- Dialysis and Renal Disease Management
- Health Systems, Economic Evaluations, Quality of Life
- Renal and Vascular Pathologies
- Palliative Care and End-of-Life Issues
- Chronic Kidney Disease and Diabetes
- Patient-Provider Communication in Healthcare
- COVID-19 Clinical Research Studies
- Delphi Technique in Research
- Artificial Intelligence in Healthcare
- Patient Satisfaction in Healthcare
- Diabetes Management and Research
- Diabetes Management and Education
- Organ Donation and Transplantation
- Chronic Disease Management Strategies
- Atrial Fibrillation Management and Outcomes
- Acute Ischemic Stroke Management
- Healthcare Policy and Management
- Quality and Safety in Healthcare
- Muscle and Compartmental Disorders
- Renal Transplantation Outcomes and Treatments
- Acute Kidney Injury Research
- Meta-analysis and systematic reviews
Leiden University Medical Center
2020-2024
Leiden University
2021
Objectives Patient-reported outcome measures (PROMs) provide insight into patients’ experienced health and needs, can improve patient–professional communication. However, little is known about how to discuss PROM results. This study aimed in-depth knowledge of healthcare professionals’ experiences with perspectives on discussing results as part routine dialysis care. Design A qualitative was performed using an interpretive description approach. Individual semistructured interviews were...
Abstract Background Reviews of qualitative studies allow for deeper understanding concepts and findings beyond the single studies. Concerns on study reporting quality led to publication COREQ-guidelines in 2007, followed by ENTREQ-guidelines reviews 2012. The aim this meta-review is to: 1) investigate uptake COREQ- ENTREQ- checklists reviews; 2) compare primary included within these prior- post COREQ-publication. Methods were searched 02-Sept-2020 categorized as (1) or (2) ENTREQ-using, (3)...
Abstract Background and Aims Hospitalization is a common complication in patients with advanced chronic kidney disease (CKD). Predicting hospitalization would be beneficial for clinicians patients. Clinicians may assisted adequate healthcare planning by being able to anticipate hospitalizations. Additionally, have indicated wanting more information about their risk of hospitalization. By providing personal indication hospitalization, they better know what expect the future which can foster...
Abstract Background and Aims Prognostic prediction models can be used to identify dialysis patients that are at high risk of dying. By doing so, vulnerable monitored more closely treatment intensified where needed. In addition, individualized predictions help inform about their prognosis. Traditionally, prognostic primarily rely on known clinical predictors such as age, comorbidities laboratory markers. Although it is still unchartered territory in the field nephrology, studies other fields...
ABSTRACT Background Prognostic uncertainty is a recurring theme among patients with chronic kidney disease (CKD). We developed survey to explore whether CKD want know more about their future, and if so, which topics they prioritize. In addition, we explored differences between several subgroups. Methods A was constructed tested in collaboration the Dutch Kidney Patients Association. The consisted of three parts: (i) demographics, (ii) considerations (iii) prognostic information. distributed...
Abstract Background and Aims Patients with chronic kidney disease (CKD) often experience various symptoms have an increased risk for many adverse outcomes. The varying nature of the course comes much prognostic uncertainty, patients expressed a wish more information about their future disease. However, extent to which want know CKD varies highly per individual. By identifying topics are interested in regarding prognosis, attention can be given these clinical practice research. Therefore, aim...