A5021728992- Childhood Cancer Survivors' Quality of Life
- Family Support in Illness
- Intergenerational Family Dynamics and Caregiving
- Acute Lymphoblastic Leukemia research
- Adolescent and Pediatric Healthcare
- Palliative Care and End-of-Life Issues
- Health disparities and outcomes
- Anxiety, Depression, Psychometrics, Treatment, Cognitive Processes
- Aging and Gerontology Research
- Family and Disability Support Research
- Perfectionism, Procrastination, Anxiety Studies
- Child and Adolescent Psychosocial and Emotional Development
- Ethics and Legal Issues in Pediatric Healthcare
University of Lucerne
2022-2025
University of Potsdam
2024-2025
University of Calgary
2024
Amsterdam University Medical Centers
2024
University of Amsterdam
2024
Cancer Center Amsterdam
2024
Childhood cancer imposes a financial burden on families. We explored the support grandparents provide to parents of childhood patients and their income satisfaction over two years post-diagnosis. Twenty-nine families shared contact information for 85 grandparents, whom 41 (48%) participated in longitudinal questionnaire study, seven were interviewed about support. While most (53%-69%) offered some support, it was generally modest. Across all time points, (96%) had sufficient live on. To more...
Grandparents play a crucial role in providing their families with love, support, and wisdom, often also supporting them practical financial ways. The psychosocial effects experienced by grandparents when grandchild is diagnosed an illness can be significant, including increased stress, anxiety, grief, disruptions own lives. Yet, the experience of overlooked literature. GROKids Project aims to investigate how are affected grandchild's cancer diagnosis. It employs mixed-methods approach...
A childhood cancer diagnosis is a traumatic experience for patients and their families. However, little known about the effect on grandparents. We aimed to investigate negative psychosocial impact, coping strategies, positive outcomes of grandparents in Switzerland.
Adolescents and young adults (AYAs) are diagnosed with cancer during a challenging period of life. We aimed to (1) describe positive changes (posttraumatic growth; PTG) illness perception, (2) determine associations between PTG sociodemographic, cancer-related characteristics in Swiss AYA survivors.We conducted population-based survey among survivors 1990-2005 at age 16-25 years, who had survived ≥ 5 years. used the Posttraumatic Growth Inventory (PTGI) Brief Illness Perception Questionnaire...
IntroductionHaving a grandchild who survived childhood cancer might affect grandparents' mental health. We aimed to A) describe the psychological distress of grandparents survivors (CCS) and compare their Swiss general population, B) explore associations between with person-, child-, cancer-related characteristics.MethodsThis is cross-sectional study conducted in Switzerland. Grandparents were identified from families eligible CCS (cancer diagnosis before 18 years old; 3-10 after diagnosis)....
Survivors of childhood cancer face reduced fertility, which can be a significant cause for concern. Our study aimed to assess the prevalence fertility-related concerns and identify associated factors. Self-report data were collected with Long-Term Survivor Questionnaire at Alberta Children’s Hospital’s Clinic (LTSC) between January 2021 September 2023. Eligible participants diagnosed before age 21 years, ≥2 years off therapy, ≥13 old. We analyzed cross-sectionally whole sample longitudinally...