therefore encourage increased focus on theorizing, researching, practicing, educating using innovative approaches to address the complexities families. Learnings from each...

10.1080/07481187.2018.1442375 article EN Death Studies 2018-05-07

A morte é um evento presente no cotidiano das enfermeiras que trabalham com crianças em UTI. Este estudo teve como objetivo compreender a experiência da enfermeira cuidado criança e família vivenciam o processo de morte. O referencial teórico adotado foi Interacionismo Simbólico e, metodológico, Interpretativo para análise narrativas biográficas sete participaram pesquisa. Os eventos marcaram história neste cenário foram: DEPARANDO-SE COM MORTE DA CRIANÇA, PROJETANDO-SE NO PAPEL DE MÃE...

10.1590/s0104-11692006000200009 article PT cc-by Revista Latino-Americana de Enfermagem 2006-04-01

OBJECTIVES: to understand the family's experience of child and/or teenager in palliative care and building a representative theoretical model process experienced by family.METHODOLOGY: for this purpose Symbolic Interactionism Theory Based on Data were used. Fifteen families with kids teenagers interviewed, data collected through semi-structured interviews.RESULTS: after comparative analysis data, substantive theory was formed "fluctuating between hope hopelessness world changed losses",...

10.1590/0104-1169.0468.2588 article EN Revista Latino-Americana de Enfermagem 2015-06-01

Background: The intensive care unit environment focuses on interventions and support therapies that prolong life. exercise by nurses of their autonomy impacts perception the role they assume in multidisciplinary team function context. There is much international research relating to nurses’ involvement end-of-life situations; however, there a paucity this area Brazil. In Brazilian medical scenario, life limitation generated certain reluctance legal nature, which has now become unjustifiable...

10.1177/0969733014547970 article EN Nursing Ethics 2014-09-29

RESUMOObjetivo:analisar a concepção dos adolescentes respeito da espiritualidade, religiosidade e crenças pessoais presentes em suas vidas devido ao câncer como estratégia de enfrentamento doença.Método:pesquisa qualitativa, do tipo descritiva exploratória. Os dados foram coletados através um roteiro entrevista semi-estruturado, as categorias definidas segundo análise conteúdo.Resultados:participaram nove que estavam tratamento oncológico duas instituições na cidade Uberaba, Minas Gerais....

10.1590/0034-7167.2015680504i article PT cc-by Revista Brasileira de Enfermagem 2015-10-01

ABSTRACT Objective: to analyze the perception of hospitalized patients about care received through an extensionist musical visit under perspective Theory Human Caring. Method: a descriptive-exploratory-qualitative research conducted in hospital state Bahia, with 15 patients, interviewed within 24 hours after receiving visit. Collection involved semi-structured interview, analyzed Discourse Collective Subject. Results: three axes emerged: Musical Care at interface Transpersonal Care; Music as...

10.1590/2177-9465-ean-2019-0165 article EN cc-by Escola Anna Nery 2020-01-01

The aim of this work is to provide an overview the key features expressions grief. Grief a response loss or anticipated loss. Although universal, its oral and nonverbal expression varies across cultures individuals. Loss produced by event perceived be negative varying degrees individuals involved has potential trigger long-term changes in person's cognitions relationships. languages used bereaved express grief differ from language professionals, creating dissonance between two. Data were...

10.1080/21642850.2013.879041 article EN cc-by-nc Health Psychology and Behavioral Medicine 2014-01-01

Este estudo teve como objetivos: compreender o funcionamento da dinâmica familiar criança internada em UTI pediátrica e construir um Modelo Teórico sobre a experiência família que vivencia internação na pediátrica. Utilizou-se referencial teórico Interacionismo Simbólico metodológico Teoria Fundamentada nos Dados. A análise comparativa dos dados possibilitou identificar dois fenômenos compõem esta família: Tendo uma ruptura Vivendo possibilidade de vir perder filho. articulação desses...

10.1590/s0080-62342001000200012 article PT Revista da Escola de Enfermagem da USP 2001-06-01

Objetivamos compreender o processo de decisão familiar sobre a doação órgãos do filho considerado doador potencial; identificar os significados que família atribui à experiência e construir uma teoria substantiva representativa desta experiência. Para tanto, utilizamos Interacionismo Simbólico Teoria Fundamentada nos Dados. Foram entrevistadas treze famílias cuja morte ocorreu entre janeiro 2004 dezembro 2005, selecionadas em banco dados, Organização Procura Órgãos São Paulo. Após análise...

10.1590/s0104-07072008000100005 article PT cc-by Texto & Contexto - Enfermagem 2008-03-01

This qualitative study aimed to get know the relationship between experiences of families children with a life-threatening disease and their religion, illness life histories. The methodological framework was based on Oral History. data were collected through interviews participants nine from six different religions who had lived experience having child disease. interviews, held one or two family members, transcribed, textualized and, analysis, Vital Tone elaborated, representing moral...

10.1590/s0104-11692010000200003 article EN cc-by Revista Latino-Americana de Enfermagem 2010-04-01

O estudo teve por objetivo descrever os antecedentes, atributos e conseqüências do conceito de morte digna da criança. Utilizou-se a estratégia análise para avaliar 40 artigos, tendo como foco publicações nas áreas médica enfermagem, que estudaram ou focalizaram Os criança incluem: qualidade vida, cuidado centrado na família, conhecimento específico sobre cuidados paliativos, decisão compartilhada, alívio sofrimento criança, comunicação clara, relacionamento ajuda ambiente acolhedor. Poucos...

10.1590/s0080-62342009000100028 article PT DOAJ (DOAJ: Directory of Open Access Journals) 2009-03-01

To identify the factors that influence Intensive Care Unit nurse in decision-making process end-of-life situations.Ethnographic case study, which used theoretical framework of medical anthropology. Data were collected through semi-structured interviews with 10 nurses.The inductive thematic analysis enabled us to four themes:The cultural context Unit: situations end-of-life; Beliefs and subjectivity care situations; Professional experience characteristics Humanization practices situations:...

10.1590/s0080-623420150000400006 article EN cc-by Revista da Escola de Enfermagem da USP 2015-08-01

OBJECTIVES: to perform the cultural adaptation of Family Management Measure into Brazilian Portuguese language. METHOD: method complied with international recommendations for this type study and was composed following steps: translation instrument language; reaching consensus over translated versions; assessment by an expert committee; back translation; pretest. RESULTS: these stages enabled us obtain conceptual, by-item, semantic, idiomatic, operational equivalences, in addition content...

10.1590/0104-1169.2978.2379 article EN cc-by Revista Latino-Americana de Enfermagem 2014-01-01

Introdução: O cuidado no final da vida deve ser marcado pela revalorização dimensão espiritual. Objetivo: Compreender o papel espiritualidade na de famílias que possuem um ente em situação vida. Materiais e Métodos: Pesquisa qualitativa, realizada com quinze familiares pacientes doenças graves atendidos rede atenção primária à saúde São Paulo, Brasil, por meio entrevistas semiestruturadas. Os dados foram organizados analisados conforme as figuras metodológicas técnica do Discurso Sujeito...

10.15649/cuidarte.v8i2.391 article PT cc-by-nc Revista CUIDARTE 2017-05-01
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