A5087039786- Palliative Care and End-of-Life Issues
- Patient Dignity and Privacy
- Patient-Provider Communication in Healthcare
- Grief, Bereavement, and Mental Health
- Intensive Care Unit Cognitive Disorders
- Childhood Cancer Survivors' Quality of Life
- Family and Patient Care in Intensive Care Units
- Healthcare Decision-Making and Restraints
- Health Systems, Economic Evaluations, Quality of Life
- Cancer survivorship and care
- Ethics in medical practice
- Geriatric Care and Nursing Homes
- Chronic Disease Management Strategies
- Family Support in Illness
- Pharmacological Effects and Toxicity Studies
- Pain Management and Opioid Use
- Social and Demographic Issues in Germany
- Delphi Technique in Research
- Interprofessional Education and Collaboration
- Anesthesia and Sedative Agents
- Clinical practice guidelines implementation
- Ethics in Clinical Research
- Health and Medical Studies
- Intergenerational Family Dynamics and Caregiving
- Telemedicine and Telehealth Implementation
Radboud University Medical Center
2016-2025
Radboud University Nijmegen
2016-2025
Netherlands Institute for Health Services Research
2022-2025
European Association for Palliative Care
2024
The Netherlands Cancer Institute
2023
Cancer Institute (WIA)
2023
Cancer Genomics Centre
2023
University Medical Center Utrecht
2023
University of Amsterdam
2023
University Medical Center
2022
Background: The European Association for Palliative Care (EAPC) acknowledges palliative sedation as an important, broadly accepted intervention patients with life-limiting disease experiencing refractory symptoms. EAPC therefore developed 2009 a framework on sedation. A revision was needed due to new evidence from literature, ongoing debate and criticism of methodology, terminology applicability. Aim: To provide evidence- consensus-based guidance healthcare professionals involved in...
Teleconsultation seems to be a promising intervention for providing palliative care home-dwelling patients; however, its effect on clinically relevant outcome measures remains largely unexplored. Therefore, the purpose of this study was determine whether weekly teleconsultations from hospital-based specialist consultation team (SPCT) improved patient-experienced symptom burden compared "care as usual". Secondary objectives were effects these unmet needs, continuity care, hospital admissions,...
Patients with advanced diseases often experience deficient continuity of care. Although integrated palliative care promotes care, it is not clear how can be optimized to improve experiences.To examine relational, informational and management are experienced by patients their family caregivers receiving from several initiatives in five European countries.We adopted a longitudinal qualitative study design including two interviews (interval 3 months) focusing on health professionals responded...
Objective The problems and needs of advanced cancer patients proxies normally increase as the disease progresses. Home-based their benefit from collaborations between primary care physicians hospital-based palliative specialists when confronted with complex in last phase life. Telemedicine might facilitate direct, patient-centered communication proxies, physicians, specialist teams (SPCTs). This study focuses on impact teleconsultation technologies relationships home-based specialists....
Palliative care (PC) development is diverse and lacks an effective integration into European healthcare systems. This article investigates levels of integrated PC in countries.A qualitative survey was undertaken for the 2013 EAPC Atlas Europe with boards national associations, eliciting opinions on opportunities for, barriers to, development.Barriers directly related to were identified analyzed thematically according (1) dimensions World Health Organization (WHO) public health model (2) by...
Family carers manage a wide range of responsibilities in the lives and care patients receiving palliative care. They fulfil multiple roles perform activities within different settings. This has immediate consequences on family carers' every-day lives. According to literature, are both part formal informal network, but also persons need support. article aims investigate 1) burdens rewards associated with caregiving 2) what find helpful their contact professionals from integrated initiatives...
Background: Integrated palliative care aims at improving coordination of services around patients’ anticipated needs. However, international comparisons how integrated is implemented across four key domains (content care, patient flow, information logistics and availability (human) resources material) are lacking. Aim: To examine takes shape in practice abovementioned within several initiatives Europe. Design: Qualitative group interview design. Setting/participants: A total 19 interviews...
Abstract Background According to EU policy, anyone in need of palliative care should be able have access it. It is therefore important investigate which topics are subject legislation and regulations Europe how these implemented (national) health plans. This paper aims deliver a structured overview the legislation, existing different policies regarding seven European countries. Methods In 2008 an inventory organisation was developed by researchers Europall project. Included were two open...
Continuous sedation, contrary to euthanasia, has been increasingly accepted among medical professionals worldwide. In the Netherlands, a national guideline for continuous palliative sedation developed contribute quality of practice. The present follow-up study investigated whether practice changed after introduction this guideline.This compared before and on December 7, 2005. A baseline measurement was performed between February 1, 2003, May 2005, with an enrollment 492 physicians (medical...
The number of people living with advanced cancer and chronic disease has increased worldwide. Many these patients could benefit from palliative care, focusing on optimising the quality life their families facing problems resulting life-threatening diseases. However, fragmentation discontinuity care services often result in suboptimal care. In order to overcome problems, models using an integrated approach are increasingly advocated services. Although several definitions Integrated Palliative...
Background: Collaboration between the healthcare domain and welfare could benefit people confronted with an incurable disease residing at home their informal caregivers, but little is known about this collaboration regarding palliative care. There are regional care networks in Netherlands, supporting interdisciplinary integrated care; each network has a coordinator who primary liaison for overview of services activities region. However, view on role field unknown. Objective: The aim study to...
<h3>Background</h3> Two guidelines addressing palliative sedation have been published in the Netherlands 2002 and 2003. The objective of present study is to determine adherence for with regard prescription. restricted practice continuous deep sedation. <h3>Methods</h3> A structured retrospective questionnaire was administered 1464 physicians concerning their last case during past 12 months. Physicians included Dutch hospital specialists, general practitioners, nursing home physicians....
This article examines delicate issues in continuous deep sedation (CDS) from the perspectives of different types physicians. The following sensitive involved CDS were investigated: artificial hydration, for nonphysical discomfort, relationship between and euthanasia, patient involvement decision making CDS.A structured retrospective questionnaire concerning most recent case during past 12 months was sent to a sample medical specialists (n = 727), general practitioners 626), nursing home...