Background Women with intellectual disability run an increased risk of dying breast cancer compared to the general population. There is a clear connection between late detection and low participation in mammogram screening program. This study aimed explore views experiences health care women disability. Method Semi-structured interviews were performed individually small groups among 11 Sweden. Results Breast not adapted Insufficient support disrespectful treatment can cause ignorance, fear...

Parents with intellectual and developmental disabilities (IDDs) are at an increased risk of having their children placed in foster care. A group intervention to provide support was developed Australia applied Sweden help mothers care deal the grief a child removed new parenting role. An evaluation found that could contribute maturing developing insights skills mothers. This study aimed explore long-term process outcomes terms mothering role, visits need for support. explorative qualitative...

Knowledge is lacking about dietary habits among people with intellectual disability (ID) living in community residences under new conditions.To describe the of individuals ID residences, focusing on intake food, energy and nutrients as well meal patterns.Assisted food records physical activity over a 3-day observation period for 32 subjects.Great variation was observed daily (4.9-14 MJ) dispersed across several meals, average 26% coming from in-between-meal consumption. Main sources were...

Purpose: To describe daily time management in adults with and without mental disability to examine differences the level of their management; possessions use electronic planning devices (EPDs) activities how environmental factors influence EPDs disability. Methods: In a descriptive cross-sectional design, 32 participants using matched comparison group healthy was recruited. Time-Self rating scale measuring adapted for adults. A study specific questionnaire applied collect data on five ICF...

Adults with cognitive disabilities often have difficulties in dealing the complexity of everyday life. With assistive technology (e.g. electronic planning devices [EPDs] and individual support), they can bring order to their chaotic Assumptions are that environmental factors influence non-use EPDs.To explore how adults perceive use EPDs.A reference group experience EPDs assisted researchers. Twelve using participated. An interview guide was implemented covering according International...

BACKGROUND:People with cognitive disabilities have difficulties in accomplishing everyday tasks. Electronic planning devices (EPDs) may compensate for the gap between a person's capacity and challenges. However, are not always used as intended. Despite that, assistive technology has been investigated several studies, knowledge regarding when what makes adults decide to use EPDs is incomplete. OBJECTIVE:The aim was explore subjective experiences of people relation EPDs. METHODS:A qualitative...

The food provision for people with intellectual disability (ID) in Sweden is organized within their own households. aim of this study was to describe how foodwork – planning meals, shopping and cooking performed different social contexts community settings involving ID, staff or both. Dietary intake the main meals relation practice also studied. Four practices could be distinguished. For some participants only one kind found, but most them two more practices. There a tendency that items...

Abstract In Sweden, when needed, children of mothers with cognitive limitations are placed in foster homes. There is a lack knowledge about the limitations, their experiences maternal role, whether they get support needed to maintain relationship children, and system adapted limitations. The aim was describe role given who have placement. An explorative qualitative design used. Eleven respondents were interviewed from study‐specific guide. A model representing respondents' revealed one theme...

Background In Sweden, a process involving the deinstitutionalisation of services and establishment community-based settings for people with intellectual disability has meant changes in meal arrangements. present study, we focus on social arrangements meals settings.Method Participant observations were used to study as events 32 participants, 9 whom lived supported living 23 group homes.Results Breakfast dinner often eaten alone, while lunch at daily activity centre food between (snacks)...

Purpose The purpose of this paper is to investigate registered dietitians’ (RDs) experiences in consulting adults with intellectual disabilities (ID) Sweden. Design/methodology/approach A descriptive study using a study-specific web-based questionnaire was administered, comprising both multiple-choice questions space for comments and open-ended questions. answers from 53 respondents were analysed systematic text condensation. Findings Four categories identified: RDs’ the first meeting;...

This study focuses on the subjective experience of living conditions adults with intellectual disabilities as related to Uppsala Quality Life model (UQoL2). Eleven semi-structured interviews were conducted issues raised by people disabilities. Study participants had their own home, either in an ordinary dwelling or group home. The findings show that dependence support daily life infringes sense adult social status and control life. Staff family a mandate define Life, which countered...

Abstract Quality of life (QoL) has become an important outcome in evaluations services and support for people with intellectual disabilities (ID). Many ID request more say want to be involved the development provision. The original Uppsala QoL (UQoL) model consists a general essence hierarchically ordered themes describes from perspective through individual interviews. aim present study is examine UQoL regarding its inherent component parts explore interrelationship between them. contributes...

The quality of meal-oriented support for people with intellectual disabilities is important their health. aim the present study was to explore experiences and diet counselling adults living in supported housing, from perspective housing staff mothers. Five focus group interviews, including nine supporting members mothers, were conducted. interviews analyzed using systematic text condensation. themes appeared; Extensive needs individual, Staff skills determine food intake, Informal caregivers...

This qualitative study aimed to explore the experiences of nine fathers with neurodevelopmental disabilities children in foster care, including their fathering role, visits and formal informal support. Systematic text condensation was analysis method used. The respondents' experience fatherhood revealed two categories: I accept my situation am frustrated. Though self-confident, expressed ambivalence between acceptance frustration role. shows that more should be done provide adapted support...

Abstract Mothers with cognitive limitations who have children in placement need to be listened and receive help understanding dealing their situation. A support programme for this group was developed Australia then adapted use a Swedish context named ‘Mamma Trots Allt’ (MTA). The aim examine the experiences of these mothers regarding mothering role after participation MTA. An explorative qualitative design used. Inclusion criteria were limitations, child Nine mothers, eight them from...

The aim of the present study was to explore experiences registered dietitians (RD) who consult children and youth with intellectual disability (ID) autism. Another investigate how knowledge working methods were transferred RDs adults ID Twenty-six completed a web-based study-specific questionnaire multiple-choice open-ended questions. respondents’ comments responses questions analyzed using systematic text condensation. analyses resulted in four categories: Reachability accessibility RDs,...