A5038681149- Innovative Human-Technology Interaction
- Mobile Health and mHealth Applications
- Technology Use by Older Adults
- Persona Design and Applications
- Innovative Approaches in Technology and Social Development
- Digital Mental Health Interventions
- Knowledge Management and Sharing
- Health Policy Implementation Science
- Complex Systems and Decision Making
- Information Systems Theories and Implementation
- Design Education and Practice
- Health Literacy and Information Accessibility
- Advanced Text Analysis Techniques
- Digital Marketing and Social Media
- Artificial Intelligence in Healthcare and Education
- Crafts, Textile, and Design
- Cystic Fibrosis Research Advances
- Patient-Provider Communication in Healthcare
- Research Data Management Practices
- Explainable Artificial Intelligence (XAI)
- Electronic Health Records Systems
- Fashion and Cultural Textiles
- Team Dynamics and Performance
- ICT in Developing Communities
- E-Government and Public Services
Indiana University Bloomington
2022-2025
New York University
2019-2021
University of Michigan
2012-2017
Syracuse University
2011-2012
Designing systems to support the social context of personal data is a topic importance in CSCW, particularly area health and wellness. The relational complexities psychological consequences living with data, however, are still emerging. Drawing on 12+ month ethnography corroborating survey we detail experiences parents using Nightscout--an open source, DIY system for remotely monitoring blood glucose data-with their children who have type one diabetes. Managing diabetes Nightscout deeply (at...
Abstract Background Patient-centered care has been shown to improve patient outcomes, satisfaction, and engagement. However, there is a paucity of research on patient-centered in the inpatient setting, including an understanding unmet informational needs that may be limiting Pediatric hematopoietic stem cell transplantation (HSCT) represents ideal population for elucidating needs, due procedure’s complexity its requirement caregiver involvement. Methods We conducted field observations...
In this paper, we present ethnographic account of people's everyday behavioral health experiences in the city Jackson, Michigan to explore community forms care work through an infrastructural lens. Detailing interactions with clinical processes and policies, local resources, diverse social worlds, highlight problematic healthcare delivery gaps, as well informal (and often invisible) practices people depend upon manage their needs given socioeconomic hardships cultural concerns. We also...
Health information technology (IT) has opened exciting avenues for capturing, delivering and sharing data, offers the potential to develop cost-effective, patient-focused applications. In recent years, there been a proliferation of health IT applications such as outpatient portals. Rigorous evaluation is fundamental ensure effectiveness sustainability, resistance more widespread adoption portals may be due lack user friendliness. that integrate with existing electronic record present in...
The impact of health information on caregivers is increasing interest to HCI/CSCW in designing systems support the social and emotional dimensions managing health. Drawing an interview study, as well corroborating data including a multi-year ethnography, we detail practices (particularly parents) bone marrow transplant (BMT) center. We examine interconnections between emotion work performed by through liminal lens, highlighting BMT experience time transition reflection which must quickly...
The proposed workshop will identify research questions that enable the field to uncover types of work, labor relations, and social impacts should be considered when designing AI-based healthcare technology. aims outline key challenges, guidelines, future agendas for field, provide collaboration opportunities CSCW researchers, scientists, AI clinicians, relevant stakeholders in healthcare, share their perspectives co-create sociotechnical approaches tackle timely issues related automation work.
Computer-Supported Cooperative Work (CSCW) and Human- Computer Interaction (HCI) have long studied how technology can support material relational aspects of care work, typically in clinical healthcare settings. More recently, we see increasing recognition work such as informal provision, child elderly care, organizing advocacy, domestic service work. However, the COVID-19 pandemic has underscored long-present tensions between deep necessity simultaneous devaluation our infrastructures. This...
The last several years have shown a strong growth of Artificial Intelligence (AI) technologies with promising results for many areas healthcare. HCI has contributed to these discussions, mainly studies on explainability advanced algorithms. However, there are only few AI-systems based machine learning algorithms that make it the real world and everyday care. This challenging move been named "last mile" AI in healthcare, emphasizing sociotechnical uncertainties unforeseen learnings from...
Abstract Based on interviews with people who had diabetes, high blood pressure, and kidney disease in Flint, Michigan, we found actively doing information work to manage their health the face of poverty, potentially violent conditions, stress, a distrust institutionalized medicine. More specifically, observed translating into context everyday lives. We present various translations form local strategies for chronic illness management. Study findings highlight initial implications support...
Human–computer interaction research on personal informatics in health care has focused systems that aim to support patient empowerment and enable better outcomes with data monitoring tracking. Through examining the lived experience of used manage chronic illness, we show how such technology design is also site radical dependencies, collaborative arrangements, wider sociopolitical concerns tied new forms technical labor shifts medical expertise. Drawing from ethnographic open source,...
New technical forms of deception–including AI deepfakes and unethical uses ChatGTP–have gained attention in the wider research community media. There has also been an increase coordinated social activities bad actors posing as legitimate human participants. People, for example, sign up online HCI studies by misrepresenting their identities experiences. This workshop explores what counts "fraud" rapidly changing sociotechnical landscape qualitative sites, how might our better understand (and...
The goal of this workshop is to bring together CSCW audiences who engage in studies and interventions related care work. Our aims are understand how has been conceptualized the extant community, identify core issues concerns, formalize concepts could be used as a lens inquire into domain. We will explore following themes: invisibility work; evolution labor; can often sentimentalized, formalized, or infantilizing; we attend to-and design for-the multiple experiences care. Participants invited...
Pediatric hematopoietic cell transplantation (HCT), commonly referred to as blood and marrow (BMT), is an intense treatment modality that requires the involvement of engaged caregivers during patient's (child's) prolonged hospitalization. The ubiquity electronic health records (EHRs) a trend toward patient-centered care could allow novel information technology (IT) system increase parental engagement. paucity research on acute care, hospital-based (inpatient) IT applications for patients or...
Patient work encompasses a challenging set of activities necessary for learning about and managing chronic conditions over time. Many patient-centered health technology interventions focus on supporting types patient work, such as symptom tracking, medication adherence, information sharing between patients providers. However, people may not always follow, or actively resist, the prescribed by their formal role. In this paper, we present three case studies with different to critically reflect...
Meals are a central (and messy) part of family life. Previous design framings for mealtime technologies have focused on supporting dietary needs or social and celebratory interactions at the dinner table; however, meals involve coordination many activities complicated dynamics. In this paper, we report findings from interviews sessions with 18 families Midwestern United States (including both partners/parents children) to uncover important differences tensions that arise around domestic meal...
The application of artificial intelligence (AI) to the behavioral health domain has led a growing interest in use machine learning (ML) techniques identify patterns people's personal data with goal detecting-and even predicting-conditions such as depression, bipolar disorder, and schizophrenia. This paper investigates science practices design narratives that underlie AI-mediated through situational analysis three natural language processing (NLP) training datasets. Examining datasets...
Contemporary cyberinfrastructure (CI) seem poorly developed to meet the distributed work practices of social scientists. We draw from literatures science studies and e-science advance a document-centered articulation scientists' practices. report on pilot study provide some insights into CI needs for these scholars. This relied mixed-methodological approach involving mapping digital physical documents, automated tracking desktop online repositories, participant-generated images documents...
Determining the influence of organizational Twitter accounts is far from an exact science, although numerous companies (most prominently Klout) have recently sought to find appropriate metrics and algorithms. Klout, a company that measures on social web, ranked Syracuse University (SU) as No. 2 "Most Influential College Twitter". While at first glance, Klout's ranking presents flattering portrayal SU's adept use media, we question if Klout score has real substance, actually reflects...
This paper explores the formative user interface design of a socially-interactive dressing room. The room allows shoppers to talk their friends in real time for opinions on garment purchasing decisions. Our work is motivated by observation that who lack fashion sense often rely friends' when making Using iterative methodology, we conducted mini focus group and interviews among male female refine design. findings suggest an approach proves be useful uncovering addressing usability,...
A limited understanding of the distributed work practices social scientists impedes current efforts to develop cyberinfrastructure (CI) that meets needs these scholars. In this paper we review literature on theory, organization, collaborative practices, and epistemic cultures sciences summarize fundamental characteristics about nature their practices. Building off insights, advance a document-centered articulation scientists' derived from pilot study scholars in field information studies. We...