A5075875536- Hemophilia Treatment and Research
- Blood Coagulation and Thrombosis Mechanisms
- Adolescent and Pediatric Healthcare
- Platelet Disorders and Treatments
- Physical Activity and Health
- Hemostasis and retained surgical items
- Mobile Health and mHealth Applications
- Behavioral Health and Interventions
Oslo University Hospital
2019-2024
University of Oslo
2022-2023
Abstract Introduction The Hemophilia Joint Health Score (HJHS) was developed to detect early changes in joint health children and adolescents with haemophilia. HJHS is considered by some be too time consuming for clinical use this may limit broad adoption. Aim This study a first step develop shorter and/or more convenient version of the measurement function young adults haemophilia, combining real‐life data expert opinion. Methods A cross‐sectional multicenter secondary analysis on pooled...
Measurement of physical activity (PA) using commercial trackers such as Fitbit devices has become increasingly popular, also for people with haemophilia (PWH). The accuracy the model Charge 3 not yet been examined.To compare against research-grade accelerometer ActiGraph GT3X-BT in measuring average daily steps and minutes spent different PA intensities.Twenty-four young PWH wore a wrist-worn hip-worn simultaneously seven consecutive days free-living conditions. Correlation differences...
Introduction European guidelines on the care of haemophilia recommend ready access to a range services provided by multidisciplinary team specialists including physiotherapy. However, scope physiotherapy is unknown. Methods The Physiotherapists Committee Association for Haemophilia and Allied Disorders (EAHAD) conducted web‐based survey quantify role practice physiotherapists involved in care. was sent more than 200 registered EAHAD database. Questions concerned their work practices...
Abstract Introduction Limited evidence exists on objectively measured habitual physical activity (PA) of young people with haemophilia (PWH). Aims To compare different outcomes objective PA between PWH A and controls using a commercial tracker. Methods We enrolled males aged 13–30 years moderate severe A, without inhibitors regular prophylaxis. was the tracker Fitbit Charge 3 for 12 weeks. Control group data obtained from ≈60,000 users, matched age, sex measurement period. variables [steps,...
Physical activity (PA) is influenced by numerous factors, and the literature describing why people with haemophilia (PWH) are physically active or not inconclusive.To investigate factors associated PA (mean min/day in light (LPA), moderate (MPA), vigorous (VPA) total PA, proportion meeting World Health Organization (WHO) weekly moderate-to-vigorous (MVPA) recommendations) among young PWH A.Forty A on prophylaxis from HemFitbit study were included. was measured using Fitbit devices...