A5065776165- Palliative Care and End-of-Life Issues
- Patient Dignity and Privacy
- Childhood Cancer Survivors' Quality of Life
- Patient-Provider Communication in Healthcare
- Grief, Bereavement, and Mental Health
- Geriatric Care and Nursing Homes
- Family and Patient Care in Intensive Care Units
- Health Systems, Economic Evaluations, Quality of Life
- Clinical practice guidelines implementation
- Cancer survivorship and care
- Interprofessional Education and Collaboration
- Religion, Spirituality, and Psychology
- Family Support in Illness
- Chronic Disease Management Strategies
- Health Policy Implementation Science
- Pediatric Pain Management Techniques
- Intergenerational Family Dynamics and Caregiving
- Complementary and Alternative Medicine Studies
- Optimism, Hope, and Well-being
- Ethics and Legal Issues in Pediatric Healthcare
- Ethics in medical practice
- Emergency and Acute Care Studies
- Global Cancer Incidence and Screening
- Delphi Technique in Research
- Aging and Gerontology Research
The University of Sydney
2015-2024
Northern Sydney Local Health District
2015-2024
Sydney Adventist Hospital
2013-2024
Royal Prince Alfred Hospital
2007-2024
Nepean Hospital
2007-2024
National Council for Palliative Care
2022-2024
Cancer Care Services
2024
South Eastern Sydney Local Health District
2024
Concord Hospital
2024
Tamworth Hospital
2024
Purpose To determine whether provision of a question prompt list (QPL) influences advanced cancer patients’/caregivers’ questions and discussion topics relevant to end-of-life care during consultations with palliative (PC) physician. Patients Methods This randomized controlled trial included patients randomly assigned standard consultation or QPL before consultation, endorsement the by physician consultation. Consecutive eligible referred 15 PC physicians from nine Australian services were...
Purpose A clinical pathway for anxiety and depression in adult cancer patients was developed to guide best practice Australia. Methods The based on a rapid review of existing guidelines, systematic reviews meta-analyses, stakeholder interviews, Delphi process with 87 multidisciplinary stakeholders input from advisory panel. Results recommends formalized routine screening at key points the patient's journey. Edmonton Symptom Assessment System or distress thermometer problem checklist is...
Abstract BACKGROUND It is challenging for clinicians to foster coping and allow hope when discussing prognosis end‐of‐life (EOL) issues with terminally ill cancer patients their caregivers. To the authors' knowledge, little research evidence currently available guide clinical practice. METHODS The authors conducted focus groups individual interviews 19 far advanced 24 caregivers from 3 palliative care (PC) services in Sydney, 22 PC health professionals (HPs) around Australia. were audiotaped...
Background: We developed a novel individualised training program regarding end-of-life communication, designed to be time effective for busy junior-doctors working in hospital settings. Aim: aimed pilot this brief with explore its acceptability, feasibility and effect on the doctors’ confidence, communication skills, attitudes towards psychosocial care burnout. Design: The content of intervention was informed by systematic literature review evidence-based clinical practice guidelines...
Objectives It is important that the outcomes of advance care planning (ACP) conversations are documented and available at point care. Advance directives (ACDs) a subset ACP documentation refer to structured documents completed signed by competent adults. Other includes informal person or on behalf someone else (eg, clinician, family). The primary objectives were describe prevalence correlates ACDs among Australians aged 65 over accessing health residential services. secondary aim was other...
The difficulty of negotiating the concerns family members while also respecting needs patient adds complexity to task discussing prognosis and end-of-life (EOL) issues with terminally ill cancer patients. informational caregivers may be different from those patients themselves regard these topics. However, authors' knowledge, this issue has received relatively little research attention.The authors conducted focus groups individual interviews 19 far advanced 24 3 palliative care (PC) services...
Question prompt lists (QPLs) have been shown to be an inexpensive and effective communication tool for patients in oncology consultations. We aimed develop pilot a QPL palliative care (PC) patients. In order identify suitable questions inclusion the QPL, we conducted focus groups individual interviews with 19 patients, 24 carers 22 PC health professionals. A further 21 professionals reviewed draft document. The was piloted 23 total, 112 were identified grouped into eight categories. All...
To investigate the facilitators, barriers and strategies that Australian palliative care nurses identify in providing existential spiritual for patients with life-limiting illnesses.Palliative aims to be holistic, incorporating all domains of personhood, but spiritual/existential domain issues are often undertreated. Lack time skills concerns what you may uncover hamper provision.A qualitative study through semistructured interviews.We interviewed 20 from a cross section area work, place...
Background: Clinicians and patients find prognosis end-of-life care discussions challenging. Misunderstanding one’s can contribute to poor decision-making quality of life. A question prompt list (booklet questions ask clinicians) targeting these issues may help overcome communication barriers. None exists for outside the palliative setting. Aim: To develop/pilot a facilitating discussion/planning oncology with advanced cancer from Australia United States explore acceptability, perceived...
Abstract Objective Discussing end‐of‐life (EOL) care is challenging when death not imminent, contributing to poor decision‐making and EOL quality‐of‐life. A communication support program (CSP) targeting these issues may facilitate discussions. We aimed qualitatively explore responses a nurse‐led CSP, incorporating question prompt list (QPL—booklet of questions patients/caregivers can ask clinicians), promoting life expectancy EOL‐care Methods Participants met nurse‐facilitator an...
We modified and evaluated an advance care planning (ACP) intervention, which had been shown to improve compliance with patient's end of life (EoL) wishes, in a different patient population. Patients incurable cancer, Family Member (FM), were randomised one-to-one usual or plus ACP between April 2014 January 2017. Oncologists participants non-blinded. was based on the Respecting Patient Choices model, offer provide individualised ranges for typical, best-case worst-case scenarios survival...
Advance care planning (ACP) can offer benefits to patients and their families, especially when delivered in outpatient settings, but uptake remains low. Common barriers for health professionals include a perceived lack of time adequate training, experience, confidence conducting ACP. Patient-reported awareness ACP or discomfort initiating engaging discussions about end-of-life.We aimed explore patients' perspectives an intervention designed address common the general practice setting. We...