A5074333414- Palliative Care and End-of-Life Issues
- Childhood Cancer Survivors' Quality of Life
- Opioid Use Disorder Treatment
- Cancer survivorship and care
- Family Support in Illness
- Substance Abuse Treatment and Outcomes
- Healthcare professionals’ stress and burnout
- Patient Dignity and Privacy
- Digital Mental Health Interventions
- Innovations in Medical Education
- Economic and Financial Impacts of Cancer
- Treatment of Major Depression
- Alcoholism and Thiamine Deficiency
- Schizophrenia research and treatment
- Pain Management and Opioid Use
- Ethics and Legal Issues in Pediatric Healthcare
- Smoking Behavior and Cessation
- Music Therapy and Health
- Neurotransmitter Receptor Influence on Behavior
- Mental Health Treatment and Access
- Health and Medical Research Impacts
- Health Literacy and Information Accessibility
- Patient-Provider Communication in Healthcare
- Adolescent and Pediatric Healthcare
- Prenatal Substance Exposure Effects
Cornell University
2009-2024
University of British Columbia
2021-2024
Princess Margaret Cancer Centre
2019-2024
University Health Network
2019-2024
Weill Cornell Medicine
2023-2024
University of Toronto
2023-2024
Intermountain Medical Center
2024
Presbyterian Hospital
2017-2023
New York Hospital Queens
2016-2023
NewYork–Presbyterian Hospital
2016-2023
The COVID-19 pandemic has heightened the unique emotional and social needs expressed by adolescents young adults (AYAs) with cancer. To help address this, we adapted an in-person developmentally tailored group music therapy intervention to online format. purpose of this study was gain preliminary data explore acceptability version group. A qualitative descriptive approach chosen understand experiences program participants, who were patients at a tertiary cancer centre in Toronto, Canada....
Fear of cancer recurrence (FCR) affects approximately 50% family caregivers. While FCR in patients has been well-documented, less is known about the experience This study aimed to qualitatively explore distinct characteristics A focus group and semi-structured interviews were conducted via videoconferencing with caregivers survivors (stages I–III, finished treatment, no recurrence). Participants recruited through Canadian hospitals, community partners, social media. The qualitative explored...
ABSTRACT Background Adolescents and young adults (AYA, 18–39) with high‐grade glioma (HGG) face unique challenges at a life stage focused on autonomy, careers, relationships, family planning. Aim This study explores their experiences to inform life‐stage appropriate support resources. Methods In this mixed‐methods study, we surveyed AYA HGG patients Princess Margaret Cancer Centre (PM) assess symptom care satisfaction. Interviews further explored illness needs. Descriptive statistics...
Adolescents and young adults (AYAs; age 15-39 years) with advanced cancer are a population in whom quality of life is uniquely affected because their stage life. However, training focused on palliative care for AYAs not routinely provided health providers (HCPs) oncology. This study aims to explore the experiences HCPs involved introducing providing caring families understand unique challenges experience.Using qualitative descriptive design, semistructured interviews were conducted medical...
Background Family caregivers of cancer survivors experience equal or greater levels fear recurrence (FCR) than themselves. Some interventions have demonstrated their ability to reduce FCR among and dyads (patient caregivers). However, date, no validated intervention exists focus solely on family caregiver's FCR. Objectives This study aimed (1) adapt the evidence-based in-person Fear Of Recurrence Therapy (FORT) for (referred here in as FC-FORT) a virtual delivery format (2) test its...
Persons with drug use disorders are an underserved and stigmatized population, the COVID-19 pandemic could exacerbate these issues. The discussion around those in midst of has focused on need to ensure uninterrupted treatment access; however, very few this population actually receive treatment, retention is a substantial issue among who do. Evidence from other chronic conditions suggests persons at high risk for severe complications foregoing care due fear contracting virus. tend fall into...
Clinical guidelines aimed at cancer care for adolescents and young adults (AYAs) encourage early integration of palliative care, yet there are scarce data to support these recommendations. We conducted a retrospective chart review AYA patients, aged 15 39 years, who were referred the Integrated Palliative Care Psychiatry Clinic (IAPCPC) Princess Margaret Cancer Centre between May 2017 November 2019 (n = 69). Demographic data, symptom prevalence, change in scores baseline consultation first...
In cancer care, gaps in support to help patients manage and live with the side-effects from treatments have increased emphasis on empowering be more active involved managing their own health. However, empowerment relation promoting self-management behaviors is not well understood. Using social constructivist grounded theory approach, our goal was develop a theoretical understanding of this phenomenon post-treatment patients. Twenty-two participated semi-structured focused interview...
Fear of cancer recurrence (FCR) is common, persistent, and associated with lower quality life, impaired functioning, psychological distress in patients. Studies suggest that family caregivers patients experience equal or greater levels FCR than themselves. In the past 5 years, several interventions have demonstrated their ability to reduce among patient-caregiver dyads. However, date, no intervention exists individually target caregiver's FCR. The aims proposed pilot study are (1) assess...
Resident physicians frequently provide care for individuals diagnosed with mental illness and substance use disorders (SUDs). Clinicians-including psychiatrists addiction professionals-have been shown to possess negative attitudes toward these individuals, which is concerning since may have an adverse impact on patient engagement, treatment, outcomes. However, little known about resident physicians' SUDs. The objective of this study was examine the emergency medicine, internal...
Colorectal cancer (CRC) can be demanding for primary caregivers; yet, there is insufficient evidence describing the caregiver-reported outcomes (CROs) that matter most to caregivers. CROs refer caregivers' assessments of their own health status as a result supporting patient. The study purpose was describe emotions were impactful caregivers patients with CRC, and how importance attribute these changed from diagnosis throughout treatment. Guided by qualitative Interpretive Description, we...
PURPOSE: Young adults (YAs; defined as 18-39 years of age) with advanced cancer are a group for whom standardized age-appropriate palliative care has not been established. The purpose this study was to explore the YA experience and perceptions in an outpatient interdisciplinary clinic population. PATIENTS AND METHODS: Using interpretive descriptive design, semistructured interviews were conducted 12 YAs who being seen jointly by physician psychiatrist ambulatory clinic. Interviews explored...
Purpose: Caregivers of patients with cancer cope socioemotional challenges, which can adversely affect their well-being. We developed an intervention, expressive writing and reading (EWR), to promote emotional processing social connectedness among caregivers. In a single-arm pilot study, we assessed its feasibility perceived usefulness. Methods: participated in weekly 1.5-hour EWR workshops offered over 20 weeks. After 4 sessions, they completed semistructured interviews, were analyzed using...
The overall aim of this study was to explore current remote symptom support training programs provided nurses in ambulatory oncology across Canada, using a survey-methods environmental scan. Of 36 delivered invitations, 28 responded (77.8%) representing 10 provinces. 25 that offer telephone support, 17 provide training, seven do not, and one did not say. Seven shared materials with the investigators elements included: management guidelines (n = 6), triage process/principles 5), competent...
Abstract Background The importance of patient-centered measurement in cancer care has led to recognition the potential for caregiver-reported outcomes improve caregiver, patient and healthcare system outcomes. Yet, there is limited evidence inform outcome implementation. Our purpose was generate meaningful constructive integration into benefit caregivers, including exploration question extent which these assessments should be shared with patients. We focused on caregivers patients colorectal...
Cancer survivorship is recognised globally as a key issue. In spite of the role played by nurses in care, there an identified gap nurse's knowledge this area. This study reports on development and evaluation educational resource for working with people affected cancer. The was designed using adult learning principles includes variety materials point care resources. A mixed-methods sequential exploratory design used to undertake programme. included use online surveys semi-structured...
Patients with cancer require adequate preparation in self-management of treatment toxicities to reduce morbidity that can be achieved through well-designed digital technologies are developed co-design patients and end users.We undertook a user-centered process partnership other knowledge users develop iteratively test an evidence-based theoretically informed web-based program (I-Can Manage). The specific study aims addressed 2 phases were (1) identify from the perspective clinicians desired...