Introduction The objectives of the study reported here were to describe physical and psychological health persons with Usher syndrome Type II (USH2) explore any differences in terms gender. Methods participants recruited from Swedish database. In first step, 122 received questionnaire by mail, 96 (aged 18–84, a mean age 55, 53% whom female) agreed participate. Health on Equal Terms was used, which covered such items as health, living conditions, social relationships. Results for USH2...

Purpose: To explore life strategies in people with Usher syndrome type 2a.Background: There are no studies on syndrome. People deafblindness often described terms of poor health and low quality life, or as being vulnerable. From a clinical point view, it is importance to balance this picture, an increased knowledge strategies.Methods: The study had qualitative explorative design. Fourteen aged 20–64 years (4 women, 10 men) USH2a Sweden participated focus group interviews, which were...

The article describes physical health, psychological social trust, and financial situation in persons with deafblindness due to Usher syndrome type 1 (USH1) comparison a cross-section of the Swedish population. Persons USH1 were recruited through database. Totally, 87 adults received Health on Equal Terms (HET) questionnaire. HET was adjusted, thus questions translated into sign language, large font size, better contrast, structure compatible Braille script reader also provided....

Research has demonstrated that persons with Usher syndrome type 1 (USH1) have significantly poorer physical and psychological health compared to a reference group.To explore the relation between work, health, social trust, financial situation in USH1 group.Sixty-six (18-65 y) from Swedish database received questionnaire 47 were included, 23 working 24 non-working. The group comprised 3,049 198 non-working persons.The Health on Equal Terms was used statistical analysis multiple logistic...

Introduction The aim of this study was to describe health and social trust in persons with Usher syndrome type 3 (USH3) relation hearing visual impairment. Methods Participants were recruited from the Swedish database. Twenty-one USH3 received two questionnaires, which covered a wide range domains related trust. Fifteen individuals, 4 men 11 women aged 19–71 years, responded. Each outcome measure within every domain reported by individual structured into matrix, included auditory findings....

Purpose: This study aimed to explore lived experiences with working life from the perspective of people deafblindness due Usher syndrome type 2 (USH2).Background: A limited number studies have explored syndrome. One individuals USH2 showed that work active reported significantly better psychological health compared non-working individuals.Methods: Seven participants aged 38–50 years participated in interviews analysed by interpretative phenomenological analysis.Results: The analyses yielded...

Introduction The family life of people living with one member deafblindness has been sparsely described.Purpose aim the study was to explore how children experience their everyday when having a parent deafblindness.Methods An explorative in which data have collected by qualitative interviews children. Qualitative content analysis used for analysing data.Results Overall theme; Living an ordinary life—yet not, is based on four categories subcategories. A like any other describes: Having same...

The primary aim was to describe the similarities and differences among general health, physical psychological social trust, financial situations of people with Usher syndrome (USH) types 1, 2, 3. A second explore whether age, gender, clinical diagnosis, visual field, acuity, degree hearing impairment were associated USH.In this study, 162 USH living in Sweden included, all three disease represented. Data concerning vision, hearing, genetics retrieved from Swedish database. Group comparison...

Introduction: The consequences of living with deafblindness can be vast and have been described as concerning difficulties communication, restrictions in the activities daily a lack independence. Deafblindness has also associated poor health-related quality life. Little is known about parenting when having or how health family climate families which parent are affected. Aim: aim study was to describe life, sense coherence where deafblindness. Methods: A total 38 individuals, 14 were parents...

Objective To estimate the prevalence of severe dual sensory loss (DSL) among older persons (aged ≥65 years) in Swedish population, to identify diagnoses that cause DSL, and rehabilitation services which participants have been involved.Design A cross-sectional design was applied. Medical records from Audiological, Low Vision, Vision clinics two counties were used.Study sample 1257 adults, aged years with hearing (HL) (≥70 dB HL) included, whereof 101 had decimal visual acuity ≤0.3.Results...

Materials and methods This a qualitative interview study. Fourteen parents with deafblindness were interviewed. Most mothers (n = 10), ages ranging between 33 57 years (mean 46 years). Interviews transcribed, the analysis was done using inductive content analysis.

Deafblindness is a combined vision and hearing disability that restricts communication, access to information, mobility, thus limiting person’s activities full participation in society. Literature on how this might affect the lives of family members sparse. The aim study describe lived experience life from perspective one parent when other has deafblindness. Six partners deafblind parents, four men two women, agreed participate. Three were deaf communicated Swedish sign language. Qualitative...