A5079214076- Palliative Care and End-of-Life Issues
- Cancer survivorship and care
- Patient-Provider Communication in Healthcare
- Family Support in Illness
- Advances in Oncology and Radiotherapy
- Childhood Cancer Survivors' Quality of Life
- Global Cancer Incidence and Screening
- Radiation Dose and Imaging
- Radiology practices and education
- Cancer-related cognitive impairment studies
- Glioma Diagnosis and Treatment
- Health Literacy and Information Accessibility
- Advanced Radiotherapy Techniques
- Dementia and Cognitive Impairment Research
- Economic and Financial Impacts of Cancer
- Colorectal Cancer Screening and Detection
- Delphi Technique in Research
- Family and Disability Support Research
- Primary Care and Health Outcomes
- Patient Satisfaction in Healthcare
- Grief, Bereavement, and Mental Health
- Global Health Workforce Issues
- Family and Patient Care in Intensive Care Units
- Effects of Radiation Exposure
- Sarcoma Diagnosis and Treatment
Curtin University
2016-2025
Bentley University
2024
University of Dundee
2021
Olivia Newton-John Cancer Wellness & Research Centre
2018
Austin Health
2018
UNSW Sydney
2015-2017
Monash University
2017
In-Q-Tel
2015
Sir Charles Gairdner Hospital
2015
The University of Notre Dame Australia
2015
Patients diagnosed with high-grade gliomas have a poor prognosis and limited life expectancy, often experience rapid decline in function. Caring for patient glioma is particularly stressful because caregivers are faced not only cancer-related caregiving issues, but also issues relating to caring someone cognitive impairment. This study aimed articulate the experiences of family people describe their information support needs. A grounded theory method was adopted. Twenty-one were interviewed...
HALKETT G.K.B., KRISTJANSON L.J., LOBB E., O'DRISCOLL C., TAYLOR M. & SPRY N. (2010) European Journal of Cancer CareMeeting breast cancer patients' information needs during radiotherapy: what can we do to improve the and support that is currently provided? Previous research has reported patients require specific relating radiotherapy; however, these studies fail describe over time. The aims this study were determine who are receiving radiotherapy identify when prefer receive information....
High-grade glioma (HGG) is a rapidly progressing and debilitating disease. Family carers take on multiple responsibilities experience high levels of distress. We aimed to deliver nurse-led intervention (Care-IS) improve their preparedness care reduce distress.We conducted randomised controlled trial (ACTRN:12612001147875). Carers HGG patients were recruited during patients' combined chemoradiation treatment. The complex comprised four components: (1) initial telephone assessment carer unmet...
Background: Children living with parental cancer are at an increased risk for various psychosocial, emotional, and behavioural problems. However, research regarding how children affected by their parent’s diagnosis is still developing patients’ typically invisible in clinical practice. This study aimed to investigate diagnosis, from children’s perspectives. Methods: Informed methods of grounded theory embedded within a social constructivist framework, twelve (ranging 5 17 years) parent were...
Abstract Introduction : Radiotherapy is a common treatment for breast cancer. However, previous studies have shown that women who present radiotherapy fear its use and associated side effects. The aims of this study were to develop further understanding cancer patients' fears radiotherapy, ascertain how patients deal with these determine the best time in planning trajectory health professionals address concerns. Methods Semi‐structured interviews conducted early at four points during their...
The aims of this study were to determine whether a radiation therapist-led patient education intervention (RT Prepare) reduced breasts cancer patients' psychological distress (primary endpoint); anxiety, depression and concerns about radiotherapy, increased knowledge radiotherapy preparedness (secondary endpoints). Patient health system usage costs also assessed.
The FACT COST is a patient-rated measure of financial toxicity, developed and validated in North American population. We aimed to confirm the validity reliability Australian cancer patients, because healthcare funding structure different that America.A single center, cross-sectional study design investigated toxicity oncology outpatients. Eligible adults had current malignancy, with or without active treatment. primary endpoint was degree experienced via questionnaire; secondary endpoints...
Abstract Purpose Informal caregivers of people with high grade glioma (HGG) often have levels unmet support needs. Routine screening for needs can facilitate appropriate and timely access to supportive care. We aimed develop a brief tool HGG caregiver needs, based on the Supportive Care Needs Survey—Partners & Caregivers (SCNS-P&C). Methods Secondary analysis was performed responses SCNS-P&C from 188 caregivers, who participated in Care-IS trial. items were assessed against four...
Abstract Background Managing brain tumour related personality and behaviour changes (BTrPBc) is complex with contributors including location, type, grade; treatment side effects; psychological adjustment to a primary diagnosis. Although carers of people high-grade glioma consistently report BTrPBc as an area where they require support, there lack guidelines for healthcare professionals address BTrPBc. We aimed explore how neuro-oncology manage in adults tumour. Methods This study used...
The aim of this study was to explore patients' perspectives on the role their general practitioner (GP) after an advanced cancer diagnosis. A qualitative research approach used. Semi-structured interviews were conducted and data analysed using a constant comparative methodology. Participants eligible if they diagnosed with referred for palliative radiotherapy. Data saturation achieved 21 interviews. Key themes included (1) obtaining diagnosis referral treatment; (2) preference specialist...
Abstract Background Few studies have explored the unmet needs of carers people with high-grade glioma. We aimed to determine carers' levels distress during treatment, understand their support and explore predictors distress. Methods Carers glioma undergoing chemoradiotherapy were recruited this prospective, longitudinal cohort study. completed validated Supportive Care Needs Survey, Brain Tumour Specific Scale, Distress Thermometer (DT), General Health Questionnaire (GHQ-12). Questionnaires...