A5005553066- Patient-Provider Communication in Healthcare
- Palliative Care and End-of-Life Issues
- Cancer survivorship and care
- Health Literacy and Information Accessibility
- Family Support in Illness
- Global Cancer Incidence and Screening
- Family and Patient Care in Intensive Care Units
- Childhood Cancer Survivors' Quality of Life
- Grief, Bereavement, and Mental Health
- Patient Safety and Medication Errors
- BRCA gene mutations in cancer
- Child and Adolescent Health
- Emergency and Acute Care Studies
- Library Science and Administration
- Infant Development and Preterm Care
- Delphi Technique in Research
- Colorectal Cancer Screening and Detection
- Family and Disability Support Research
- Health and Well-being Studies
- Hospital Admissions and Outcomes
- Social Media in Health Education
- Intergenerational Family Dynamics and Caregiving
- Kidney Stones and Urolithiasis Treatments
- Family Caregiving in Mental Illness
- Lung Cancer Diagnosis and Treatment
UW Health University Hospital
2024
University of Wisconsin–Madison
2012-2022
University of Wisconsin Carbone Cancer Center
2018-2021
Faculty of Public Health
2013-2017
University of Colorado Denver
2017
Quality Enhancement Research Initiative
2008-2014
Madison Group (United States)
2013
Grady Memorial Hospital
2008
University of Georgia
2008
Informal caregivers (family and friends) of people with cancer are often unprepared for their caregiving role, leading to increased burden or distress. Comprehensive Health Enhancement Support System (CHESS) is a Web-based lung information, communication, coaching system caregivers. This randomized trial reports the impact on caregiver burden, disruptiveness, mood providing access CHESS versus Internet list recommended websites.A total 285 informal patients advanced nonsmall cell were...
Over the cancer disease trajectory, from diagnosis and treatment to remission or end of life, patients their families face difficult decisions. The provision information support when most relevant can optimize decision making coping. An interactive health communication system (IHCS) offers potential bridge gaps that occur among patients, family, clinicians empower each actively engage in care shared making. This is a report authors’ experience (with discussion literature) developing testing...
Abstract BACKGROUND: In this study, the authors examined effectiveness of an online support system (Comprehensive Health Enhancement Support System [CHESS]) versus Internet in relieving physical symptom distress patients with non–small cell lung cancer (NSCLC). METHODS: total, 285 informal caregiver‐patient dyads were assigned randomly to receive, for up 25 months, standard care plus training on and access either use a list sites about (the arm) or CHESS arm). Caregivers agreed complete...
Background: Using available communication technologies, clinicians may offer timely support to family caregivers in managing symptoms patients with advanced cancer at home. Aim: To assess the effects of an online symptom reporting system on caregiver preparedness, physical burden, and negative mood. Design: A pooled analysis two randomized trials (NCT00214162 NCT00365963) was conducted compare outcomes 6 12 months after intervention between randomized, unblinded groups using General Linear...
Numerous studies have investigated the effect of Interactive Cancer Communication Systems (ICCSs) on system users' improvements in psychosocial status. Research this area, however, has focused mostly cancer patients, rather than caregivers, and direct effects ICCSs improved outcomes, psychological mechanisms ICCS effects. To understand underlying mechanisms, study examines mediating role perceived caregiver bonding relation between one (the Comprehensive Health Enhancement Support System...
Introduction: Patients with incurable cancer have poor prognostic awareness. We present a detailed analysis of the dialogue between oncologists and patients in conversations implications. Methods: A total 128 audio-recorded encounters from large multisite trial were obtained, 64 involved scan results. used conversation analysis, qualitative method for studying human interaction, to analyze typical patterns conversational devices. Results: Four components consistently occurred sequential...
Little research has examined the antecedent characteristics of patients most likely to seek online cancer information. This study employs Cognitive-Social Health Information Processing (C-SHIP) model as a framework understand what psychosocial precede cancer-related information seeking among rural breast who often have fewer health care providers and limited local support services. Examining 144 were provided free computer hardware, Internet access, training for how use an interactive...
Background: Symptom distress in patients toward the end of life can change rapidly. Family caregivers have potential to help manage those symptoms, as well their own stress, if they are equipped with proper resources. Electronic health (eHealth) systems may be able provide Very sick not use such themselves report symptoms but family could.
Family-centered rounds (FCR) are recommended as standard practice in the pediatric inpatient setting; however, limited data exist on best practices promoting family engagement during rounds.To identify strategies to enhance FCR using a recognized systems engineering approach.In this qualitative study, stimulated recall interviews video-recorded rounding sessions were conducted with participants representing various stakeholders (15 parents/children and 22 healthcare team [HCT] members) from...
Abstract Objectives: Familial caregivers are providing increasing amounts of care to advanced cancer patients. Increased understanding caregivers’ needs is vital in necessary support lessen caregiver burden and morbidity. Current literature has identified patient at broad stages the trajectory; however, such may be too general inform a practice targeting specific interventions when they have greatest utility. This study examines variety particular across number more discrete illness-related...
Because patients are at the frontline of care where safety climate is closely tied to events, understanding patient perceptions crucial. We sought develop and evaluate a parent-reported version Agency for Healthcare Research Quality Hospital Survey on Patient Safety Culture relate responses parental need watch over their child's ensure mistakes not made.Parents (n=172) were surveyed about hospital (14 items representing four domains-overall safety, openness staff parent communication,...
Innovative approaches can strengthen patient-caregiver-clinician information exchange and more effectively address the physical psychosocial challenges of advanced disease. This study reports initial findings from implementation Clinician Report (CR)-a patient caregiver status report tool accessible by oncology clinic team.The CR tracks communicates essential cancer patients caregivers to team. The conveys symptoms, emotional strain, key concerns.Authors used a model developed explain...
The Health Information Orientation Scale (HIOS) was developed from a need to briefly assess information orientation in health context and underlying reasons for seeking or avoidance. Using data larger longitudinal study of informal cancer caregivers, this examines psychometric properties the HIOS, including confirmatory factor analysis (CFA), reliability construct validity through associations with competence, coping distress. CFA supported two conceptually unique factors: Engagement...
As shared decision-making increasingly influences screening mammography, understanding similarities and differences between patients physician perspectives becomes crucially important. This study compares women's physicians' experiences of mammography decision-making. Results reflect the critical gaps which exist expectations confidence in regarding mammography.
Background Social support is a key component in maintaining cancer caregiver well‐being, and many resources exist to facilitate caregivers' use of social (eg, groups). This study sought determine how informal caregivers over the course caregiving. Methods The data are from Comprehensive Health Enhancement Support System (n = 202) patients with recently diagnosed lung cancer. Caregivers self‐reported their sociodemographic caregiving characteristics resource 6 months. Generalized additive...
To determine whether an online support tool can impact anxiety in women experiencing abnormal mammogram.We developed system using the Comprehensive Health Enhancement Support System (CHESS) designed for mammogram as a model. Our trial randomized 130 of these to (the intervention group) or list five commonly used Internet sites comparison group). Surveys assessed and breast cancer worry, patient satisfaction at three important clinical time points: when were notified their mammogram,...
Managing conflicts between different perspectives is critical to healthcare system redesign. This study compares the of stakeholders involved in family-centered rounds (FCR) a pediatric hospital. A survey was distributed 134 participants FCR. The objective evaluate stakeholder perceptions impact redesign strategies on family engagement Results showed parents, nurses, physicians and medical students have opinions about how enhance Recommendations for managing are discussed.
Introduction: The US Preventative Services Task Force recommends shared decision-making (SDM) between women aged 40 and 49 years their physician regarding timing of mammography screening. This preliminary study evaluates women’s physician’s satisfaction using Breast Cancer Risk Estimator & Decision Aid (BCARE-DA), a decision aid utilized during the clinical encounter, examines SDM quality for these encounters. Methods: Fifty-three BCARE-DA completed surveys measuring with Likert-type...