A5089755113- Childhood Cancer Survivors' Quality of Life
- Cancer-related cognitive impairment studies
- Sleep and related disorders
- Cancer survivorship and care
- Palliative Care and End-of-Life Issues
- Optimism, Hope, and Well-being
- Ethics in medical practice
- Bioinformatics and Genomic Networks
- Family and Patient Care in Intensive Care Units
- Sleep and Wakefulness Research
- Patient Dignity and Privacy
The University of Sydney
2017-2025
Cooperative Trials Group for Neuro-Oncology
2024
South Western Sydney Local Health District
2017-2021
UNSW Sydney
2017-2021
Ingham Institute
2017
University of Technology Sydney
2017
Emerging evidence supports the clinical impact of sleep disturbance (SD) on cancer patients. This study aimed to determine prevalence and predictors SD in people with malignant brain tumors caregivers, explore any relationship between patient-caregiver dyad's sleep.Eighty-one adults primary (91%) or metastatic (9%) their family caregivers (n = 44) completed a series self-report questionnaires, including Pittsburgh Sleep Quality Index (PSQI), Insomnia Severity Index, drowsiness item The MD...
Sleep disturbances, including insomnia, sleep-disordered breathing, and circadian rhythm disorders with potential consequences excessive daytime somnolence worsening fatigue, are prevalent yet largely under-measured therefore under-managed problems in people receiving palliative care. This has the to negatively affect person's functioning quality of life.
The literature describing the incidence of sleep difficulty in CNS cancers is very limited, with exploration a symptom trajectory particularly sparse people advanced disease. We aimed to establish prevalence and longitudinal populations receiving palliative care nationally, identify clinically modifiable predictors difficulty.A consecutive cohort 2406 patients from sites participating Australian national Palliative Care Outcomes Collaboration were evaluated longitudinally on patient-reported...
Sleep is an important element in health-related quality of life cancer patients and caregivers. This study aimed to explore the experience sleep disturbance people with malignant brain tumors (BT) their family caregivers.Participants were recruited from ambulatory neuro-oncology clinics. Semi-structured interviews conducted 24 (67% high-grade gliomas) 14 Data analyzed thematically using a framework synthesis.We identified six themes relating perceptions nature, impact, causal factors,...
Abstract Background We aimed to define levels of unmet supportive care needs in people with primary brain tumor and reach expert consensus on feasibility addressing patients’ clinical practice. Methods conducted secondary analysis a prospective cohort study diagnosed high-grade glioma (n = 116) who completed the Supportive Care Needs Survey-Short Form during adjuvant chemoradiation therapy. Participants were allocated 1 3 categories: no need (“no need” for help all items), low (“low at least...
Abstract Purpose Cancer-related fatigue (CRF) is one of the most common symptoms reported by people with primary brain tumour (BT). Previous research predominantly examined CRF using quantitative assessments, failing to capture rich insight garnered from exploring individuals’ lived experiences. We addressed this gap qualitatively BTs’ experiences CRF. Methods Semi-structured interviews were conducted BT, their caregivers, and healthcare professionals (HCPs) who care for them. Interviews...
Abstract BACKGROUND People with primary brain tumours (PwBT) and their families expereince high distress face challenges navigating the disease, healthcare system, treatment, and/or survivorship. Coordination of care is an approach to achieving continuous, timely according individual needs PwBT. Within Brain Cancer Rehabilitation, Assessment, Interventions for Survivorship Needs (BRAINS) program, we aimed explore professionals’ (HCPs) practices perceptions about neuro-oncology coordination...
Emerging evidence suggests a close link between sleep disturbance and clinical outcomes the health-related quality of life in cancer patients. Yet, understanding is neglected areas both neuro-oncology care research. This study aimed to determine prevalence predictors brain tumor patients caregivers, explore any interaction patient-caregiver dyad’s sleep. Fifty-six adult with primary malignant (86.5%) or metastatic (13.5%) tumors their family caregivers (N=31) completed series self-report...