A5027120173- Childhood Cancer Survivors' Quality of Life
- Infant Development and Preterm Care
- Adolescent and Pediatric Healthcare
- Family Support in Illness
- Family and Disability Support Research
- Family and Patient Care in Intensive Care Units
- Cystic Fibrosis Research Advances
Aarhus University Hospital
2018-2022
The aim of this study was to translate the patient reported experience measure (PREM) questionnaire"What do you think hospital? Help us get better!" into Danish used in outpatient clinics and explore its face content validity.The translation process followed WHO recommendations included forward translation, expert panel evaluation, back pre-testing cognitive interviews with 23 children adolescents.Children adolescents were positive using PREM as a way express their experiences. layout...
Newborn screening represents a paradigm shift in the treatment of children with cystic fibrosis. This study aimed to explore parents' everyday life experiences from time diagnosis and following months.Narrative interviews were conducted at Aarhus University Hospital, Denmark, parents (mothers = 15 fathers =14) term-born mean age 2 weeks (range 1-3.5 weeks). Participant observation field notes used complement interview data. The analysis was inspired by Kvale Brinkmann.Three themes...
Purpose: The aim of this study was to translate into Danish the patient reported experience measure (PREM) questionnaire ”What do you think hospital? Help us get better!” used in outpatient clinics and explore its face content validity.Design Methods: translation process followed WHO recommendations included forward translation, expert panel evaluation, back pre-testing cognitive interviews with 23 children adolescents.Results: Children adolescents were positive using PREM as a way express...