A5087191642- Health, Medicine and Society
- Infant Development and Preterm Care
- Cerebral Palsy and Movement Disorders
- Family and Disability Support Research
- Healthcare Systems and Practices
- Down syndrome and intellectual disability research
- Adolescent and Pediatric Healthcare
- Assisted Reproductive Technology and Twin Pregnancy
- Hemophilia Treatment and Research
- Neonatal and fetal brain pathology
- Retinopathy of Prematurity Studies
- Prenatal Screening and Diagnostics
- Reproductive Health and Technologies
- Neonatal Respiratory Health Research
- Child and Adolescent Health
- Childhood Cancer Survivors' Quality of Life
- Birth, Development, and Health
- Bipolar Disorder and Treatment
- Reproductive Biology and Fertility
- Infant Nutrition and Health
- COVID-19 and Mental Health
- Aging, Elder Care, and Social Issues
- Spinal Cord Injury Research
- Social Policies and Family
- Pregnancy and preeclampsia studies
Aix-Marseille Université
2015-2025
Assistance Publique Hôpitaux de Marseille
2021-2025
Hôpital Nord
2021-2023
Hôpital Saint Joseph
2015-2019
Abstract Background The care organization of persons with profound intellectual and multiple disabilities (PIMD) varies by country according to the health system. This study used a large sample French individuals severe PIMD/polyhandicap assess: 1) adequacy setting over 5-year period 2) consumption. Methods longitudinal data from EVALuation PoLyHandicap (EVAL-PLH) cohort who were receiving managed in specialized centres residential facilities. Two assessments performed: wave 1 (T1) 2015–2016...
ABSTRACT Background Advancements in medicine have increased the life expectancy of people with profound intellectual and multiple disabilities. The hypothesis is that as parents get older, they worry about no longer being there for their child. This paper explores extent to which experiences older may differ from younger parents. Method participants were included French EVAL‐PLH cohort. Psychological status, quality coping compared between (i) youngest persons (< 20 years) versus oldest...
Abstract Polyhandicap is characterized by a combination of profound intellectual disability and serious motor deficit, resulting in the extreme restriction autonomy communication. The aim EVAL-PLH (EVALuation PoLyHandicap) study to identify impact socioeconomic, environmental, epidemiological determinants on health status persons with polyhandicap daily lives their caregivers. prospective cohort study. involved severe (who were cared for at reeducation centers, residential facilities, one...
Abstract Introduction It is necessary to gain insights into adherence healthcare in people with severe haemophilia (PwSH), especially during the transition from paediatric adult care, which an important phase lives of young childhood chronic disease. This can be considered as a marker successful transition. Objectives The main objective quantitative TRANSHEMO project was compare between adolescents and adults (YAs) haemophilia. secondary identify determinants (facilitators barriers) this...
Abstract Background In recent decades, progress has been made in the care of people with polyhandicap/profound intellectual and multiple disabilities (PIMD) through a better understanding pathophysiology development new management rehabilitation strategies adapted to these extreme pathologies. Although there is lack knowledge about health status oldest people, natural course life polyhandicap/PIMD would consequently allow optimisation preventive curative strategies. Few robust data on...
Introduction Severe haemophilia is a rare disease characterised by spontaneous bleeding from early childhood, which may lead to various complications, especially in joints. It nowadays possible avoid these complications thanks substitutive therapies for the issue of adherence major. The transition adolescence adulthood young people with severe critical period as it associated high risk lack healthcare, might have serious consequences on daily activities and quality life. Methods analysis We...
Abstract Introduction Parents of persons with profound intellectual and multiple disabilities (PIMD) play a major often lifelong role in the care support their child. A better understanding parents' perspectives regarding experiences parenting child PIMD is essential to them more effectively. Although this topic has been explored extensively Anglo‐Saxon Northern European countries, little known about experience these parents highly institutionalized context such as that France. Objective We...
Abstract Introduction Health of people with severe haemophilia (PwSH) improves thanks to the advancements in care, giving them more opportunities occupational integration. However, there is little literature on integration PwSH. Objectives The main objective our study was assess PwSH and compare it that general population. secondary association between individual characteristics (sociodemographic, clinical psycho‐behavioural) Methods A multicentre, non‐interventional, cross‐sectional...
Background: Oil massage versus only can increase preterm newborn development, especially weight gain, via a supposed percutaneous absorption of oil lipids, but data are contradictory. Aims: Investigating whether with vegetable balanced in essential fatty acids improves neonatal and digestive autonomy as proxy for neuro-development outcomes. Methods: A prospective monocentric randomized study was conducted very premature newborns who received (isio4 10 mL/kg/day, n = 18) no (n five...
The COVID-19 pandemic has strongly affected France and put a strain on its health professionals. As documented by literature, professionals are at higher risk than the general population regarding their mental welfare. study's objective was to measure anxiety levels determinants of practitioners French department during first containment. A survey through self-completion questionnaire sent 250 Bouches-du-Rhône department. Their state measured using Spielberg validated STAI-Y. experience,...
Abstract Background Very preterm children generally perform poorly in executive functions and particularly working memory. Adaptive training tasks encouraging these to work continuously on their personal memory capacity can be very useful. Above all preschool-age children, several cognitive programs focused improving capacity. Cogmed is a computerized visuospatial program that improves adolescents with attention-deficit/hyperactivity disorder. The main objective assess the long-term effects...
Topic: 35. Quality of life and palliative care Background: Haemophilia is a rare inherited disorder affecting mainly men, characterised by bleeding due to deficiency in clotting factors. Untreated severe haemophilia marked serious haemorrhagic events (e.g., intracranial haemorrhage, hemoperitoneum, hemarthrosis). However, improvements care, such as substitutive therapies, allow people with (PwSH) have near-normal expectancy, so they can reach adulthood live chronic disease. This gives them...
Compared with term-born peers, children born very preterm generally perform poorly in executive functions, particularly working memory and inhibition. By taking advantage of neuroplasticity, computerized cognitive training those could improve visuospatial processing by boosting visual inhibition via memory.To evaluate the long-term effect on aged 5½ to 6 years who have impairment.This multicenter (18 French university hospitals), open-label randomized clinical trial 2 parallel groups...